22 Nov 2020
Author
sara_in_sydney
Title

How many people have eradicated their CPN via the CAP protocol and how long did it take?

Body

Hi,

Coming up to 2 years now on the CAP.  I was a bit premature in thinking it might have gone a year ago.  Progress is so slow, it is hard to measure, but I think I am able to do more than a year ago (when not affected by a virus, which is a frequent occurrence).

How many people have had success getting rid of CPN using the CAP?  And how long did it take you?

Comments

My Dr (who is a specialist in CFS) is of the opinion that if the antibiotics were going to work, they should have worked by now, although so far he is supporting me as I want to continue with them.  I fear if I stop now, I may get worse again and undo the hard work of the last 2 years.  On the other hand, I don't plan to be on antibiotics forever.  My liver AST and ALT appear continuously elevated, but not by too much.  My understanding is that this is common on the protocol.  

Any more thoughts on this?  Thanks for taking the time to read.

Sara

Not cured, but 2 years in with continuous improvement - so your doctor would be incorrect if he was my doctor... 

Mild, asymptomatic liver ezyme elevations are defined as less than five times the upper limit of normal - for perspective.

TomF - 50 yrs old, diagnosed CFS Jan.2000, CPN IGA 1:32 IGG 1:128 feb 2017

Cap since Dec 2018

TomF, I think that there are lots of people on this site who would agree with you and would feel very miffed if they were told that two years was enough to get better. I wouldn't have wanted to carry on with abx forever but after three and a half to four years I was confident enough to finish. And guess what? I could once more work as a fine-artist producing maybe better paintings than before.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Everyone's situation differs, I have CFS. Every Metronidazole pulse make my tissues burn and causes what I would describe as an injury. 

 

TomF - 50 yrs old, diagnosed CFS Jan.2000, CPN IGA 1:32 IGG 1:128 feb 2017

Cap since Dec 2018

Dear Sarah

How have you been? Any news on whether David's death could be caused by a post Covid medical situation? The news of his passing is so difficult to digest. From your posts both of you were doing fine post Covid and there was nothing you wrote that suggested David could fall ill so seriously.

How have you been coping? It must be so very hard I cannot even begin to imagine.

My thoughts with you. Take care. Hope your walking has come back to what it was before your loss.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Dear Neena, I'm sorry, but I have only just noticed this. No, David's death was nothing to do with covid but was a second subdural haemorrhage. He had a previous one about eighteen months previously but he seemed to have completely recovered and very quickly. The bleed this time though, killed him outright.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sara.

I am 44 years of age. I started being sick at the age of 27 and found a doctor nearly 5 years later, facing a serious health decline meanwhile. I have been on CAP since late 2008. It's already over 12 years and I am still not cured. I am much better but it cannot be undermined that chlamydia pneumoniae pathogen devastated my entire life. After 12 years I am confident to say that eradicating fully systemic loads of this pathogen is virtually impossible. You get better, but you get only certain amount better, and even reaching this certain amount of improvement requires a subliminal degree of dedication. Maybe it is possible to eradicate this invader over period of 30 years, but I will be in my mid 60's so from this very perspective sounds pointless and delusional. Sorry for this rather pessimistic voice over this subject, but this is just the way it is.Hope your path will prove otherwise. BTW. This treatment addresses right cause and it helps. Sadly not enough. The flip side of the coin is the fact I was severely sick. I would be dead by now without CAP. But the better you get the more you expect.

 

 

CFS, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months

Hello Michael,

I am sorry that you don't feel better after all this time but maybe the root cause of your chronic fatigue is something other than Cpn.  When were you last tested?  having had my last mri not much more than a year ago I know for certain that I have gone for eighteen years with my MS not getting any worse.  I still can't run, but I can climb stepladders to replace lightbulbs in my high ceilinged house.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I've been tested for Cpn after the disease took control over my body and created this vicious CFS cycle. Something like 5 years from it's systemic inception. The doctor addressed most issues, therefore I was tested for most pathogens, moreover later practical experience with CAP and excessive die-off's just proved we hadn't left no stones unturned.

The CAP worked and still works, yet the level of devastation Cpn has left me with after only 5 years of systemic inflammation from a vantage point of a guy who still considered himself as a healthy stamina equipped person, seems unprecedented.

The flip side of the coin is the fact I started getting paralyzes just before I met the exceptional Doctor in my region. I wasn't far away from a next health decline. This disease seems to behold an infinite intracellular potential in devastation. Not only the cell communication department is compromised but the ATP potential seems to be simultaneously hit hard.  After 12 years of protocols I control the disease, reduce inflammation potential year by year, yet I only rebounded neurologically like 40%. Therefore not being terminally ill does not justify full recovery prognosis. I wish it was different but this pathogen is still beyond my imagination, it even exists. After all those years I haven't gotten used to the fact something like that even exists. I' m equally shocked neither the main stream docs nor quacks recognize it, this is outrageous.

CFS, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months

Michael, out of interest, are you taking azihromycin, clarithromycin or roxithromycin together with doxycycline, because your signature implies that you are taking all three!

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.