David Wheldon - retiring from the NHS

D W
Submitted by D W on Mon, 2008-06-23 15:17

Well, I thought I should tell you that I'm retiring from NHS medical practice at the end of the month. I'm nearly sixty and wish to catch up with my writing. If I can find a consulting room for a few hours a week at not too much expense I'll continue to see and treat people with MS. I'll leave my webpages up, and also my email address.

To be absolutely honest I don't like the way that hospital medicine is going in the UK. Managers are being chosen for their obedience to central dictates, and their ability to enforce them, rather than any brilliance of character. This is saddening. Morale is poor.

I could quote from one of my own short stories. The speaker is Elizabeth Anne Taitt, a formidable physician (and accomplished wrestler):

Dr Taitt suddenly looked angry. 'I don't like the way that medicine is going. When I was an undergraduate the ethos was on the quality of individual reasoning: the time is quickly coming when we will be expected to practise according to rote instruction. It's then I leave. I won't be told what to do by my intellectual inferiors. I just won't. It would not be possible for me to be obedient. I wasn't as a child and I won't be now. I'm not a biddable person.' She certainly did not look very biddable at the present moment.

Apart from that I'm very happy. A few days ago I heard Sarah in her studio, wielding a large rubber mallet to assemble a heavyweight stretcher for a large oil-painting. Then, when she had done that, I heard her stretch the canvas, operating the heavy-duty manual stapler. She completed it perfectly. And five years ago she had been in a semi-delirious half-sleep, hardly able to eat, her right hand paralysed and her legs becoming spastic with clonus. We have much to be grateful for.

Well, David, we too have much to be grateful for, and one of those things is you. You've left a mark in medicine, in the UK and elsewhere, that simply does not confine itself to nor conform with the obediant norms of your profession. I hope some day your profession will recognize you for that, but I know that thousands do from the impact you've had through ThisIsMS, your website, your generous contributions here at Cpnhelp, and your daily correspondance with so many.

I'm very glad you will have the space and time to write as it is not only a passion of yours but also a great talent. I've enjoyed your stories: always thoughtful, about things of importance but nonconformist in attitude, and lovingly detailed. Much like you are in all my contact with you. 

May this breathing space open up limitless possibilities for you.

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Dear David, you do not know me but you have had a large impact on my life and that of my famliy. My husband found your MS pages on the net and I have been on your recommended treatment protocol since April of this year. My own doctor agreed to assist me with this treatment  and this morning at a follow up appointment he seemed quite positive about my condition. He did not make any judgemental statements about my choice of treatments and will continue to write my presciptions for the CAP. My husband and I are encouraged by the improvements that we have already seen in my health.

I was diagnosed with RRMS in 1997 and in 2006 after a major MS episode entered a new phase of steady increasing disablity. I saw a lot of similarities in Sarah's story to my own experience and so went in to this with an open mind with hope renewed. After this past two years of rapid degradation of health I now seem to be responding to the protocol similarily to the way Sarah did. I have felt subtle and more obvious improvement already. (i.e. I did a two KM walk this last week after being able to walk only 30-50 meters in March.) I hope to regain more and more over the months as I continue the treatment protocol.

So I thank you Dr. for your persistance, your courage, your intelligence, your intuition and most importantly, your desire to see people get well. May you and Sarah be blessed in both of your careers, your health and in your relationship.

Lived with MS since 1991. Completed 16 months of full CAP plus supplements. Currently in full remission. Not on any antiobiotics anymore but taking all supplements incl NAC.

David, I wish you and Sarah every happiness.

I am at the beginning of my journey to wellness and am not known to either of you, but the impact you have made in my life, and so the lives of my loved ones, is indelible.  

With very best regards,
Corinna

Corinna | GFA. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Avocation becomes vocation.  You are in a good place.

David,  When I think of you, I think about the refusal to accept that there was nothing meaningful that could be done for those with MS.  I think about the desperation, the relentless search for something meaningful.  I think about the hard-headed commitment and the tough love, the resistance to the temptation to capitulate that accompanies embracing the counter-intuitive.  You are my brother and comrade in the corps of caregivers, and it's a blessing to tread on the path you cleared.  My husband is coming back to himself and to me, because you are the doctor and the man you are.  Thank you, friend.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

David, I'm now feeling like I just sneaked in under the wire. Image removed.

