MediTest
23 Jul 2019
Author
tuftyone
Title

where does it hide?

Body

I understand that CPN can infect any organ, but can it hide in the gut or the bowel?

Comments

I suppose so Tufty, but mine hid mostly in my brain, which must be why my blood serum reading was comparatively low yet I responded so quickly when starting abx.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

How did you know it was in your brain?

there is so much wrong with my gut that I can only think that CPN is responsible for all my digestion and health   issues because I’ve always had a clean diet, never had much sugar and fast foods, have reduced gluten and dairy for years, Dong drink, and I live I one of the healthiest environments  in the UK!

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

Tufty

by the way I was curious if venoplasty helped you . The net is full of stories of immediate relief for some with MS, especially those with eye problems, after venoplasty procedure.

Take are all the best

neena

 

 

 

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Oh oh tufts that must have been very disappointing. I asked because a few years ago I came across stories about an Italian doctor who recommended venoplasty for MS and there were people on the net who said it helps them. But soon that theory was discounts before we could make up our mind whether Sonal should perhaps try the procedure.

take care And how is the Abu protocol treating you? Anything positive so far or maybe these are early days for you as for Sonal.

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Yes it was very disappointing, but at least we had a good few days in New York!

I haven’t started the abx yet as I’m trying to work out my chemical sensitivity. My naturopath has me taking glycine which has improved my restless legs and rosacea but has affected my mobility. The heat has just made things worse as well. Always seems to be one step forward two steps back.

I’ve decided to start the ABX on Monday regardless and suffer the consequences 🙂

any news on sonal?

 

Diagnosed RRMS 1999. No DMDs or other meds. Have done TMJ correction, Candida protocol, CCSVI venoplasty procedure.

Dear Tufty

at the moment Sonal not doing so fine. Her first pulse went off smoothly without too much of an issue but since then she seems to have worsened. One is hoping worsened means the Abu is doing its work. The maddening thing is one can only guess whether mess working or not whether disease acting up or not and so on. Her mobility is severely limited.

one is hoping for a miracle that has happened to some including Sarah and Rica Katman and more recently Lizzie who seems to be on the way to full recovery. But Kiki on the other hand is struggling along.

good to keep in touch with all through this website. Do try the Abx and see how your body reacts. Take care

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hey Neena

Yes Im deffo far worse than ever so Im eternally praying my curve of recovery is soonish pointing upwards again. Im hoping this is rock bottom currently. Still doing pulse nr 6 on Monday.

Heat is intense here at mo and it's made everything so much worse. Here's to tons of clouds and rain for weeks to come as it makes my live life soooo much easier and more pleasant too!

Kiki

Dear Kiki

I know it is difficult to get away from counting every pulse and hoping for that recovery. But another five or six pulses down the line things should be better. And how is your child? maybe you can try cheer yourself by getting help with your child and having more time to do things you want to. Invite a few friends over for tea for a chat and so on.

Take care

Neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

Hey Kiki, 

My walking and weak right side got worse as well. My walking has improved but my right side is still weaker. I'm not out of the woods by a VERY long way, but improving. My handwriting still looks like a child's and I do things with my left hand because I have to. 

I'm happy about it. Started a new pulse this morning, packed away the cider, pleased it's a bit cooler...

Bye......

Elizabeth Anne

Hi Neena, it has not been plain sailing for me, though. For the first months I got worse, now I am getting better. Still a long way to go, but it is happening. 
I expected, and still do expect, that recovery will take a number of years. Thus the improvement in walking came as a wonderful surprise. 
Also, I don't know if this has had any effect, but I've been taking supplements for years and years. 

