Submitted by horses12 on Thu, 2008-06-26 09:46

  I hope someone can help me find something to help with my energy level.Lately, it has been getting so bad that getting up out of bed feels lilke a chore. I know with cpn it steals your ATP and I'm taking all the suppliments along with  D ribose, but still feel exhausted. The doxy. causes me to sweat a lot so I have been taking more water to maintain fluid levels. Does the healing process cause thyroid issues? My doctor has given me a script for checking T3 levels although, I've also read that the levels can still come back in the normal range even it they my be off.          Any help could get me moving again.Undecided 

Hi Bonnie, your body will be working very, very hard during the war you have taken on. Over and over I say that these bugs do not go quietly. I could say something like "Get used to it", but I would rather you discover it for yourself. I also say that for me, it has been worth it.

You need to add a signature so that we know what the problems are. It is helpful. And your intake of water is a good thing. The sweating is also a telltale symptom - you are no doubt getting rid of unwanted passengers. Try to rest - the exhaustion is something we all know well. Eventually this gets better.

This will not do paragraphs!

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Bonnie, I know I have commented to you before.  What would be helpful however is if you can go to My Account and write a signature that gives us more information regarding where you are in the progressing on CAP.  I know it is often a challenge to get it sorted out, just spent several rounds trying to get what I want to say included. 

I'll keep my eye open for your signature update and respond later once I can recall more about your treatment plan as it stands now.

Blessing to you, Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Horses, Try the sublingual B12 to get you over the hump. There were times I was going through a dozen tabs a day to counteract fatigue. I still take three first thing in the morning.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

If it's any help, I get the sweats like crazy. Up until yesterday I've been out in the garden digging like mad, shifting sacks, moving heavy pots. Today, day 3 of my first pulse and it's all I can do to walk to the bottom of the garden and back again. Something's happening and I'm hoping that it's a good something even though it feels like a bad something.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.No GP/Neuro support. Self medicating with help from David Wheldon. Started CAP 20th April

Uh no, never even heard of it. I'm just throwing down additional B12 and CQ10 at the moment in the hope I might have enough energy to get out of bed in the morning.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.No GP/Neuro support. Self medicating with help from David Wheldon. Started CAP 20th April

I started doxy,azith, and all supplements last year and started taking Metronidazole at the beginning of this year.

For the last month or so I have very little energy.   In fact my limited energy levels are used up very quickly. which is one of the reasons I havent been using this website.....now I realise how very informative it  can be!                                                                                                                                    I agree, it was reassuring to hear the comments made. This infection is so deep rooted it will take a lot effort to shift it!!!                                                                                                                                   Fatigue and having a brain which retains little, meant that it has taken me a long time to get to grips with using a computer. I'm still far from beingl computer literate...

                              I too, have heard that Thyroid tests aren't always accurate.  I think there is a website called thyroiduk. which may be able to help? 

                                                                                                                                                                                                                                                    

we are familiar with the energy depletion & the brain foggled bucket my eyes & lips are attached to.  Having ME/CFIDS I am only tooo aware of energy limitations.  Now, my brain is getting better little by little & to this point I am now getting restless to get on with it.  But, alas, the body is not ready as a whole yet!

Patience can be a learned trait, lol

 

blessings over you all

r

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Bonnie,

Mum also suffers from energy loss and we also thought about thyroid and although the levels are OK, we tried Iodoral. That did not work for us but I have read that it helped some others.

Bests,

Özlem

Spokesperson for mum, MS since '94, on CAP since 03/07. Roxy&DoxyX2/day, MetroX2/15 days, Supps:NAC600, Acidophilus, Milk Thistle, CoQ10, Calcium, Omega-3, Vitamin A-B-B12-C-D-E, Urso, Questran. EDSS 9, no improvement