MediTest
Submitted by Jan Figtree2019 on Tue, 2019-02-26 21:10

My story begins in late 2016 with mild sciatic pain (left leg).   I did not go to the doctor for this as it had come and gone for at least 20 years.  (I also had other symptoms that I’ve ignored/just lived with my whole life.) But this time it was different with the pain rapidly progressing until I was pretty much bent over and could not walk, sit or turn in bed.    I was also very, very stiff. I still refused to go to the doctor (even with great insurance) as I had not had much luck in getting clear diagnoses and logical treatments for other medical issues.

 

It was interesting to me and important to note that anti-inflammatories did NOT help with this terrible pain. Nothing seemed to mitigate the pain, and I still didn’t go to doctor (I was pretty sure they would prescribe some heavier duty pain meds as well as Prednisone---which I did not want to start).

 

I started and stuck to physical therapy because it seemed somewhat helpful without getting me hooked on meds that were not clearly linked to a clear diagnosis.  I did get some (minor) relief from the exercises and the “dry needling” therapies they used.

 

But I needed to resolve this terrible pain more definitively because I was due to go on a once-and-lifetime trip to Africa with my extended family in May 2017.  Lots of walking and climbing...

 

While my sciatica gradually improved over the next five months, I was never clear of the pain, and was worried I might have to just skip the trip.

 

About a month before going to Africa, we all went to get our Malaria prophylaxis, and I chose to do Doxycycline---even though I would have to take it every day for many weeks.  The alternative was a malaria drug that I had had a bad reaction to many years previously. Doxycycline seemed well-tolerated even if it was much longer term.

 

From the very first dose, I was almost pain-free.  I didn’t put it together at first, but after a very long flight and a few days in country (constantly taking the Doxy) and climbing in and out of tall vehicles, I knew something spectacular had happened.   NO PAIN with Doxycycline. It was clear to me that I would have to research and investigate further when I returned home, and buy some more Doxycycline.

 

After much research/reading, I surmised I might indeed have an INFECTION of some sort, and that infection had provoked several autoimmune diseases for which I had had symptoms most of my life:

 

--Scleroderma

My symptoms:  

--hardened/thickened/darkened skin largely on thighs and forearms (thighs implicated since puberty)

--mild Raynaud’s as a child and young adult…

--fingers stiff/puffy since giving birth 20 years ago

--acceleration of collagen accumulation after each successive infection as an adult

--etc.

 

--Ankylosing Spondylitis

My symptoms:

--very stiff torso most of my life (evaluated by physical therapists)

--pain deep in buttocks and down legs (intermittent, almost always going away upon rising and moving throughout the day)

--pain/stiffness starting at bedtime and almost immediately mitigated after getting up in morning and moving around

--etc.

 

So, I might have two autoimmune disorders provoked out of dormancy (genetic propensity?) by a C. pneumoniae infection???

 

I am in line to see a Rheumatologist for both these autoimmune disorders:  to run tests and get x-rays and possibly an MRI. Treatments for these autoimmune disorders seem largely immunosuppressant --this is the opposite of what I want to do.  I want to heal my immune system not suppress it, and I think the C.A.P. will do just this.

 

And so, I started the C.A.P. in earnest on January 4, 2019.   I took all of December 2018 to slowly titrate up with Doxy and Roxithromycin.  Jan. 4th, 2019 was my first full day of these two antibiotics (two doses of each a day).  No negative responses to either. Some positive responses: a softening of hard skin on both forearms/thighs.  And almost no pain at night … but still stiffness…

 

As I write this, I am on Day #53 of the Doxy + Roxi.  I am staying on these two for the recommended three months before starting pulsing with Tinidazole (I am not starting with Metronidazole as I want to avoid as many unpleasant reactions as possible).

 

To keep my gut healthy while on all these antibiotics, I take:

--Plain yogurt

--Mutaflor (probiotic)

--S. Boulardii

--Slippery Elm (herb/capsule)

--Marshmallow Root (herb/capsule)

--Burdock (herb/capsule)

 

Additionally, I work hard to protect my liver, by taking:

--Taurosodeoxycholic Acid (TUDCA)

--Milk Thistle Extract (Herb Pharm)

--TMG  (Trimethyglycine)

 

The Recommended Supplements:   I have been on all of these for quite a few years (including N-A-C) before ever coming across the Cpnhelp site.  

 

Finally,  I am deeply grateful for all the people who the people who founded, maintain and participate on this site.  You have given me much hope that I can regain and keep my robust good health.

 

Cheers,

Jan

Blog comments

Wishing you all the luck in the world with this, Jan. Keep in touch with us all here. Cheering you on!

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)

What an excellent tale Jan, and in many ways quite similar to mine, going for about twenty years before having my MS diagnosis thrust at me, simply because I didn't want a life of useless meds which would do nothing for the disease.

As you say, you want to heal your immune system, not supress it and suppression is all that I might have been offered.  Healing is much the better!  I will look forward to following your journey!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Boadicea and Sarah--

Thanks for your kind comments and support.  It really helps to have people in similar circumstances walk along with you as you do this protocol.  I'm off to do my daily hike... it's getting hot here in the desert.

Cheers,

Jan

56 y.o. with possible dual diagnoses that I am working to confirm this year:
Ankylosing Spondylitis and Scleroderma
Serendipitous discovery that Doxycycline relieved pain/stiffness/soreness during a trip to Africa
Have started Doxy + Roxi; waiting full 3 months to pulse Tini.
Have most of supportive supplements in place for many years including NAC.