MediTest
29 Aug 2019
Author
Sarah
Title

Here is some very good news...

Body

Here is some very good news, and though I can't prove it, I believe it.

Well over two years ago a Northern European girl wrote to me. She had MS and was reasonably newly diagnosed. I joined her to the site but she never posted. I thought she was one of the many people who decide not to do the protocol. I was wrong: two days ago I received the email saying that she had been following the protocol for the last two years and three months. She gave me the result of her latest head and neck scan.

Comments

There are no new lesions,  but more than that, all her neck lesions have vanished and her brain scan lesions have greatly reduced in size.

I am thinking that there might be many other people who have written to me who decided to take the protocol but never posted.  If so, I hope they at least followed the website and saw that it is rarely all just plain sailing, that they had the courage to keep on until the good times arrive.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Lizzie

I'm plodding on, pulse 8 in few weeks. Nothing to report as of yet but to be fair I've had nightmare of summer on own with kids, crap carers and now a new team to train up but still extra loads on me to carry for the better of my child but to my detriment. Kids back to school tomorrow Thursday so I'll get some rest and breathing space hopefully. I've really been in the trenches so far on top of MS itself so it's hard to notice much re myself.

All best tho as your journey sounds fab!

Kiki

Thanks Kiki, take some rest. A very good idea. 

The thing is, we can only just let it happen. If that makes sense. If we're taking the pills and supplements, that's about it. OR are there exercises?
I reckon my walking has gone from 2/10 to about 5/10. I'm going to Stamford this weekend with a horsey friend and I think I will take a stick. I think it would make me feel more secure. 

Lizzie xx

Elizabeth Anne

Hello there,

Just a quick update from how things have been. I’ve now completed seven months of the protocol, including six pulses. A new pulse starts tomorrow.

There are constant little improvements. My walking and balance are both getting better, as well as loads of other benefits. My skin and hair look better,  my hands and feet aren’t cold (but it’s summer...), etc etc  

Improvements sneak up on you, then you realise.  Yesterday, for example, I was walking with my husband along a path, when we both looked  up at a plane doing aerobatics.

The thing is, I was walking by myself with no support or assistance, when I suddenly realised I was looking up and walking at the same time. Usually I stop and hold something, then look. 

All good! 

Best to everybody xx

Lizzie 

Elizabeth Anne

Wow Lizzie,

i know exactly what you mean -- looking up and walking at the same time! I have arthritic knees and I always look at the pavement road when I walk for the slightest up down on the road can send me spiralling into a fall!

take care

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

by the way Sarah,

when should a patient on protocol get tested with an MRI again? Sonal had an MRI done just a couple of weeks before she started the protocol -- that was a coincident -- so when should she get tested again to know for certain that she may have begun to heal? Or is it better to wait till some real big improvements?

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Neena, I really can't say. I had to have my second mri at six months because the hospital was having all new equipment installed and the only way to really test how much I was improving was before the new stuff was installed.

I was so worried coming up to the second scan, wondering what it would show, but luckily I didn't need to be.  Not everyone will be like me though: I have always been a quick improver but most people are not.  I am talking about everything here, not just MS.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

thanks Sarah I know I am thinking way too ahead. One should wait for some definite improvements before the next MRI for Sonal. Perhaps one year from the last one would be a good goal

thanks and take care

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

"I wanted to let you know some fabulous news. I stopped using the walking stick because it was slowing me down.
I came back to my former speed (not really that fast, to be honest, still slower than most!) straight away.

And today, day 4 without the stick, I realise I am right back to the level of mobility I had this time last year, i.e. before the nasty relapse that had me helpless. I can walk currently about 500m without dragging my right leg, and recover within a short time. If you didn't know, you wouldn't see anything wrong with me. It's like the old days.

I am really thrilled about this. Sarah, thank you SO much. If you hadn't decided to get the word out, I would be declining gently (and stupidly, with half a brain). Neena, without your kind supply of the medicines, who knows where I'd be now."

 

 

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

must be such a relief to be back on your own two legs, even if only 500 metres at a time! But do t overdo as DW warned do t take chances falling and hurting yourself. Slow and steady. Just enjoy the fact you are truly on road to recovery. It's like magic Sarah, David, Vandervilt univ Dr Stratton and others who have persevered despite the horror of a closed mind medical community!

oDo keep in touch Lizzie

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Two days later she is still walking outside without a stick, Which is better than I could do, after quite a few years, but then the neurologist told David that it was time to look for a nursing home for me.

I have been in the habit of sending him a Christmas card every year, a print of one of my latest paintings.  I haven't bothered for the last couple of years, but I think I will surprise him this year, with a letter as well!

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Do that Sarah

you must rub it in, the stupidity and the refusal to see and acknowledge what happened in front of him is almost criminal. Imagine if he has other MS patients and not letting them know of a very probable cure! This tirade for your neurologist

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

 

Neena, yes, I must rub it in. He does have other MS patients and David has seen quite a few, and got many of them better. Maybe the neuro has managed to convince himself that David's patients who no longer come to see him, the neurologist have just dropped off the radar because they have gone into a nursing home.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

sarah

did your neuro refer his patients to David? I suppose not. How did they find him? Through the Catalyst u tube, DW website or this website? Just curious

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Fat chance Neena! It was word of mouth for local patients, plus some people who had read my writings on thisisms.com.

Sarah

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I thought so Sarah. But felt just in case the neuro felt his conscience pinching him and he had some compassion for his patients!

This is all so bizarre and yet redhill Pharma is allowed to tout its multi antibiotic pill as some brand new breakthrough when it has simply copied Stratton Wheldom Shriram etc!

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

I'm not sure that he has one of those, Neena, He never even suggested that I would benefit from vitamins B12 and D: just steroids as and when needed, but I declined the offer.

Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

yes Sarah

Sonal,s neuro also happy to ask her to take weekly Avonex injections. Didn't suggest any change in lifestyle food habits or exercise. No primrose evening oil fish oil or extra vitamins and she kept on going downhill.

she completed fifth pulse yesterday. Queasiness in stomach towards evening and lots of fatigue. On to the sixth cycle.

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.