Cpnhelp.org

I am just now recovering from 14 years of illness. I was diagnosed with Lyme at first but looking back it was a negative igenex test. 7 months ago I was diagnosed with MTHFR HLA 1 copy comt gene mutation Hashimoto’s not correctly treated SIBO folate anemia due poor methylation hormonal imbalance as well chronic inflammatory response syndrome and mast cell activation. I have responded well to treatment of liver methylation supplements vitamins treatment of Hashimoto’s with correct natural thyroid, treatment of SIBO and removal of any mold in my house and addressing my food intolerances. I also had Marcons and that is being treated well. I just started my female hormones making a huge difference too. I am out toxic marriage and doing well from that.

Now 1 week ago I started NAC and herxx. It got my attention. I found where I could have Chlamydia Pneumoniae. I said what ?? I have felt great since starting the NAC. Then starting my female hormones I feel even better. My fatigue is improving and energy going way up. I have looked through my past lab And can find no testing done for this infection. I also noticed the first morning after starting the nac when I woke up I was coughing a lot and moving a lot of mucous out my lungs. It kind of felt like I had a low grade flu.

Now NAC helps make glutathione. I have to take daily glutathione and it could be just that I am detoxing more since I went years with detoxing. I also have use sauna frequently as well.

Can anyone shed some light on this ? And experience. I am a RN BSN experienced nurse. I had study myself to save my life and finally got a functional medicine md who is very knowledgeable. I still study all the time all these chronic illnessses esp since I was labeled crazy and misdiagnosed for years. My family has been amazed in my recovery so far. I give it all to god. He was my guide.

I also see on here Buhner has a protocol ? I have his Lyme book. Can you tell me which book has the Chlamydia protocol in it ?? I can’t belive nobody tested this. I saw 4 to 5 Lyme doctors over the last 5 years. I also have a low killer cell count too ?

Any advice will be appreciated. J.

Welcome! Sorry to hear what you have been through, but it’s great that you have gradually been finding answers. Buhner’s Cpn info is in the second edition of the ‘Healing Lyme’ book.

NAC is a mucolytic, so just because it's making you cough up, doesn't necessarily mean it's the "NAC flu" due to a CPn infection. But it could! Can you get tested?

Sassy, Ozman is quite correct here: NAC is a mucolytic, so yo must expect some mucous. For instance, whenever I take NAC now, I end up with a rather runny nose, or coughing up a bit of mucous, but I certainly don't have NAC flu!

Thank all of you. I plan to get tested and I will be evaluated for immune deficiency syndrome soon. Since I have the HLA bad genes and been diagnosed with chronic inflammatory response syndrome I am also concerned I have MS or pre MS. Two lesions on my spine was found in 2013 and nobody ever did a differential for MS on me. I had many of the symptoms and was much worse 5 years ago could barely function. I plan talk to my md about this too. I have so much nerve burning and pain and just can’t keep living with it. I have issues going to sleep and lots of chronic fatigue and depression due to the way I feel and being disabled too. It hurts cause I cannot work and go like I used too. What does anyone take for burning like pain ? I am scared to death take a drug due to being so sensitive to everything. It drives me crazy. The burning pain.