MediTest
8 Mar 2019
Author
giacomo
Title

Gathering information

Body

Hello, I'm new on this site and I'm trying to gather information about the CAP. I've been diagnosed with MS in 2008 and I'm quite fine at the moment, living an almost normal life. My only problems are my hands/arms (numbness and pain) and my bladder (not that serious, just urgency and frequency). I always refused conventional dmd, I'm on ldn since 2009 and on Coimbra protocol since 2014. I read several pages, articles and as far as I understand, there's no certain way to be diagnosed with cpn chronic infection.

Comments

So my first question is: has everyone started the CAP without knowing for sure about his/her infection? The other question is: has anyone combined CAP and Coimbra protocol? I take 170.000 i.u. of vitamin d, daily, avoiding calcium rich food and drinking a lot of water (with low calcium content), Will my kidneys be too stressed with such amount of antibiotics? Since it's so difficult to find a doctor who can help you with this protocol, can I do everything by myself or is it possible, for example contact Dr. Wheldon? I'd really like to try it, because my main symptom (numbness and pain in hands and arms) is getting worse over the time, thought it's not expanding in any ways. Thanks for reading and good luck. Giacomo

Well, I can’t answer anything for you, what I know is that I wish the CAP had come to me earlier in my diagnosis, however, it wasn’t horribly late  and it couldn never be too late!

i can only say that the CAP came to me in such a way that I couldn’t ignore it. I am doing it without GP help, I think most of us are! My neuro is encouraging,  but I don’t see him often, my GP is not!

so my question to you is what do you have to lose? What do you have to gain? Is life, and your loved ones, important enough to try?

the choices are yours! I hope you choose to try for an uncluttered future!

Good luck.

Jane

 

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Hello Giacomo, I am Sarah Longlands, Dr Wheldon's wife and first MS patient. With regards to the Coimbra protocol many people here are taking a high dose vitamin D, although not as big as that: I take 5,000 a day, along with 5,000 mcg of b12 and various other supplements, virtually the same as when I was still taking the antibiotics, which I took for about four years altogether with amazing results. Neither my kidneys nor my liver were too stressed by taking the full dose of abx mentioned here. I started the protocol with secondary progressive MS, right arm nearly completely paralyzed and hardly able to walk. After a few years, I had resumed my profession as a fine-artist and can walk without ads, although with a definite limp.

My guess is that with doing the Coimbra protocol already, you have been given a head start, although I am surprised that your numbness and hand pain are still getting worse. Maybe you are actually taking a bit too much vitamin D?

It is difficult to find a doctor willing to treat anyone with MS who wants to try something out of the ordinary and David has now retired. He does keep his website active though, so that people can take information from it and try it themselves. There should be enough information both on this site and on David's to do that.

His address is: http://www.davidwheldon.co.uk/ms-treatment.html

If you message me, I can let you know how to obtain the abx.

I wish you the best of luck, Sarah

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I started treating myself with antibiotics and NAC well over 5 years ago. I treated empirically; that is to say that I took the antibiotics and the other supplements to see if it would help my condition. I had no proof that I was actually infected with chlamydia pneumoniae.

 

A friend of mine that followed me in doing this drug regime took NAC prior to starting the antibiotics. She had the classic "NAC flu" reaction. Anybody at embarks on a drug regime such as this is naturally going to end up asking themselves whether they are following the right course of action. After all, this treatment is not one that is recommended or recognised by the medical establishment for many illnesses such as MS.

 

My friend that followed me on the protocol had the classic NAC reaction, which was able to reassure her that she was in fact on the right path. She actually got well. I am very happy for her and certainly more than a bit envious.

 

I would say to anybody that a wise course of action would be to immediately start taking n-acetylcysteine (NAC) as a first course of action.

😊

G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Ah yes, but people like me started before NAC was introduced to the protocol and we got better just the same. I started even before I was tested for cpn or Lyme. I was negative for Lyme and very low for cpn: most doctors would have thought too low to treat, but within a month I was getting better. I started NAC when I was on intermittent treatment.

Sometimes it is better to jump in at the deep end! 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Glenn, I don't understand why you can't!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah ...

I am not  a software engineer so I don't understand the whys and wherefores either.  You use an Android phone so you can experience the same as I do if you choose. Anybody using any Android device will experience the same; whether that be tablet, phablet or phone.

 

I can assure you that not been able to paste onto these pages like you can anywhere else is extremely frustrating. You have to write it in one - directly onto the page - otherwise you've lost all. If you forget and switch to check something on Google (even a spelling) you've lost it all. Try it for yourself and see.

😎

G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

I see now, and since I am on my phone at the moment, I tried it already.. How annoying!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.