There are many things I could say but it's late and I have an early start so I shall confine myself to a heartfelt THANK YOU!

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

Red

David,

May you enjoy all your future endeavors..  

Please know that you have made a huge difference for so many of us, even many who, like myself, don't  have MS, but have benefited from your research and generosity of spirit nonetheless. 

Thank you so much...

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

We have never met. I have spoken to you and Sarah. That was merely,just when I was trying to locate you. I pray that communication was and is "my miracle".

I continue with your protocol . Started Feb.in earnest.

7th pulse of tinidazole just started.

Thank you for being who you are. Your research and dogma provide science which seems to be so ignored in quite a tragic way. You have given me and so many others HOPE.

Thank you forever,

 

Loulou

Toronto

diagnosed MS Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxy 100 mg. 1BID. roxy.150 mg.? BID,adding rifampin soon, pulsed tini. every 3 weeks, as of oct.17/08, rifampin,naltrexone (LDN),NAC, nystatin, major wheldon supplemrnts daily,

David,

Congratulations on being able to leave your clearly intellectually inferior superiors (ha ha) behind!  We should all be so lucky!

While you may be leaving the NHS, whether you continue to see patients privately or not, you will surely continue to treat and cure so many desperately ill patients who will never have the priviledge of even meeting you. 

That's quiet a legacy you leave behind to medicine !

On a professional note, I admire your courage, persistence and willingness to swim against the tide! 

I can't say thank you enough to both you and Sarah.

Daisy - Husband on CAP 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MS drugs killed him.

Daisy on her own CAP 11/2012. 

Congratulations.

Words fail me.  Thank you for saving my life.  Enjoy your retirement.

 

 

CAP for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazole + INH completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

Now you will have the time to live life to it's fullest with your wonderful wife. Thank you so much for all you have done here David. I continue to refer people to this site on a monthly basis. You wouldn't believe the numbers here in the U.S. Your work and efforts to get the word out to the public have certainly changed my life for the better. Best, Chris
CAP since 11/06 for Cpn, Lyme, Bartonella, Babesia, Myco P, CMV, HHV-6 infections. Rifampin 600mg daily, Zithromax 500mg daily. NAC 2250mg daily. All other supplements. Now Bicillin LA 2.4 mil injection weekly.

 

He's not retiring, you know, just leaving the tin pot generals of the modern NHS which works well for many, not at all for others.  Apart from the writing there is still so much to do getting CPn recognized as the serious cause MS. He'll always have more important things to do than making bluetit nest boxes in the garden shed, besides which, his younger wife won't let him and she's got a big rubber mallet............Sarah

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah, (< I had no idea David had an additional wife that's even younger than you. >)

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

David, I'd keep an eye on that rubber mallet.

Kim and I are eternally grateful to have found your work on CPn.  I don't need to reiterate the impact the path you have blazed has had on Kim and so many others here, it's nothing short of miraculous.

I completely understand being "done" with the job.  Kenny Moore says there are 4 levels of energy and jobs generally focus on the physical energy; failing to tap into mental, emotional and spiritual energy.  If being done means you can now create with all your energy with which you have had to hold back; if being done means you are unrestrained by red tape, if being done means you don't have to make choices that make you angry; then I am excited for you and held in anticipatory wonderment over what you might do next.

Thank you David for what you have brought to all of us, but moreso, thank you for what you have yet to bring to those who want to walk.  Ken

 

In pursuit of ABX

Don't Allow What You Know To Get In The Way Of What Might Be

David, congratulations!

Most of the doctors that I know who are striving for excellence end up 'retiring' from The System and pursuing excellence on their own terms. I am very glad that you can be among them.

It is sad that it's necessary, but I'm not sure that System and excellence can coexist for any length of time. The 'good enough' is the enemy of excellence. System's presenting rationale is usually the prevention of abuse by the poorest practitioners, but its growth is 'fertilized' by factors that have nothing whatever to do with quality of result.

So, my very best wishes on this new stage of your life. May it be even more productive and rewarding than its prelude.

