7 Feb 2020
Author
MacKintosh
Title

Could you spare a moment, everyone?

Body

I directed someone to our site and commented on the Physicians Page. He told me he cannot see it and when he typed in the web address (which I read to him), he got a message saying he's not authorized to view that page.

As an admin, I see nearly everything, so I'm of no use in diagnosing the problem.

Could each of you just chime in here, as to whether you can see Physicians Pages as an option, along the top banner? Thanks so much!
p.s - - Here's the web address, if you'd like to try that, too. http://cpnhelp.org/physicians_page

Comments

Jan Figtree2019

7 Feb 2020 01:32 pm

I cut and pasted the link you provided, but no go---It says "Access denied"

 

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

Coufal

6 Feb 2020 09:14 pm

I don't see it on the top banner.

On CAPs:12/01/2005 till March 2013; 20 years CFS,IBS, fibromyalgia; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness; from 2003 - v.s. lumbosacral meningoradiculitis, hypertension... 

boadicea

7 Feb 2020 03:02 am

Same as others - it’s not showing in the banner - and the link leads to “You are not authorized to access this page.”

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)

Sarah

7 Feb 2020 03:30 am

Shall I ask Pinky to make it visible? There are some new things to put there but I can't do it at the moment. 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

MacKintosh

7 Feb 2020 01:27 pm

Sarah, yes. The Physician Page is kind of our gold standard of the site, proving we're not crackpots, chasing some pipe dream. Having those studies and papers readily available to help convince doctors to track us and treat us is quite valuable.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

neenavyas

8 Feb 2020 12:43 am

Dear Sarah and all,

Sonal will be completing her ninth pulse today, the fifth day of the pulse. She told me this time sh e felt extremely fatigued plus a metallic taste in her mouth. So she is looking forward to the last dose this evening of this ninth pulse. You may recall she had some strange sensations in her right leg -- the worst affected -- during the eighth pulse, but this time no.

For a few days after the 8th pulse she felt generally good -- although no better at walking or standing even. let us see this time. I am hoping by the time she completes a year in another two months there will be some positive developments for her. One big thing, she definitely has more energy most of the time, except during the pulse and a day afterwards.

How is everyone? you kiki? Lizzie? Jan? Christopher? Boadicea?

Take care

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Kiki

8 Feb 2020 11:32 am

Hi Neena

Well done Sonal!

Im about to go for pulse 11 next week. Been 1 month plus since end of last reststarted pulse schedule. Ive increased and added more of supplements as I realised I hadn't been taking high enough doses and skipped a few recommended ones. I also swapped moppers from activated charcoal to yeayama chlorella to see if that changed things to better too.I now also daily fit in mini self and physio adviced programs. My repetitions are few and somtimes I do better than other times. Im nowhere near looking improved but I plod on with hope and try my best. Had results back from a year+ between full spine and head MMR scan. Tho Im far worse physically now and neuro was thinking to give me stronger MS meds than currently provided ( I just take receipt of these to keep in good books with him for future scans to be fair- he doesnt know of this protocol Im doing) as I was saying Id gotten worse- he was calmed by my result that showed NO active lesions, NO new lesions so status quo after 1 year and so therefor didnt change the meds. Ive yet to see and compare the plates myself as I havent gotten the latest one. No talk of shrunk or vanished lesions though .

I really think Im needing to actively daily do more physio rehab tho however small movements as I have indeed switched off and let things go too.

Kiki

 

Jan Figtree2019

8 Feb 2020 04:24 pm

Wishing you well on this pulse---you've worked so hard to re-vamp your protocol vitamins + supps.  

I am interested if the Chlorella helps you more than the Activated Charcoal---let me know. 

I am totally chuffed for you that you had NO ACTIVE LESIONS and NO NEW LESIONS!!---from what I read about MS, that is great news!  (We have a family friend with MS, but not on the CAP unfortunately.)

Your comments about your lesions makes me think the CAP is working for you.... It's like you are Wonder Woman slowing down a speeding (out-of-control) train (your body with MS), and when you first start slowing the train down, you (Wonder Woman) are still skidding backwards on the track ('cause the train has built up speed/momentum for years).... but the CAP is giving you, Wonder Woman, even greater super-powers!  You have slowed the train, and pretty soon you will be pushing the train back to safer tracks!

You go, girl!

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

neenavyas

17 Feb 2020 02:25 am

Hi Kiki

your MRI seems like great news as no active lesions, no new lesions. It seems that Sonal may be similarly placed although havent gone in for MRi as she seems to be much the same where she was 10 months ago when protocol started, but certainly not worse. Emotionally better and has more energy.

The good news on Sonal is that the previous 10 months she had deteriorated rapidly. So the first step of halting progression of Ms seems to have been halted. Now hoping gfor the next tiny step towards recovery.

 

Kiki maybe some take longer to heal so keep it up. Hopefully 2020 will bring you cheer as well as to Sonal Chris and so many others still struggling.

