Opportunity to make a difference for ME/CFS in the US?
Following is the introduction to a new group at the Phoenix Rising forums by Cort Johnson. I just wanted to throw it out there for anyone with ME/CFS who might be interested in taking some action to hopefully show the Centers for Disease Control that they've taken a turn onto the wrong path in understanding and research for our illness. If you go to this forum, Cort has outlined a very good history of what has occurred recently in the CDC's outlook and future plans for CFS research.
The group can be found at: http://forums.aboutmecfs.org/group.php?groupid=4
M.A.D. (Making A Difference) About ME/CFS Group
The M.A.D. (Making A Difference) Group was formed in response to a potentially pivotal event that will occur shortly; the Oct 29th/30th CFSAC meeting at which the CDC will present its Five Year plan for ME/CFS.
The first project of the group is creating a strong voice for change in the CDC's CFS research program at the Oct. 29/30th CFSAC meeting. With patients, support groups and researchers united this meeting has the potential to become an epochal event in ME/CFS history. Dr. Jason has called it the biggest event in 25 years. We intend to do our best to make it so.
If you're interested in making a difference in the biggest research program on the planet please join this group.
Date Oct. 29,30th (Still waiting on date of CDC presentation)
Place: Department of Health and Human Services Building on NW corner of the Mall - cate-corner to the National Museum of the American Indian and across from the Botanical Garden and the Pool. See Below - Click on the picture to make it bigger.
Purpose: Agitate for Change in the CDC's CFS Research program as they produce their 5 Year Plan for CFS