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

Dear David,
I well understand your relief in leaving the constraints of the organisation and it's apparatchiks; the NHS is not the only public service to have changed for the worse.In my own sphere of public libraries the needs of the book reader seem to have dropped down the list of priorities, but there are plenty of managers who can produce a pretty spreadsheet but know nothing of literature or readers.

I know that when I left that life it was the the relief that I wouldn't have to suffer the halfwits with grace any longer!

Unlike many here I have had the pleasure of meeting you and it was a pleasure indeed. You are the most human of any consultant that I have ever met and I can see why a discerning woman like Sarah picked you. Being selfish I hope that you can fit in some consulting work in the future and that you continue to drop in here and elsewhere on the internet.

I also hope that the your work will be recognised by the likes of "Fat Face" in the not too distant future so that other MS people can be given a chance to regain their lives... Carol.



speedbird

If I ever get better,  I will absolutly dedicate much of my life to very agressivly raising full undeniable awareness to cpn and this type of treatment for ms etc. You have many soldiers here, that if eventually win this war.. the mainstream medicine better watch out. Your work is never unfinished, it continues in all of us

 

 

 

 

 

&nbs

Dear David and Sarah, I don't think you have yet realised the Tidal Wave that is beginning, and as the water begins to rush out a huge wave of grateful individuals is, and will continue to grow through your fantastic determination for the truth. My wife and I will forever be in your debt for the gift of Chance again. What is to come, will be most just.

Eriks and Julie

Sarcoidosis 10yrs. before dx.SPMS-2003 that's it. Research - Don't Believe Them.

CAP 16/04/2008-05/10/09 -  Now Daily: 10kIU D3, Vit.C 1g, Calcium, Ginkgo Biloba, Pro-biotic yog, L-Arginine 1gx6, Magnesium Glycinate 220mgx6.

 

Eriks, I was also diagnosed with SPMS in 2003 and told there was nothing could be done.  I started abx a couple of weeks later and I am still improving as well.............Sarah

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Dear People, this is my own personal opinion, so please take it as such, but I believe (And I think also others) that a new dimension in medicine, generally accepted and taught is emerging which will alter the course and understanding of illness and disease with I hope a new vision. Many of the afflictions thought not to have a known cause will soon become more clearly understood in the light of David's work and Acceptance of the obvious, rather than BLIND OBSERVATION? of the not so obvious? Some people have the courage and determination to make a difference, despite 'the rule?' or 'text book?'. THEY ARE THE SKILLED. As Dr.Mathews said 'I probably have MS'. So, and then what?

Sarcoidosis 10yrs. before dx.SPMS-2003 that's it. Research - Don't Believe Them.

CAP 16/04/2008-05/10/09 -  Now Daily: 10kIU D3, Vit.C 1g, Calcium, Ginkgo Biloba, Pro-biotic yog, L-Arginine 1gx6, Magnesium Glycinate 220mgx6.

Hi David - I just wanted to wish you well in this new stage of your career and family life. I can fully understand your comments as I was a nurse until the ME took hold of my life, but I would have left sooner or later for similar reasons to you. 

I have also come across several Doctors in my real life and internet travels  who are, like you, sticking their heads out for various things and speaking up for people like us - trying to break the mould, make change happen and trying to get people to see things in a fresh perspective. Sadly, there aren't very many as yet but change has to start somewhere.

 This has applied to thyroid disease, heavy metal illness, and so many other things and so many of us are so grateful to Doctors like you who also make theImage removed. information readily available for those of us who have to self treat.

Best wishes

Kittykins

Switzerland/Belgium   ME/CFS/FM since 1995   Hypothyroid   Addisons   

Mercury poisoning -(Andy Cutler Protocol)

Hi David, Wow following your own conviction has benefitted us all. I marvel every day at your audacity to not only do it but to also make known the path you had taken, though that path was not "in fashion" nor politic. I heartily wish your personal freedom of time results in a rush of creativity that makes your soul sing. Congratulations on being free! marie

On CAP since Sept '05 for MS, RA, Asthma, sciatica. EDSS at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxy 200, Azith 3x week, Tini cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithro

David- clearly one of the "unintended consequences" of your efforts on behalf of your wife was that restoring her hand-arm mobility has restored the potency of her threats! As Sarah noted, your ever-engaged mind will be operating at full capacity on projects unconstrained by the requirements of honest work!Image removed. And about time too.

