OK to start with just Mino?
I'm brand new to this. Was DX with MS last July, reacted very badly to inteferons. In 6 months went from having a senior level research job to being unable to work because of memory loss, lack of concentration, typing different words than I meant to type and speaking different words than I meant to speak.
After scouring PubMed for SOMETHING, ANYTHING that might help me with my mental clarity and fatigue.
I convinced my family physician to prescribe mino for me. Then I started looking more into Mino on places like thisisms.com and found out about this possible Cpn link.
Here is where it got interesting to me. My symptoms started back in 1999 a few months after I had pneumonia. I had put the pneumonia behind me, but could not explain why I would have suddenly become so fatigued, and started having trouble concentrating. I distinctly remember a day in the summer when I had my first episode of heat intolerance. Well, this started dr. visits, an initial DX of narcolepsy, then a DX or idiopathic hypersomnia, then a DX of depression. I was doing ok. Yes, I needed 10 hours of sleep every night, plus caffine, plus a daily stimulant to function. but I was doing ok.
Spring of 2009 I started taking Mino for some mid-life acne that sprung up. Took mino for 3 months. After being off for about 2 months I suddenly went blind in my right eye, prompting an MRI that showed about 5 old lesions and one active one. That's when I was DX with MS.
So when I read about CPN and Mino this spring, I wondered if my symptom onset after pneumonia was no coincidence, and whether the new lesion after stopping mino was no coincidence either.
In any case my doctor (GP, not Neuro) signed off on my taking Mino which I am in my 3rd week of now. I see studies on PubMed where Mino was used with success for MS and I wonder, if there is any harm in my starting with ONLY Mino. thought I might do just Mino for 3 months or so and then deciede if I want to add another antibiotic. If we assume that I DO have chronic Cpn, is there a risk in starting off with just Mino?
BTW, I cobbled together my own regiment of supplements based on digging through PubMed and reading lots of medical journals, and what I came up with, turns out is nearly identical to what Sarah reported taking in the bio she posted. Daily I take:
Alpha Lipoic Acid 600 mg
Acetyl L carnitine 1,000 mg
Vitamin D 3 5,000 IU
B6 200 mg
CoQ10 200 mg
Omega 3 -- 800 mg EPA, 400 mg DHA
Calcium 500 mg
Magnesium 250 mg
and a good mulitvitamin with minerals