Submitted by Sarah on Sat, 2019-11-30 11:38

I don't now whether to laugh or cry, but feel more inclined to laugh: yesterday we received an appointment to attend a needs assessment with our local CPN, or community psychiatric nurse as I have just discovered!

It turns out, when I talked to her on the phone, saying that we had no need of help and had no intention of going to the appointment, that one of her main worries was that I hadn't seen my GP for about twelve years. Well, this is true, but I had been working on the assumption that you only go to see your GP if you are unwell, so I hadn't. Since the waiting room is normally full of snot nosed children, I might have caught something.

This CPN also didn't know that David was a medical doctor, the appointment was for both of us since he was down as my care giver.

Well, I will send her a link to the Catalyst programme, my website and David's MS treatment site. I will also forward it to my new GP, the former one having retired.

Sarah

Blog comments

D W

I'm glad you're able to laugh.

Laurel and Hardy go to Northanger Abbey!

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

I do believe in preventive medicine.

So glad for you all on this site for so many years.

My husband is a paediatrician.

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

great story Sarah about your new GP and appointment for David as your care taker, which he was a life giver!

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

I have copied this from a reply to Lizzie on another thread, but this adds it to my blog:

 "I neither want nor need to see either a psychiatrist, psychiatric nurse or an occupational health person and I won't. If people can't be persuaded that I have been cured from an 'incurable disease' then let them think as they want, but please leave me alone.

My husband found Chuck Stratton in the nick of time: I had probably had the disease for about twenty five years when I was diagnosed with SPMS and by that time I was tumbling down the mountain very fast."

Occupational therapist? Hmm...……............…......

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Weeks on...………………. Yesterday I was told that an appointment had been made for me on the twelfth of January to see, well, I don't know who because I stopped listening after the word 'appointment.'

This Community Psychiatric Nurse had better realise that I am never going to go to an appointment made by her: if I want to see someone I make the appointment myself.

Happy Christmas everyone!!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Crazy that they make an unnecessary unwanted appointment with a psychiatric nurse. Totally insane. Your paintings are proof you are saner than most of us. And a beautiful soul, like your paintings.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Nina, well to the CPnurse it wasn't an unnecessary appointment because anyone who has been diagnosed with SPMS will be in need of seeing her, I guess.

I disagree and have told her so.  On this last Friday she phoned to say that an appointment had been made for me on January 13th with someone else.  I don't know who because my mind shut off when she got to 'an appointment had been made for me.'

I don't see people unless I want to or need to, full stop, and especially in the height of a bad flu season.

When David was training, he spent three months at a mental health hospital.  He said all the psychiatric staff were as mad as the patients. 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

D W

Yes, that’s true. In Barrow Hospital psychiatrists used to give people Electro Convulsive Therapy (ECT) because they could think of nothing else to do.

‘Well, if you want to know the truth I find medicine very Procrustean, and psychiatry especially so. You chop or stretch the evidence to fit a pre-made diagnosis.’
Martha Hightower

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

Sarah, As you're being forced into this, just take it as an opportunity to educate someone who might - just might - be interested in the protocol. I've met medical professionals who dismiss the treatment when I first broach it, then realize it might help their mother or brother or cousin and suddenly they're intrigued.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

NO!!

Mac, I am being pestered, but there is no way that I can be forced to see a psychiatric nurse nurse or any other of her colleagues and I don't want my medical records tainted with 'mental health issues' just because I, stupidly in her eyes, believe that I no longer have MS.

I can't force her to watch Catalyst or read David's MS page, unfortunately, but I WILL NOT see her.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

D W

I agree with Sarah. It's difficult to argue with those who are conditioned to tick boxes. Believe me, I have tried it.

D W - [Myalgia and hypertension (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazole. No medication now. Morning BP typically 110/75]

But such a meeting with a trained monkey ... you will find out something useful. For example, I learned why not eat bread. Contains oil! The dough is not made with water, but with oil. Flour, oil ... Watch out, who has a weight problem ... And this is what health insurance pay.

On CAPs:12/01/2005 till March 2013; 20 years CFS,IBS, fibromyalgia; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness; from 2003 - v.s. lumbosacral meningoradiculitis, hypertension... 

Haha, I have a picture of my sister when six or seven, with a trained monkey sitting on her shoulder. She didn't like it any more than I like this one! She looked scard stiff, but the difference is that I am not scared of this one.......

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.