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

David and Sarah, Do you have a interest in travel along with your time for creative expression? I could see the possibility of speaking engagements on the horizon. Thank you both for synergistically coming together with those involved in getting this information out to our world. In just one years time my life has turned around and I am beginning to rebuild my life that was becoming smaller and smaller. Congradulations and Best Wishes for future endevors! Louise
  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
D W

Thanks: you are very kind friends.

All credit should go to Charles Stratton and his colleagues, and to those who confirmed their work. I have been something of a publicist on the Internet, and then only because Sarah, my wife, was cured of an incurable illness. To have aggressive MS - you could see progressive deterioration on a week by week basis - and then to recover and to lose almost all evidence of the disease over five years is unparalleled. Yet her neurologist refused to look at the improving MRI scans and carried on a rather ill-tempered email correspondence with me over our publication the journal Infection. He made insinuations about my practice, sending copies of his emails to colleagues and managers.

I wrote to Professor Compston, who is widely regarded as the best MS expert in the UK. He is the editor of McAlpine's Multiple sclerosis [link to publisher]. If you look at the table of contents you will find not a single reference to infection, even though the epidemiology overtly suggests the possibility of infection. Demyelination is given as the cause of the disease, even though it cannot account for the strange toxic frontal-lobe syndrome, with vastly prolonged reaction times, which so many MS people develop. Well, I received a letter back from the good professor which was charmingly written in the fine, scrupulous english which is his hallmark: and which was devoid of content. I wrote to another expert (and I know he received my letter because his secretary sent an email of acknowledgement). I had no reply from him. Sarah tried the same thing. Her radiologist took her sequential scans to Cambridge where they were examined by a number of neuroradiologists. They said they had never seen such recovery. Then there was silence. I suppose this negativity is because the whole outfit is apparently underwritten by the makers of the monoclonal antibody (alemtuzumab) they use to batter T lymphocytes. Actually, the result of trials also points to the possibility of an infection: damaging T lymphocytes in the face of an infection is like gagging the dog while the burglars quietly make off with the silver. And so alemtuzumab is apparently helpful in cutting down the number of relapses in early MS while hastening the deterioration in progressive disease.

So. Thanks again. I think after this we need some humour.

Sarah and I met in Blackpool. Sarah Longlands MA (London), fine artist, stood behind the counter of the Violin Shop in Talbot Square. At the sound of the door-bell she had silently glided into the shop. I had brought in my violin for repairs. The shop being unusually quiet that afternoon, Sarah and I had a pleasant conversation about why German violin manufacturers in the late nineteenth century should choose to put fake Stradivari labels in their spirit-varnished instruments, as had been done with mine. Sarah reminded me very much of a grown up version of Tenniel's Alice, as in Alice in Wonderland. I noticed her long fair hair and her headband. I found she had the same quirky humour as Alice apparently had. (It is recoded that Lewis Carroll, telling a story to the three girls, stopped and said, "more next time." Alice immediately replied: "But it is the next time.")

I found this unusual painting on the internet [link]. It is by Julie Inman. Alice is clearly in a somewhat bad mood. Her stance, her expression, her general feistiness are exactly that of a young Sarah Longlands. I never knew that Sarah packed a pistol, so I'd better take care. As for the figure lying supine on the ground, the young huntress's foot on its body - I suppose it must be the white rabbit, but there are resemblances to the neurologist she saw. He passed off someone else's MRI scan as her own (it was all scratched and had no name on it: it was obviously carried about like a theatrical property.) Having done this he told her to clear off and die. After this we went to Bedford Rowing Club and had about the worst chicken sandwich I have ever tasted.

