Not over yet

Submitted by Michèle on Tue, 2008-12-23 06:14

I've made much of my hair recently, rejoicing and celebrating the fact that I have more hair on my head at the moment than in almost 30 years.   There have been periods in that time where the hair was more or less normal, but there was always a sizeable patch or two on my head.   I'm still rejoicing especially as the patches that are still appearing are so small, but I thought it might be useful for people whose symptoms are not as visible as mine to see that the problem is not solved yet.   I've drawn attention to the possibility that what is happening on my scalp might be a mirror of what is happening to my less visible symptoms.   This treatment is not a once and for all process more a revisiting over and over again of problem areas, with consequent losses in places I might have expected to be 'sorted'.


Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Thanks for the graphic illustration Michele, I can really relate this to my on-off walking progress.

Now to do the cranberry sauce in advance...


Michèle, I have never had actual bald patches but I have noticed since even before my MS became really  aggressive, it was much thinner on the left, disguised somewhat by parting it way to the right.  It still is thinner, except that I have many new, shorter hairs growing, now about eight to ten inches long, so I'm hoping it will even out a bit, just like I am hoping that the weak points in the walking abilities of my right leg will even out.  They are doing bit by bit even more than a year since finishing treatment. 

By the way, does your hair just look darker because it is wet?  I like the arms of your glasses, by the way!............Sarah

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

My hair is darker when wet, but on the sides at least it is quite dark even when dry.   There is more white on top but I'm hoping that the dark hair will return more thickly there too.   That is the place where there is more activity than anywhere else on my scalp.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

3 years ago i also suffered from Alopecia Areata. In the beginning it was just one very small patch, but about 7 months later i had 3 large patches and i had lost 30 % of my eyebrows and 20% of my beard. I was really worried. I know the devastating psychological effects Alopecia can have. My twinbrother was 14 when he got Alopecia Areata. He lost about 70 % of his hair and completely lost his eyebrows and eyelashes.

He became very depressed, totally isolated himself and in the end he commited suicide. I remember my mother took him to an old wise man when he was 18. The old man just looked him in the eyes and held his wrist. Then he said to my mother:"Your son is losing his hair because of an old lung infection". After having read your story, Michele, there is no doubt in my mind that he also had Cpn.

Anyway, i just want you to know that i found a doctor who helped me, a specialist in traditional Chinese medicine. He gave me a lot of herbs which i had to cook in a clay pot every day. 15 weeks later all my hair had grown back. In the beginning it was completely white, but it became black again a couple of months later ( still have a few white hair in my left eyebrow, but that´s all)

I hope and pray that you also get all your hair back, Michele. It is possible.

I wish you all the best.

Unfortunately loss of hair in teenagers does cause a number of people to commit suicide.   I was lucky that it did not start to happen to me until I was in my thirties.  

I know it is possible to have a full head of hair again because I have come back from a very severe loss of hair just two years ago to what I have now which is very nearly perfect as far as I am concerned.   And it is all down to the CAP.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.