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Ulcerative colitis diagnosed 11/05, arthritis, rosaceaii; CAPii starting 02/07: minocyline 200mg x 2, azithromycin 250 mg MWF, NACi 1200 mg x 2, pulses of metronidazolei 500 mg x 2 five days starting 04/07. Cured of colitis 11/07.
Ongoing treatments -- more needed
Submitted by van buren on Sat, 2008-09-27 08:57. Here I am, back again after several months, with a report on progress. As it turns out, I don't appear to be fully "cured", as I had reported in June. Back then, I had been well for a half year. My ulcerative colitis had seemed to utterly disappear. I had ramped down Asacol, the inflammatory bowel diseasei drug, entirely by March.
Shortly after my last post in June, I took 500 mg of niacini for four days -- first in the morning, and then just before bedtime the last three days. The niacin gave me an immense flushing. During that same time, I also started a very mild dose of levothyroxin, having tested slightly low in thyroid function. Rectal bleeding started up again then, and I resorted to taking 1200 mg Asacol three times a day, and using an occasional Colocort steroid enema to keep these symptoms away. I continued with the metronidazolei pulses.
Gastroenterologists seem to insist that Asacol is required to get ulcerative colitis into remission and keep it there. I'd been advised to keep taking it for life. It has always given me mild headaches, and sometimes extreme flatulence. A couple of weeks ago, I started increasing the dose to 1200 mg four times a day, and then even 1800 mg at times, trying to get in shape for travel. I then had what I believe was a severe reaction to Asacol: severe headache lasting over 24 hours, with nausea and vomiting. This prompted me to quit Asacol point blank.
Quitting Asacol is, according to conventional medical practice, cause flare-ups to become worse, and this one has in my case, with increased bleeding. Cortocol enemas are helping now, and I have resumed a pulse. I go back to my gastroenterologist in a couple of weeks. Meanwhile, I'm hanging in there.
Sue
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Sue,<> I don't know how I
<> I don't know how I missed your post before now, but I did. I know nothing about your particular manifestation, but rosaceai I know by others' posts and arthritis I am familiar with firsthand - now in my past.
What is blatently obvious to me is your recurrence of symptoms, now that your "honeymoon" period is over. This is being reported more and more often - seemingly part of a pattern - by those of us who join this battle. So, my point is glaring by now: keep fighting and you may well join the ranks of those of us who are moving along - way in the distance maybe for you, but this is how we got where we are.
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA
Sue, If I remember rightly
Sue, If I remember rightly you did not go to an intermittend protocol, or at least not for very long. I don't have what you have but my IBSi is improving on this protocol but it can see myself being on an intermittent protocol for at least a year after all my symptoms have abated just to be on the safe side. I hope that you regain your pain free status shortly.
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006