Yes, it has been seven months since I began taking Rifampin although it seems more like eight. It's entirely possible my count is off, it's not terribly important that it would be off by one. In any case, I'm now on the most intensive CAP I've ever been on. I'm now taking Doxy, Azi, INH, Flagyl, and Rifampin, along with NAC all at the same time this week. I started my 23rd pulse on Sunday night, a day and a half later then I generally try to schedule the start day/time (Saturday mornings).
I can without a doubt say this has been the hardest pulse I've ever had. My walking is definitely affected and I can't long walk without the contact of a tree, wall, or car nearby to steady my gate and to grip onto when I can't easily keep going. I've luckily not fallen recently, knock on wood, which is rather surpising given how poorly I feel and walk at the moment. It could likely be because I just am not taking the chance to walk without something nearby to steady myself. I only find myself walking unaided for relatively short distances...maybe 50 - 100 feet.
I have been concerned lately about health benefits that I get through my job. I'm in the process of finding a new job and the benefits will lapse between employers. I think I can keep it going, I forget what it's called, but I know it's not cheap to do that. I've been giving thought to just buying the medications online and stockpiling them so that I have them to fall back on until new health insurance kicks in. I think I may be too late to do that as it will take some time for anything I now order to get here, probably months, and there is no gaurantee that it will ever arrive. So, what to do? Maybe my doc will give me a longer prescription and I can stock up on my current insurance before I change jobs and then I'll be okay until the new insurance kicks in. I'll have to ask.
So, I should mention if I haven't before that I have been taking Calcium Pyruvate, generally only 3 grams, 1 time per day; however, I have taken 3 grams twice per day on a couple of occasions. I take it just before my first dose of Rifampin in the morning and then again in the afternoon before those medications (if I take it a second time). I don't notice the dramatic reaction I was noticing when I first started doing that but I still do it. Hopefully, it's had some positive effect.
I've lapsed on Annatto Tocotrienols, I just ran out a few days ago. I haven't yet reordered. I'm still trying to decide whether I want to or to put all my efforts into something else like Lauricidin. My understanding is that the latter covers a much broader spectrum of pathogens to include Cpn, so maybe that's the way to go. I have been taking Grapefruit extract, Olive Leaf extract, and Caprylic acid. I think those mainly cover fungal pathogens though, not viral.
I've been giving thought to starting back at the gym. I stopped back in November when I strained the super spynatis (sp?) in my right shoulder and possibly tore the rotator cuff. I did that when I grabbed a wall while slipping and refusing to let it go. Lesson learned. Eight weeks of physical therapy has me considerably better although I do sometimes feel an ache in my shoulder so I'm not at all thinking it's what it once was.
I've realized that I feel more inflammation in general then I once did. I've been meaning to post to the forums to ask what I might be able to take without a prescription that would reduce it without affecting anything else I take? Or am I better off getting a prescription of something?
I've just reordered (last night) my supplements. Man they are expensive, I just placed an almost $300 order. I guess if I bought them separately over time, I would probably pay more since I wouldn't be buying them online. Ugg, I need to win the lottery!
So...I keep going. Motivation is hard to maintain, as my friend Marie knows. It's damn hard to keep going. But what choice do we have? We know that the conventional medications for MS will not help us for very long should we rely on them. Disease progresses, maybe not for everyone but for many. So, keep on going, that's all I can do, and hope that it's not for naught. Someone mentioned here at some point that Stratton says treatment for MS takes 3 - 5 years. I'm only into it 2, so I've got a ways to go. So do you Marie, keep on keeping on. I'll keep on with you.
all my best
RRMS/EDSS was 4.5, was 4.???, now 5 on Wheldon Protocol (nac, doxycycline, azithromycin, metronidazole) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INH 300mg/daily on 03/17/2008.