MediTest
14 Apr 2019
Author
Sarah
Title

New Zealand Help Needed.

Body

There must be someone here from New Zealand. I have someone currently engulfed with pain from Lyme disease who needs a GP.

Can anybody help him? 

Comments

As far as I know, there is pretty much no recognition, awareness or help in New Zealand. There is a large Facebook group in Australia called ‘Lyme Australia Recognition and Awareness’ so might be worth asking there if anyone has any info.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)

Thanks Bo, I'll tell him.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I presume he caught it whilst abroad since he was also told that lyme disease doesn't exist in New Zealand.

Any thoughts on this? 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

SJ

Hi everyone,

 

I'm the person who contacted Sarah. There's seemingly nobody in New Zealand who can help with lyme disease or prescribe me antibiotics so I really feel left on my own out here

 

I'm really trying to figure out what is causing my major problems. I've tested positive for lyme, mycoplasma pneumonia, cpn (high levels) and several other viruses.

 

I get these 'attacks' that come out of nowhere and completely cripple me with pain. They tend to fade over time and I have periods where I feel okay. They have been getting worse and more frequent and its really scaring me.

 

I have many symptoms but the main ones are: intense pain through my back, shooting/burning nerve pain throughout my back and also runs down my legs. I feel some kind of pressure in my head like there's something in there. Twitching and jerking in my body when I'm trying to sleep that sometimes wakes me up. Weakness and shaky muscles.. to name a few.

 

Are these symptoms common with cpn?

Hi SJ,

I'm a NZer living in the UK. I'm going to speak to my relatives at home about paying for prescriptions -- they might know of a private GP who could prescribe things. Or they might not, but I'll see what I can find out. 

Best wishes,

Lizzie

Elizabeth Anne

Hi SJ I’ve just chatted to a friend in Australia who tells me that the situation is the same in NZ as there - with the authorities denying there is any Lyme, though it’s clear to all that there is. From my experience, I’d say it is pretty much impossible to separate Lyme and Cpn symptoms, as they can mimic each other. I tested positive for Cpn, Borrelia, plus a load more coinfections too. I can definitely relate to what you describe. I’m not at all sure whether there is any way you can get abx in NZ without a doctor (many of us have had to do this), but, if you can, I would say, again from my own experience, that starting the abx protocol here for Cpn could well serve you well. I’m going to send you a private message, so look out for that.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)

SJ

Yea it's probably the worst region in the West (NZ & AUS) for lyme disease. My doctor doesn't even really believe in it. The problem is that I'm relatively young and I look fine so nobody (except my girlfriend) can see that I'm suffering. I don't even know how I got lyme disease, I don't remember ever being bitten by a tick. I just started getting sick 10-11 years ago when I was 15, misdiagnosed for a decade with Ankylosing Spondylitis (arthritis of the spine) until I was told that I don't actually have that condition. I had to figure it all out on my own, and send my blood to Germany which confirmed the lyme and co-infections with cpn having high levels and an exclamation mark next to it on the lab results.