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

David, I understood your dissatisfaction with the NHS from comments made by Sarah and I congratulate you for having had the courage to snap closed that little black doctor's bag that held you chained to your post. I thank you for all you have done and wish you the best with your writing et al. Nevertheless, yours is still an important voice in medicine and I hope that future grants and guest research positions (in the U.S.? -- I'm down the road from NIH!) will tempt you to scratch your seemingly insatiable itch to understand that which we experience but cannot see. Sarah could not have shot that lousy stinking untrustworthy egotitstical ADHD rabbit without your ammunition. You make a good team! --Nancy

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Well, I am arriving a little late here. What docs like Stratton, yourself & hopefully many others to come don't do, is accept the status quo. I appreciate out of the box thinkers & the relentless determination this type of spirit brings. Without it, where would we be. Blessings for your semi retirement. We have a house near a nice lake in AZ, USA that is at your disposal anytime you wish to make the trip. Feel free to PM me anytime & I will provide exact location (a big clue would be London Bridge), my email to you for future reference as well. I am looking forward to getting my life back, but apparently, that is going to be on God's time, not mine. I continue to treat as my creative spirit has surfaced & retreated this past few months. Thank you

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Thank-you for everything David, I am so happy you can retire at 60 as many people can't afford to or do not have other interests. You will enjoy having time to spend writing and with Sarah as we all know, life is too short.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

David- Yes, some meals definitely leave a bad taste in one's mouth. The Alice picture is hilarious and I can see the resemblence if you substitute a mallet for the pistol. Mind you, while the Rabbit has a certain resemblence to a certain neuro, the expression on her face is all about, "So, you want a piece of this too?" So when Sarah says that you shant be frittering your time away with birdhouses when she has more important things in mind for you to be doing, I'd be mindful of that steely and challenging glint!
Seriously, though, I see this as a time of unburdening that history and facing a marvelous freedom that your spirit will find quite interesting. After all, what does lie down that next rabbit hole?

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Hi Dr. Wheldon, I would like to take this opportunity to thank you for your professional courage, bucking the conventional spproaches to treating MS and believing in yourself. I have been on the protocol since 1/1/08. I have SPMS (mild form). I was diagnosed in 1970 (before MRI). I have great hope of arresting the progression of this disease even if I don't regain all physical capabilities. Tina

 Tina-MS 37 years;EDSS 4.5   1/1/08 Wheldon CAP; Azith 250mg 3 x a week; Doxy 200mg daily, NAC 2000 mg daily, started Flagyl pulse 4/14/08.

 

Well David, it is good to give credit to our hero Dr. Stratton, but if I had not stumbled upon your website I would not have found out about his work. And it was you who referred me to my wonderful doctor Mike Powell. I hope your future days are filled with the things you love. You have given hope and a chance for healing to so many of us. I know I will always be grateful to you and Sarah for the guidance and encouragement you give to all of us. With my fondest regards, Raven CAP since 8-05 for Cpn and Mycoplasma P.for MS and/or CFS Also EBV and HHV6

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath

Much as though I would like to see 'Fat Face' and his ilk pistol whipped at dawn, I would rather see them eat their words. Of course Dr Stratton and his team deserve their credit - but they are not here with us and you are. As Raven says, it was your website that led us here, where we all battle together to get well again. Of course by then we will be told that we didn't have MS at all.

speedbird

David I have followed this thread and am at a loss at how to appropriately and sufficiently profess my gratitude for the presence you have made of yourself in my life, and the research that you gathered for Sarah--it brought me previously undreamt of hope. Know that you have made a difference in our lives, that being forthright with the information has been a dream come true. Thank you and may the road you're about to follow lead you on to even greater things!

best, John

RRMS/EDSS was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
nac 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazole 3x400mg/day then 3x500mg/day

David,

Last summer I was in free fall and my life seemed to be slipping away fast. Today my sense of future and my normally irrepressible optimism are back and I am steeped in plans and projects. I would never have found this treatment if you had not cured Sarah and the two of you had not been so determined to communicate your message.

So thank you both, from me and my wife and children!

Best wishes

Malcolm

Malcolm

Wheldon Protocol since July 07. Doxy 200mg July 07, Nac 1200mg July 07, Azi 250mg 3xweek Aug 07, Flagyl pulses Oct 07, diagnosed MS Aug 06. Intermittent Aug 08.

Dear David.

I know you have a few years left before you reach the age of 60, so even more respect for taking the decision to leave the 'comfort' zone of employment before you have to.   I did the same in my profession and don't regret having taken that step.   I have tailored my life to my means and now feel more calm and my time is filled with things I want to do.  

