Now cured of inflammatory bowel disease

On the occasion of my son Norman's birthday today, I'd like to announce to you that it is not only Norman who is doing well in our family. It seems clear that I've been cured of inflammatory bowel disease once and for all. Since late November, I've had no trace of the bowel disturbances that had persisted in me for at least ten years. With Norman's help and the right doctor, I started on the protocol(slowly at first)in February of 2007, after a year and a half of visits to a gastroenterologist who had diagnosed my rectal bleeding as Crohn's disease (later diagnosed as ulcerative colitis by another gastroenterologist). The gastroenterologists had upped my dosage of Asacol to 8 400 mg pills a day, warning that cutting back on this medication would cause a relapse. The severity of my symptoms seemed to track the timing of my metronidazole pulses through to November, while also responding to the Asacol. Over the past two months, I've been free of Asacol, having slowly decreased the dosage over the late winter months. The change has been so remarkable, especially given the lack of Asacol, that I'm now confident that there is in fact a real cure. I wish to thank not only Norman, but also all of you at cpnhelp for your warm support and good information. Best, Sue Yarvin diagnosed with ulcerative colitis 11/05, taking minocycline 100 mg twice a day, azithromycin 250 mg MWF, NAC 2400 mg a day, pulses of metronidazole 500 mg usually a month or so apart.

Ven Buren - Sue, This is a marker - again! You are one of the few cherished souls here who can put in your signature - Used to have_____. Congratulations. May the list continue to grow. What a birthday present, Norman! (Richard's was yesterday)

 

Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 50 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

I remember when you first joined Sue... and there you are cured.   I'm not cured of my IBS yet but I'm getting there....

Congratulations and well done both of you.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Good job Sue!  How does normal living feel?

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

 Sue- that's a wonderful thing to hear! And a big thing to be able to come off of the Asacol, which I'm sure was expected to be a lifetime medication.

Perhaps you might put it together into a "patient story" for us? I'd be glad to post it. We can't know what percentage of IBS the CAP will help, but if your story gives someone an avenue to try before they end up with a colostomy you'll have helped a bunch of folks. 

CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Protocol: 200mg Doxy, 250mg MWF Azith, Tini 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Cured !  That word has a lovely ring to it ! 

Congratulations on your improved health !

Daisy - Husband on CAP 5/07.   Roxy, Diflucan round three 4-3, Rifampin, Bactrim DS, Mepron, Prednisone, Novantrone, Doxy, Azithromycin, Flagyl, Mino

Daisy - Husband on CAP 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MS drugs killed him.

Daisy on her own CAP 11/2012. 

Yeah Sue & Norm!

I am very happy for you.  My IBS since starting treatment has been better.  It was one of those niggly symptoms under the umbrellla of ME/CFS

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Hi, just wanted to say congratulations. For me its only been 3 weeks and Im already off my IBS meds and having very minimal pain. ( as compared to pain that left me doubled over and crying. Still a long way from cured but your story further confirms to me that bowel problems are such a huge part of cpn. Thanks for the update and again congratulations.

 

 

 

 

 

&nbs