Number 5 is alive!

Submitted by Andesine on Mon, 2008-05-26 07:47

Five weeks down, ??? more to go and this week I've actually been feeling really good. The eyelid flicker has decreased since I increased the CQ10.

I've spent most of the week gardening. Done a lot of heavy digging and sack dragging and I hardly experienced any left side weakness. Once or twice whilst trying to stomp the shovel into a particularly recalcitrant patch of earth I noticed a reluctance from my leg to provide the necessary force but other than that, fine.

I had been expecting problems as last weekend I ran out of NAC and my new supply didn't turn up until Thursday. As soon as I started taking it again, back came the sinus headaches so I suspect my previous euphoria was NACless related. Still feeling fairly energetic though so onwards and upwards.

 

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supplements. Doxy 200mg. Zith 250mg M/W/F.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April 2008.

 

Great news, Andesine. You are knocking down that load and doing a good job of pacing yourself. Keep it up! 

CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Protocol: 200mg Doxy, 300mg Roxithromycin, Tini 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

 

You spent this last week digging and sack dragging?  It went back to being nearly winter here and still is.  You might find that increasing your alpha lipoic acid amounts along wit the CQ10 helps with eyelid twitchings and suchlike.  It certainly helps me with footburn............Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

The weather has been coolish which I find great for gardening. If it's too hot then I start to get the weakness and eye pulsing. Today however I have had to give in. I'm thinking of spending the time building an ark to float off in if this rain doesn't stop. 

I installed two new very large water butts on Friday and they're both full.

I haven't had foot burn for a few days, strangely, it stopped about the time I started gardening. I'll give the ALA increase a go though. The CQ10 certainly seems to have given me more energy. No only have I done the garden, I also tackled some long overdue housework. Harv has noticed he's getting his dinner on time too, the washing up gets done immediately rather than waiting till I can't stand it any longer and I've had two business meetings at client sites, something I couldn't face before. 

Boy I hope this keeps up. 

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supplements. Doxy 200mg. Zith 250mg M/W/F.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April 2008.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

That is good news Ande,

I was slammed after running out of NAC for a few weeks.  I won't be doing that again!

CFIDS/ME 26yrs, FMS, IBS, EBV, CMV, Cpn, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Andesine, it's good to hear that you're doing as well as you are, keep at it! I'm self medicating as well and I know that sometimes you can feel a little out on your own, so having the support of this site is invaluable.

Best wishes 

Robert - MS for 16yrs. CAP since Jul 07, NAC 2400mg, Doxy 200mg daily, Azith 250 mg MWF, Flagyl 7th pulse.

MS for 20yrs. CAP since Jul 07, NAC 2400mg, Doxy 200mg daily, Azith 250 mg MWF, Flagyl for 4yrs.

 

Half past midnight and still raining here!

We have two VERY large water butts in the cellar, I forget how many gallons, but nearly as tall as me 5ft 8ins) and over 1 metre wide, just to confuse people.  I bought them as unwanted orange juice containers, too expensive to be sent back to Greece, where they came from.  We had one hell of a difficulty fitting them into the cellar, but they collect rain all year round from the roof and the land drains, so we never fall prey to water restrictions when we need to use it...........Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

HA! So now we all know where to come when the water board start banning hosepipes again. Image removed.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supplements. Doxy 200mg. Zith 250mg M/W/F.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April 2008.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

Brit gals,  Is a water butt the same as a cistern? 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

And a hosepipe I take to be a garden hose?

Louise, CFS. CPnPositive. BbPositive. WheldonCAP began6/24/07. NAC,Doxy, Roxi,FullTiniPulses. Intermittent Cholestyramine,1-2packets, at bedtime,most often with pulses,and as needed, for Phorphoria & liposacaride Endotoxin Die-OffExperiences.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Double click of the key, so sorry.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

 

A Brit gal replies!  Yes, a water butt is what you would call a cistern, although to us a cistern more commonly is a receptacle with a handle used to flush the loo.  A hosepipe in this instance is also a garden hose, but something we haven't need to use since the warm, dry days of April.............Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

And a loo is a toilet.

Two nations divided by a common language. Image removed.

 

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supplements. Doxy 200mg. Zith 250mg M/W/F.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April 2008.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

And a toilet is a lavatory, or a WC. Image removed.

I currently have two plastic cisterns housing the pond plants that I brought with me when I moved house last year . This was intended to be a temporary solution until I have a garden pool here...fortunately the water lilly and the irises are thriving in their "temporary" home.

New Forest, UK. Progressive MSi dx 12/06 LDN 3/07 CAP 6/07: Wheldon version. Pulses so far #10

speedbird

Should we start a new topic Britspeak - Amerispeak or continue to hyjack Andesine's Blog?  Image removed.  I do find this a fun and educational thread!  I could learn Britspeak as a second language!  Then I would only need to work on my accent.

Louise, CFS. CPnPositive. BbPositive. WheldonCAP began6/24/07. NAC,Doxy, Roxi,FullTiniPulses. Intermittent Cholestyramine,1-2packets, at bedtime,most often with pulses,and as needed, for Phorphoria & liposacaride Endotoxin Die-OffExperiences.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Hijack away. I'm famous for it. Image removed.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supplements. Doxy 200mg. Zith 250mg M/W/F.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April 2008.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

Yes Speedbird I do and that is a very good sign that CAP is WORKING!  Still I am considering starting our own Back porch discussion so that the next time I have a translation question we will all know where to take it and eventually we can publish a book and donate the proceeds to CPNhelp.org for further upgrades etc.   What do you think?   Maybe I should try amazon.com used books or ebay and then I could post the translation of the day or better yet a contest daily?    Or we could be very multi lingual and anyone can share the word of the day in their native language.  Yah know, just a fun thread.

I tried a fun thread way back, sort of a pollyanna style and got no replies, it died fast!  So I am a bit hesitant to try againImage removed.

Louise USA.CFS.CPn Positive.BbPositive.WheldonCAP6/24/07.NAC,Doxy,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxins. 

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Or... you can just take a look through Chris's exellent ongoing work to which one has contributed. Ahem. 

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supplements. Doxy 200mg. Zith 250mg M/W/F.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April 2008.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April