Chronicles of a Rifampinaut: The Sixth Sense
I'm into my fourth day of a 5 day pulse. I forget what count this is, maybe the 22nd or 23rd? I know that April signified my official 2 year anniversary since starting the CAPi with NACi and Doxyi, way back when. And here I still am, no better then when I began and sometimes worse.
Now, that being said, I haven't given up on anything. I think that maybe I'm just starting to really figure things out about the CAP and how it can work for me. What I mean by that is this...
Up until recently, I've been going through the motions, being very diligent to take NAC and abxi on a set schedule. I still am; however, now I think I've found something in myself that I wasn't aware of before, a reaction I wasn't noticing.
Recently, a discussion on the forum covered the topic of Pyruvate. I began taking Pyruvate in the last month, along with INHi. I wasn't noticing any sort of reaction from it except I would get more energy out of it. That was until I changed how I took the abxi.
I also found out that Rifampin may be causing me to metabolize abx, removing them from my system more quickly. I say may be because there was also discussion of how none of the abx I take are affected by the P450 enzyme.
In any case, out of fear, I changed how I take abx. Instead of taking everything together, I now space them apart thusly: I take Rifampin alone, apart from the others. I still take Doxy, Azi, INH together. Sometimes I may also take Flagyl, as I am right now. But otherwise, Rifampin is spaced apart by hours, as much as possible.
I have noticed a reaction to Rifampin, much more acute then I was getting before. Much more. I sometimes am almost to the point where I can't walk when I take it. Walking definitely becomes much more difficult, as does balance. I can do it mind you, but any sort of prolonged walking comes at great risk. The longer, the greater the changes I'll take a plunge and end on my hands and knees.
Anyway, just thought I would put down some things. I may add to this later.
all my best
RRMSi/EDSSi was 4.5, was 4.???, now 5 on Wheldon Protocol (nac, doxycycline, azithromycin, metronidazole) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INH 300mg/daily on 03/17/2008.