Over 3 months. - your experience?

it's been more than three months and I start the third ABXi next week. Overall, I feel OK, but my heat intolerance and functional weakness / dropfoot.iinmy left leg, seem worse. What are other people's experiences, at this stage?

Comments

Try this again - just got my

Try this again - just got my long reply sabotaged!  Never give up!

Three months was a "drop in the (my) bucket".  Many days I was flattened by the abxi and flagyli.   My doctor calls me his "miracle" because of my amazing, extensive recovery from MSi.  

After my nearly fatal pneumonia when I was about ten, I developed a chronic sinus problem that was like a forever cold.  It is totally gone.  In my later years I developed extensive arthritis - completely gone.  I will be seventy-eight in a few months.  If not for our program and site, I would have been long dead.  I wasn't done - I'm still not, I hope.  We still milk and feed our thirty goats twice a day.  (We are only milking seven).

A little bragging here:  My identical twin grandsons just finished college and their Masters with a straight 4.0.  I would not have seen this without our wonderful site.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Wow Rica!

wow Rica! 78 and life has just begun! Which level MSi did you reach? your post has given me confidence, I'm only 49 but have felt, no matter how optimistic I am, that life was, pretty much, over, but you prove that doesn't need to be true. Thank you.

MSi symptoms  begin 2001, DXi RRMSi<2008.  take interferons, on and off, until 2012  2010 9-12 monthly chemotherapy pulses to slow MS progression.  CCSVI March 2011. Wheldon protocol since April

I was given a disability

I was given a disability score by my neurologist of 6.7.   I don't see him anymore, but it is lots less than that!

Rica 

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

A wonderful story,

A wonderful story, Katman.

 

Why are some (but not all) neurologists so upset when their patients unexpectedly improve on this treatment? Sarah’s neuro blew a 60amp fuse when she began to recover and he refused to see her. She occasionally sends him a print of some of her work. He never acknowledges this. It’s a poor sort of doctor who puts professional gravitas above a patient’s recovery. For myself I’d be delighted.

D W - [Myalgia and hypertension">i (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazolei. No medication now. Morning BP typically 110/75]

David, you - and Sarah, of

David, you - and Sarah, of course - are way up on my hero list, along with Charles Strattoni, an incredible man and microbiologist, and a couple of police force detectives.  You have worked very hard and given all of us hope and knowledge.  You are always honest about the site.   I will forever be so very grateful to you two.  Thank you.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hello Jane: so the time has

Hello Jane: so the time has come!

Here is my experience of getting ready to start metrodazole: I started it after just about three months, and by then winter was just about starting.  I started the protocol just about at the end of summer, but that year we had a real indian summer when temperatures should have been dropping, so I was really hit by heat intolerance.  On the other hand, my functional weakness was already getting somewhat better, more so with my ars than my legs: I was starting the long haul back to being able to use my right arm again.

I took metronidazolei easily for five full days for the first go, but felt it more the next time and the third time was dreadful, with a pain that moved up and down my arm all day, from about seven in the morning until about midnight, fading away but then coming back the next morning, like an alarm clock!  The fourth pulse I hardly felt anything, nor the following ones............................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Three months

hi Sarah,

I'm not pleased you had heat intolerance, or functional weakness, but knowing you did makes me feel so much more reassured, I had begun to feel as though there was something majorly wrong with me ... besides MSi, of course! 

Small  improvements have made me realise I'm much further along, in disease progression, than I admitted, out loud!   I haven't pushed my Neurologist for a new diagnosis, simply because I believe, strongly, in suggestion and don't want to further disable myself, so, officially, I'm still RRMSi, but, I've known, for a while, I'm SPMSi

Anyway, thank you Sarah, I feel much better now! I read the first three months are, often, the toughest! I hope you're well and MS is, still, just a memory!

MSi symptoms  begin 2001, DXi RRMSi<2008.  take interferons, on and off, until 2012  2010 9-12 monthly chemotherapy pulses to slow MS progression.  CCSVI March 2011. Wheldon protocol since April

More than happy

Jane, ever since the first interferons came along, just before my SPMSi diagnosis, neurologists have been very reluctant to give the SPMS disgnosis.  Maybe they were before that, I don't know, especially if they believed in the power of suggestion!

Mine obviously believed more in the power of the chequebook, so once I has falteringly signed a cheque for him, that was it.  Maybe he owned a chain of nursing homes and was hoping for David to give him the next cheque, since the man had already said to David that this was where I was headed.

Anyway, my MS is certainly just a distant memory and is getting further away by the day, even though I still can't run.   Draw, paint and think I can certainly do though, which makes me more than happy......................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Chequebook vs. ego!

Sarah, I am so pleased you're happy and wish more of the medical profession were like David, I will never understand how anyone could put finance or ego before the lives and happiness of the afflicted. I have no idea if my condition will improve but I do know a complete stranger has tried to help me, without reward. That should be enough for any ego, and I can't thank David, or you, enough.

MSi symptoms  begin 2001, DXi RRMSi<2008.  take interferons, on and off, until 2012  2010 9-12 monthly chemotherapy pulses to slow MS progression.  CCSVI March 2011. Wheldon protocol since April