 

Cheerio, and best to Sonal xx

Elizabeth Anne

Dear Lizzie,

No No No cannot be plain sailing for anyone with this dreaded MS. But wonderful that you are on road to recovery. I discovered this only in March accidentally watching u tube Wheldon talking about recovery of Sarah. Only in April Sonal started the protocol but her condition was bad mobility severely limited. Not able to walk even two steps without support. So hoping for the best now. This wretched medical fraternity keeps its eyes closed to the suffering around them. No neurologist breathes a word about th is experiment done by Vanderbilt university a decade earlier? Take care

neena

I am 76 years old. My daughter-in-law was diagnosed with MS and we are all very keen for her to start this new antibiotic treatment. We hope to be able to do this in the next couple of weeks by finding a doctor willing to deal with any issues like reactions that may crop up. My daughter-in-law is 43 years old.

I have been an active poilitical journalist most of my life and have felt for a long time that there must be a cure out there for MS which the medical community has largely ignored. I am very excited by the Wheldon protocol.

My gut was fine but my brain wasn't, but it became fine again very quickly after treatment !

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I suspect that it is difficult to discern between a Cpn-infected colon and a dysfunctional/dysbiotic colon.  The term "healthy diet" is relative.  There are 100 trillion bacteria in the human colon and about 30 - 70 trillion cells in the human body.  Some people take probiotics and think that this improves the health of their colon, but then fail to feed these bugs.  100 trillion bugs eat quite a bit of food!  What happens when we do not feed them?  What do colonic epithelial cells use for energy [hint: it is not glucose]?

"Starving our Microbial Self: The Deleterious Consequences of a Diet Deficient in Microbiota-Accessible Carbohydrates"

Cell Metabolism 20 (5), 2014, 779-786.

https://www.sciencedirect.com/science/article/pii/S1550413114003118

I only take probiotics (kefir) when I am on antibiotics, but take large quantity of prebiotics every day.

I don't know where it hides, but is it true that swabbing the mouth is one way to test for it? If that's true, does that mean that it is always in the mouth or salivary glands?

I know that I have had problems with my gums bleeding since Cpn, and I'm wondering why.

Any thoughts?

I think I have a severe case of cpn,in the brain which I got about 8 months ago (Oct. 2018).  

I have a lot of issues with depression, balance, eyesight, ear and teeth problems.  Most important, I have brain shrinkage, and some strange symptoms of that. Does anyone share these issues?

It seems that anything is possible with Cpn.  Stratton has said that Cpn is transported via the moncytes which are drawn to areas of inflammation.  So, if you had gingivitis previously, this is a form of inflammation and you may now have a "Chlamydia farm" in your gums.

is that my dentist used to remark that my gums didn't bleed--but not anymore.

But, do you know if cpn testing can be done by swabbing the mouth? If so, then cpn must reside there or in the salivary glands, it would seem to me! ???

I think I have a severe case of cpn,in the brain which I got about 8 months ago (Oct. 2018).  

I have a lot of issues with depression, balance, eyesight, ear and teeth problems.  Most important, I have brain shrinkage, and some strange symptoms of that. Does anyone share these issues?

I doubt that swabbing the mouth will give a positive PCR test after 10 months since the initial infection.  From what I have read, a swab of the upper respiratory tract is only useful during the first 4 - 6 weeks after the initial infection.

Jean, I forgot to ask - are you taking any medications to treat this yet?  Have you at least tried the "NAC test"?  It is a useful confirmation of a Cpn infection.  I had much sweating and abdominal pain for the first week on NAC.  My wife and her friend took the NAC as a control.  They had no reaction at all.

but I will probably try the NAC.  What would you suggest for how long and how much for the trial?  Some people have severe reactions to it, like asthma and hives. Thanks. 

I think I have a severe case of cpn,in the brain which I got about 8 months ago (Oct. 2018).  

I have a lot of issues with depression, balance, eyesight, ear and teeth problems.  Most important, I have brain shrinkage, and some strange symptoms of that. Does anyone share these issues?

Just try it once, perhaps at a 1200 mg dose, and see what happens.  There are some that say that NAC should only be taken chronically while also on antibiotics.