One Thing at a Time

Submitted by katman on Fri, 2012-12-28 10:50

This is a very short blog to list another improvement caused by staying with this, living with this monster every day, and simply staying alive to enjoy the events that can happen in life.

Two weeks ago this minute I was under general anaesthesia having the muscles removed from my eyeballs, shortened, and sutured back on.  Over many years, my double vision caused by MS, had become so bad that it was almost at right angles, somewhat corrected with twenty-six prisms in my glasses.  I have worn glasses for sixty years, but after surgery I woke up repeartedly saying "This is amazing!".  I was seeing only ONE of everything!  We came home with orders NOT to put on ANY glasses for two weeks and he would send a note to my ophthalmologist not to put any prisms in my new lenses.  I drove the next day - no glasses.  On my post-surgical test I read the chart well enough to pass my driver's test.  Today we go for our annual (bi-annual for me) refraction (eye test).

Two weeks later, I am still just looking around enjoying the sight.  By the way, the following Monday my anaestesiologist called and asked what we are doing.  He had been thinking about me all weekend - he had never heard of anyone coming back so far from MS.  I gave him our website and congratulated him for being such a courageous man and open-minded doctor.

So, as always I say:  keep at it!  It can really, really pay.


Rica, I’m lost for words! .............................Sarah

A Journey through Light and Shadow


Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

That is awesome Rica :o) I'm so happy for you.

I have an eye issue, which I've never mentioned before because it wasn't a major inconvience. I have 6th nerve palsy, which is double vision that occurs only when you look to the side.  Essentially,  I get double vision when I look over my left shoulder.

After running some tests, my neuro (one of many) swore I didn't have double vision. I purposefully looked at him over my left shoulder as he told me. Nothing quite like experiencing a double view of an idiot telling you that you do not have double vision :o)

After some research, I finally found the crazy name for this issue and came to accept it because I figured there was nothing I could do about it. It really wasn't a problem, unless I was backing a car out of a parking spot, and even then all I had to do was close my right eye. One time another driver gave me a funny look...I think he thought I was winking at him :o)

Your post prompted me to once again look over my left shoulder. The double vision is still there...but then I concentrated and it was gone. I'm amazed. I've concentrated and tried to focus before to no avail. Wow. That's a nice surprise before the new year.   No more winking at strange men who happen to stand at my left :o)


This is the right kind of miracle!  Incredible, wonderful news!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

That is amazing, I am so happy to hear stories where people improve sp much, it gives me hope :)


Diagnosed with progressive MS at 18, was told would be in wheel chair with in 1 year, looked after myself and don't have too many attacks now, I am just tired all the time, started CAP on 1st Sep 2012.

Rica that's amazing, unbelievable. Congratulation. 

I had 3 times a double vission at the beginning of my MS but I always recovered almost completely only double vission to the very sides remained or when I focused my vission to the backround the things in the foreground were doubled or opposite - focused on the things foreground the thinds in backround were doubled. Now it's ok.

When I was told that sometimes the double vission will remain forever I started to preactise my eye muscles and it helped fortunately. I can't imagine myself to have double vission for a lot of years. I admire you you could live with it for so long and I am happy for you this really bad thing has gone.








MS for more than 30 years, WP since July 08, break Jan 09-March 09. NAC 2x600mg, Doxy 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDN, supplements.Since May 2013 without abx.


Am so pleased for you.  I think you were very brave going for that op.  I bet this is a real lift of spirits too.  Not seeing v well can make one a bit down i think.  Yey, i bet colours are good too.



Female UK. High EBV, CMV. In winter 12/13 waslow Lyme and Cpn-tx'ed 6mths. Sept 13 -ve lyme, +ve erlichia, bart &Yersinia, starting tx for co-infections also aspergillus