To melt your heart

Submitted by robertd on Tue, 2007-08-28 14:35

This little lady is 8 weeks old and is the latest addition to our extended family. Her name is Mair, pronounced my_urr (welsh for mary), she's a pedigree border collie. She arrived because Karen's cousin's much loved Samantha sadly died 2 weeks ago. We also loved Sam very much, so as soon as Mair was taken home, we had to go and see her and she is so cute. We spent the whole day with her yesterday in Llangollen.

Robert

No Autographs Please ---

Submitted by denise on Mon, 2007-08-27 04:35

Thanks to Michele for her big help in assisting non-techie me in doing this.

Chloe is my best pal in the whole world.  She makes my heart warm every single day even when she is less than well behaved.  She is a mix of demanding, funny and sweet -- probably like most of us!  The benefit to my immune system and mental health are beyond measure.

Almost nine years ago to the day, Chloe was rescued extremely reluctantly.  She was quite a challenge and it took us two whole days in the hot August sun of 1998 to "trap" her in my backyard here in NYC.  That was right before I got so terribly ill.

Main diagnosis for which I'm doing the CAP (yes, you can pick only one):

Submitted by Jim K on Sat, 2007-08-04 08:51

 Just a quick and dirty poll to see what folks are treating for. It will be open for 4 weeks.

CAP for Chlamydia pneumonia since 11/04. 25yrs CFS & FMS- Currently: 300mg INH, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Tini daily (Taking a break from continuous protocol)

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Jim, you can't spell! (14.15 BST) But this evening you can(22.45 BST) Wink......Sarah
  
An Itinerary in Light and Shadow   
Stratton/Wheldon regime since August 2003, for aggressive secondary progressive MS.  Intermittent therapy after one year. 2007 still take this two weeks every three months. Still slowly improving with no exacerbation since starting. EDSS was 7, now 2
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I toggled the MS and ARTHRITIS ones but it listed me as arthritis only. Hmmmm shall I do it once for each? No it appears I can't..... It's a good idea though! Some people seem to think we have hundreds of patients having done it and every possible experience is out there, it is enlightening to see that we have much more humble numbers. Pioneers! marie On CAP since Sept '05 for MS, RA, Asthma, sciatica. EDSS at start 5.5. Currently on: Doxy 200, Azith 3x week, Tini cont. since April '07, all supplements. "Color out side the lines!"

On CAP since Sept '05 for MS, RA, Asthma, sciatica. EDSS at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxy 200, Azith 3x week, Tini cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithro

What about those of us who don't fit into any of the above boxes?

I have CFS, but my CFS precedes my CPn infection (believed mercury toxicity).

I also have RA & Sjogren's (both undiagnosed) as a result of my CPn.

I could also be labelled GFA, although since I was chronically ill before I got CPn this isn't really a fair description of me.

However if you ask me what I'm treating for I'd say I'm treating my CPn infection - i.e. an upper respiratory tract infection with numerous other symptoms.

We always seem to focus on CPn as a cause of X, Y & Z. Danger is that we forget that CPn is the disease - the other things are just symptomatic labels.

Funily enough the only thing I've ever been diagnosed with by a doctor is CPn. Go figure!

garcia.

____________________________________________________________

CFS since 2001. Infected CPn Jan 2006. Started CAP March 2007. Currently taking: Azith 500mg MWF, 200mg mino every day. 1 Pulse done.

Hunter: Don't think - experiment

 Okay Garcia- I put it in for you! Spelling corrected too, I think!

CAP for Chlamydia pneumonia since 11/04. 25yrs CFS & FMS- Currently: 300mg INH, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Tini daily (Taking a break from continuous protocol)

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Thanks Jim - sorry to be an awkward customer as usual.

I see I am not alone in the "CPn only" camp! There is at least one other person out there in the same category. Hopefully there will be more.

____________________________________________________________

CFS since 2001. Infected CPn Jan 2006. Started CAP March 2007. Currently taking: Azith 500mg MWF, 200mg mino every day. 1 Pulse done.

Hunter: Don't think - experiment

Garcia, your profile says you know exactly when you caught chlamydia pneumoniae and from whom.  I wouldn't have thought that was possible because people are coughing and sneezing in the street or subway all the time.  You have probably had it for much longer than you think......Sarah   
  
An Itinerary in Light and Shadow  
Stratton/Wheldon regime since August 2003, for aggressive secondary progressive MS.  Intermittent therapy after one year. 2007 still take this two weeks every three months. Still slowly improving with no exacerbation since starting. EDSS was 7, now 2
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Garcia, I am of the same opinion as Sarah, I recall saying so at the time you joined.   I remember you saying that a small male relative of yours passed it on  to you and others in your family.   This is entirely possible, but the fact is that is is also entirely possible that you caught it a lot earlier but thought it just a nasty cold.

Michele (UK) GFA: Wheldon CAP1st May 2006 . Daily Doxy, Azi MWF, Flagyl at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMS Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

D W

Most people get several infections with this organism over the course of a life-time, usually beginning in early adolescence. The first encounter may pass unnoticed. Reinfections tend to get more and more unpleasant with time; indeed, pneumonic reinfections with C. pneumoniae in the elderly can be life-threatening.

