The Numbers Never Lie

Submitted by katman on Mon, 2012-03-26 15:56

Last week I had my check-up and got a wonderful more-than-passing grade.   He began by saying that I (we here) are blazing a trail.  He was, as usual, delighted with my physical well-being, my numbers (more about that later), and the way I looked - well. 

My numbers were all really good, with cholesterol total 237 - where it has always been - but as usual, my HDL (good) was 97.  He always remarks on my ratio, which is phenomenol.  My thyroid T4 was a tiny bit low: 0.58 -  normal is 0.62 - 1.41.  He thinks this may be from five abx long-term, and to call him if I am "tired".  Ha!  We know about "real" tired.  I hope never to experience THAT kind of tired again.

The really, really neat thing is that when I told him about this thing beginning with my feet and working its way up over the years to my brain. leading to my "being under water" for a few weeks, and my suggestion that it has no where else to go and my arthritis is gone, he looked back at my sed rate over the years.  It has been in the upper seventies for years, and this time was seven.  He was impressed - and said I was stubborn and his hero, and one of the healthiest people he knows.

Another thing that did not surprise me is that my Vit D level had dropped to the mid-fifties.  I like to keep it in the high eighties, but had been taking only 7000 units for a few months, down from 9000.  Needless to say, I am back up to 9000, where I will stay.

So, guys, keep it up.  Yes, it is hard, but, as I repeat over and over, so worth it. 

Rica

My friend, you bring me to tears!  SUCH good news! 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Excellent, Rica!  I think that our little witches coven as someone used to call us will end up being the healthiest people on the web.........................Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Now, who would call us such a thing, Sarah?   It couldn't be specialist doctors who say "Don't look on the web - you just get too much knowledge - don't spoil the picture".

Thanks

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Ah, yes, the eyes rolled upward and the comment, "Stay off the internet".  I remember it well.  One neuro and one infectious disease specialist delivered both to me. 

The infectious disease doctor said, "Oh, I'm sure, in ten years, we'll ALL be treating MS with antibiotics.  Yeah.  Right." 

She then dismissed me from her office.

Here we are, six years later and mino has become fairly accepted in the MS realm.  And more and more of us are proving to our doctors that the stuff that "can't happen" is happening for us.  Progressive MS is being reversed.  Can't happen.  Numb skin patches regain feeling.  Nope; can't happen.  Arthritis disappears.  Not possible - can't happen.  

It's a good thing the 'coven' was educated AND stubborn.  Image removed.

 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Well, Rica, it actually wasn’t my neuro: I actually did one thing he said which was too find out as much as I could about MS.  David found out even more and shared the information with said neuro.  However, rather than riding in glory back to Cambridge, he is still Stellenbosched out in the sticks.

Rather nice sticks at this time of year, though: it’s snowing plum blossom and the bats came out of hibernation last night.......................Sarah

A Journey through Light and Shadow

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Maybe they will take him for a visit to Bat City - where we have been.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Why Rica, you didn't even tell me! That's marvellous!

I have been told that when the good cholesterol is very high it is because of physical exercise. And you sure get plenty of that!

Congratualations! May we all follow in your footsteps.

 Nancy

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Rica,

  Your "numbers" bring realistic hope to the rest of us. I love how you share your healthier self so generously. Congrats to your other half also.

Betsy

My meat protein intake is pretty low, though I eat a bite or two and fish once or so a week.  I eat eggs some and eat lots of cheese, both goat and cow, and drink lots of fresh, raw goat milk.  The butterfat in our herd is 4.5%, and we had a doe whose butterfat was 6.5%.  But ALL my cooking is with olive oil.  An interesting pointt brought up both by my husband and my regular doctor is the fact that I have never had a yeast problem while on this intensive protocol.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Congratulations Rica!

For me as a non-MS relative newcomer, it is so encouraging to see what can be done with sufficient persistence and knowledge.

About the healthiest people: seeing how many of people around me that show increasing symptoms (in number and severity) of Cpn infection, I feel even more fortunate to have found this place than from "just" having found a working treatment for my specific problems.

 

Borrelia/Cpn arthritis: joint, skin, eye, CNS, respiratory, UG involvment; fatigue. Borrelia: Clinical, Elisa&WB IgG, and CPn IgG and IgA pos, HLA-B27 neg. (2010). CAP 5/9/2010 -> 3/2016 2017: some signs and symptoms returning, Borrelia?

Awesome Rica - keep the good news coming!  I thought i replied to this previously....

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Sorry to shoot this to the top, but a conversation with a friend made me understand that some of us, like me in the past, don't know the significance of the dramatic lowering of my "sed rate".

Apparently the sed rate measures the level of inflamation of a body.  I had severe arthritis, and my doctor agrees wholeheartedly that if my diagnosis had not been MS, it would have been RA.  But when I told him very straightforwardly about the trip through my body  -  the "pain-path" -  a switch was thrown and he looked back in my record,  current one first, and realized that my sed rate had dropped from the upper seventies - way above "normal", to seven.  The norm is twenty or below.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica, Thanks for sharing that information about your sed rate falling while on CAP.   Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support