My six months of constant flagyl are over and I have survived it. Not only have I survived it, I have greatly benefitted from it.
Last January I had stopped all abx, thinking I was done. I had two glorious months then by May had sunk with incredible swiftness almost back to the level of my worst. My husband (pediatrician) called Dr. Stratton, who put me on a six month five abx protocol, including two 500mg flagyl pills every day. I hit the floor pretty fast, but gradually picked myself up over the next few months. But....I was STILL reacting by the end of it and am now on NO FLAGYL, but instead caffeine and the other four abx. Six more months. OK. As I said six months ago - I can do this. It is easier than when I began the whole thing five years and almost three months ago.
This blog was to have been written a week ago, but I got a terrible cold, with laryngitis, cough, and all symptoms of a really bad cold. But, for the first time in decades, it did not go into my chest, with a very deep cough that lasted for months and months. I am still coughing but it is so normal!
It may be helpful to list my symptoms that are gone. Lists like this are problematic because, unless they are written down, more and more are remembered. I will list those that I remember and add to it, anyway, because I think it may be helpful for those of us who are still lost in the swamp to know that these things can go away.
My fingers are no longer numb, the feeling has returned to normal on my right side. This was enrtirely numb from mid ribcage to the tips of my toes. My vertigo is gone, for the first time in my adult life. My right arm gains in recovery of use slowly, and my balance is better all the time. And my strength is slowly returning. That is depleted by flagyl somehow and can return in surprising bursts. I have not recounted the tiny things like skin that doesn't need dozens of applications of hand lotion every day, flawless cuticles for the first time in decades, recurrent little skin infections that are all gone, a right foot that doesn't look and feel like a piece of raw liver, iritis that is gone after twenty-five years, and clarity of thought that is slowly returning.
Again I say, we don't know what we are going to get till we are done. It takes forever but the top of the mountain is closer every day. For some of us, there is something else going on, but if this is part of it, we are miles ahead of those who never took the first step.