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now; just supplements and IR sauna. Morning BP typically 105/75]

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

I won't go into the details as its quite involved (maybe one for a blog?), but the one thing I'm sure about is when and where it happened (there are lots of independent pieces of corroborating information all pointing to the same thing). 

If people are genuinely interested I could write up my case history at some point. Probably when I have a bit more energy though!

____________________________________________________________

CFS since 2001. Infected CPn Jan 2006. Started CAP March 2007. Currently taking: Azith 500mg MWF, 200mg mino every day. 1 Pulse done.

Hunter: Don't think - experiment

There you go! You'll be feeling up to making a patient story in a while. marie On CAP since Sept '05 for MS, RA, Asthma, sciatica. EDSS at start 5.5. Currently on: Doxy 200, Azith 3x week, Tini cont. since April '07, all supplements. "Color out side the lines!"

On CAP since Sept '05 for MS, RA, Asthma, sciatica. EDSS at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxy 200, Azith 3x week, Tini cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithro

I'm new here so I am not sure what this whole thing is about. I have had MS (relapsing /remitting) for 23 years.They confirmed the diagnosis abot 13 years ago. I am on all kinds of fun stuff along with Avonex shots once a week. I found out about CPN ( I need too learn all the acronym's ) from my the Dr.'s Assit. at the VA. She mentioned it to me and asked me too look into the Website. She is aware of CPN because she is treating several of us that either have MS or Fibromyalgia. She had heard of CPN and thought I wqould be interested.I am always interested in new theories and look for some type of relief. As someone else said the story is too long too tell here.

Hi Tom and welcome to cpnhelp.org.  This site is all about getting rid of what is making you sick, not hopefully delaying MS progression.  You are a vet, so you know about tackling tough stuff and working toward a goal.  That's what we are doing here.  Read, read, and read some more.  Ask questions.  We are glad you are here. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, antivirals, heavy metals chelation, LDN, Metanx, Lunesta, GF/CF diet, Lauricidin, oral IgG/lactoferrin/IGF-1 booster, astaxanthin, gamma oryzanol.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Tom, Go back and kiss that doctor's assistant! What Cypriane says is true. We are killing the CAUSE of the MS, not treating the symptoms. Welcome! abx - antibiotics dx - diagnosis cpn = chlamydia pneumoniae bacteria cap - combined antibiotic protocol Those are the easy ones we use all the time. Many will have a little blue 'i' to the right and you can set your cursor over it and it will show a brief definition. That should get you started. You are about to embark on a reading gorge like you've never experienced before. (Your eyes will cross; trust me.) We'll help you as best we can when you get stuck.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Welcome, Tom!!!

 

How encouraging that you were referred to this site from the VA! Also, keep in mind that the research that you are reading here, of Dr. Charles Stratton is that of a retired Gulf War Colonel.

 

 

--Minai (the resident military wife with MS)

 

 

RRMS, diagnosed 2/04. NAC 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY Restarted CAP with NAC and Doxy 2/07. LDN 4/07. Stopped NAC, started Roxi, again 5/07. Now on full doses of Doxy and Roxi. NAC, again, 7/07. 1st Tinidazole Pulse, 8/11/07. USA

Hi Tom, I've sent you a private message that you will find in your inbox (in the blue edged box on the left that has your name at the top).   It will help a bit with getting around the website.   When I first started it took me a while of reading and re reading before I began to understand.

Cpn is a very common bacteria that causes most people no trouble before the age of 50.  However (I suggest) some people with a genetic predisposition to certain conditions may show symptoms of certain diseases such as MS, CFS, Lupus etc at a much earlier age.  

Some of us here, myself included have a collection of symptoms that we describe as GFA (generally falling apart), which have got worse with age, but which we can trace back to our youth, evidencing a long standing Cpn infection that did not reveal itself in a major condition such as MS.

Because Cpn is a vascular disease, it can result in symptoms that manifest in any part of the body where there are blood vessels.   So in my case, the scalp, the sinuses, the gut, the skin and the blood vessels that serve the nerves in my feet. 

Michele (UK) GFA: Wheldon CAP1st May 2006 . Daily Doxy, Azi MWF, Flagyl at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMS Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Hi Kate,

welcome.

The yeast can be combated with a good doseage daily of Acidophillus & if you can some yogurt.  Stay away from simple carbs as they are yeast producing.  I have read recently that Pau d'arco tea or concentrate in water helps with yeast in the body too.

Best Wishes with the treatment.  Keep us posted

Grace & Peace

Ruth

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 250 mg M/W/Fday, 8-21-07 1st pulse 1 X 250 mg Metro

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Pooch Patrol

Submitted by ruthless1 on Fri, 2007-08-03 14:51

Well, I had to wade in here & show a picture of my baby boy Stanley, aka, Boo, Boodey Boo, Boo Boo, Pooper.  He is camera shy!

I am novic at this attachement process.  I also included a picture of my lillies - Asian

Peace

Ruth

okay, I don't know where the other pictures went?