I have to join in with the others to say thanks for the information you put out there which saved me and Ella from going round the bend.   We have had the added benefit of meeting up with you in person and getting your support for her starting the protocol.

It has not been an easy ride, the beginning was frightful, but then she was very, very ill at the time, establishing the full protocol took a long time and even now her progress is frought with difficult times, both emotional and physical, but what we have now that we did not have before is hope that things will improve permanently.   The signs are there... we just have to be patient.

I hope that both you and Sarah continue to fill your days with creative enterprise and have every success with it.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Dear David and Sarah, Thank you for giving my life back to me. Yes, I know this has been a "team effort", and the incredible researchers at Vanderbilt will be rewarded soon, I hope. But, like many others on THIS team (site), my gratitude is endless. Every day I am in speechless response (that makes no sense, but it is true) to being a member of this unique bunch.

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Congrats upon your completion of your final day of being at the mercy of the NHS's bidding!!! A new beginning for both you and for Sarah...am so glad that you are happy about it.

And many, MANY thanks for all that you have done, and will continue to do, for those of us who have/have had MS!!!

 

--Minai

 

RRMS, diagnosed 2/04. NAC 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. GAD-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY. LDN 4/07. 1st Tinidazole Pulse, 8/11/07. Keflex 2/08. IV Rocephin 3/08. IV Clindamycin 5/08. USA

David, How wonderful to be free of the bureaucracy!  It's their loss.  Have a wonderful 'after'-life!!!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Dr. David,

I did not have the chance to meet you and Sarah but we are so lucky that we met your website. We were in a desperate mood and I just want to thank you for lighting the candle of hope.

I just want to mention that you and Sarah also have a home to stay in Turkey, just as nearly all over the world.

Bests,

Özlem 

 

Spokesperson for mum, MS since '94, on CAP since 03/07. Roxy&DoxyX2/day, MetroX2/15 days, Supps:NAC600, Acidophilus, Milk Thistle, CoQ10, Calcium, Omega-3, Vitamin A-B-B12-C-D-E, Urso, Questran. EDSS 9, no improvement

Dr. David,

I did not have the chance to meet you and Sarah but we are so lucky that we met your website. We were in a desperate mood and I just want to thank you for lighting the candle of hope.

I just want to mention that you and Sarah also have a home to stay in Turkey, just as nearly all over the world.

Bests,

Özlem 

 

Spokesperson for mum, MS since '94, on CAP since 03/07. Roxy&DoxyX2/day, MetroX2/15 days, Supps:NAC600, Acidophilus, Milk Thistle, CoQ10, Calcium, Omega-3, Vitamin A-B-B12-C-D-E, Urso, Questran. EDSS 9, no improvement

 

Mac, it is "their" loss as they are about to find out!............Sarah (agent of DW)

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

thanks for everything David. Wish there where more doctors like. I enjoyed reading the quote.

Fibro, CFS,  Myco, CPN, Stratton protocol, Zithro 500mg M/W/F/S, Doxy 100mg 2x day, NAC 1200mg 2x day, Flagyl and INH 2 week pulses 400 mg 3x day, Rifampin, 300mg 2x day,  Still cant shake it but improving.

Dear Dr. Wheldon.

I am fairly new to this website but I wanted to add my gratitude for you to this thread. When I read your story it was much like my own in that "myalgia" & hypertension are among my dominate symptoms. Many of your initial disease process experiences I could relate to as well. This gave me pause and helped stir me to seriously pursue reading at this website where I am in the process of learning how to combat my illness effectively. I appreciate your strength of character, generosity, candor, humor along with your willingness to think outside of the box. Thank you for your part in giving me and others to come the hope of getting well. I am both happy & thankful to tell you that after only a couple of months on the NAC & beginning supplements I have had much relief. Blessing upon you ... I pray you and your winsome wife will have an amazing rest of your life. 

With gratitude ... MM & her dear hubby (he is very relieved seeing my improvement)

2002:CFS. (2008-09:CPN - CAP/5 pulses)  3/2010: Restart CAP: 200Doxy/250Zith-MWF/Tini pulses. 6/2010: HighBP/Benicar, 7/2010: EBV, HHV6. 2012: 6,000 IU daily vit. D., Citioline CDP choline = sleep improvement dramatic.