I should also mention Sonal has halved the dose of anti depressants she was taking and quarter of the dose of baclofen for spasticity, which was often very bad in her case. Take care

Neena

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

ChristopherJ

8 Feb 2020 11:33 am

I just wanted to confirm that the 'Physician Page' link is now showing up on my Homepage. Having just finished my 5th pulse yesterday with three days of 'back-to-bed' fatigue, I'm just now catching up on reading everybody's posts.

Neena, tell Sonal that I continue to root for her, knowing that she and I are in similar physical conditions! I also hope that Lizzie finished her latest pulse without too much trouble. Thank you Sarah, Mac, Jan, Boadicea and of course David, for all of the information and leadership that you all provide!

Be well.

Christopher

I am a retired guitar repair/restorer after 35 years. I live in Colorado and am wanting to now restore my health!

Jan Figtree2019

8 Feb 2020 04:42 pm

Hi Christopher!

You've made it through your 5th Pulse---and had the hard-fatigue.  I hope you have the rebound energy!

Cheers,

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

neenavyas

21 Feb 2020 02:39 am

Good to hear you completed fifth pulse. Time flies, although slowly! Sonal seems to have stabilised, in the sense, no real downward spiral as earlier, but not much improvement mobility wise. She has completed ninth pulse. Since yesterday she has developed shingles on top of everything else and has now had to add those meds to her protocol meds and supplements. Normally shingles takes two to three weeks to resolve and I am hoping she does not suffer too much pain. That is life

Take care. I am following your posts regularly and look forward to even slight improvements for you and Sonal. Keep your chin up.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Jan Figtree2019

8 Feb 2020 04:28 pm

It sounds like Sonal is progressing --I have had that fatigue Sonal has during my Pulses.  The fatigue has lessened, but not gone away totally.  Tell Sonal to keep heart.  I am following her progress---and looking forwards to hearing of greater improvements.

Cheers,

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

neenavyas

17 Feb 2020 02:30 am

Dear Jan

Yes this ninth pulse Sonal was terribly fatigued and was happy when the last dose of the fifth day was done. But two days after the pulse she is feeling good. And was able to clip her hair again with her right hand which she wasnt able to do most of the time, except once earlier.

Her walking remains very poor -- not at all without help or support. But fatigue wise she has more energy and remains very positive. Hope now this year she will see some definite improvements in mobility. But certainly no deterioration these last ten months, which itself a big relief!

And how are you faring? Is it over the hill for you? Do post. Take care

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

ElizabethAnne

17 Feb 2020 05:23 am

Hi Neena, Jan, Kiki, Sarah and everyone,

I'm improving! My walking is better, but I still need more time. I don't know if it's the addition of Amino Acids or not but the rate of improvement seems to have stepped up. We shall see.
Our bodies need to heal after the damage that CPn has been doing for all these years, the evil little beast!

A funny thing happened to me in the weekend. I was chatting to a nurse I met, and we got on to CPnHelp (as you do). I talked about 'Sarah Longlands, the artist', and she stopped me to ask if Sarah was married to the "very handsome, tall" David Wheldon? "He used to work here in Northampton Hospital". Fab!

Small world just got smaller. It turns out a good friend of the nurse has MS, just lost her job, because she couldn't cope, and now has been directed here!

Bye for now,
Lizzie xx
 

Elizabeth Anne

Sarah

18 Feb 2020 01:14 pm

Gosh, small world! True though!!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

neenavyas

8 Feb 2020 12:50 am

Dear MacKintosh,

This very minute I tried a search on the main site for physicians page, it didnt come up. and when i cut and pasated the link, it said access denied.

I am not sure but remember vaguely being able to see the physicians page last year when we first accessed this site and Sonal started on the protocol.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

MacKintosh

8 Feb 2020 03:58 pm

Would everyone go back and check now? I think the Physician Page is now showing properly and everyone is able to access it???

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Jan Figtree2019

8 Feb 2020 04:39 pm

is working as far as I can tell.

 

A quick question: 

Under the heading "Lifecycle of Cpn" is a link to this article: CHLAMYDIA PNEUMONIAE INFECTION, INFLAMMATION AND HEAT SHOCK PROTEIN 60 IMMUNITY IN ASTHMA AND CORONARY HEART DISEASE,

I read the abstract (but not the whole article), and it does not mention the lifecycle of Cpn.  Is there a specific page or pages that this is supposed to link to that discusses the lifecycle?

Thanks MacKintosh!

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year: Ankylosing Spondylitis and Scleroderma, and minor Psoriasis.

ChristopherJ

15 Feb 2020 10:12 am

I hope everybody is doing OK! It's been pretty quiet on the website. Just checking...

Christopher

 

I am a retired guitar repair/restorer after 35 years. I live in Colorado and am wanting to now restore my health!

neenavyas

17 Feb 2020 02:34 am

Hi MacKintosh

the physicians'page is now working very well. just click on the banner and it opens up. Great job. Excellent. thanks for the effort.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

6 Feb 2020
MacKintosh