MediTest
Submitted by Simrao on Thu, 2018-07-12 11:30
More than a month into the treatment. I wanted to update on my wife's progress. She is experiencing a lot of spinal pain, shoulder & neck pain and spasticity in the legs all this increased after starting the treatment which could probably mean ABX is working. I wanted to point out another important thing which I noticed, She used to have itchy rashes on her back since almost childhood I think. That used to give out some sort of solid white substance(Very very small). This has stopped :) but itchiness is reducing. I wanted to know if anyone else with MS experienced this. I shared the youtube video on CPn and her grandpa pointed out that her uncle had Cpn in his childhood and looks like he still has neural issues.

Blog comments

PV

I have been three months on a CAP for reactive arthritis. I've been very sceptical about the reactions to the CAP (muscle pain, joint pain, rashes, blurred vision and others) being bacteria die off. But the way may body has responded, i.e., the reactions easing with time while still taking the antibiotics has convinced me the reactions are most likely bacterial die off and not some kind of allergic reaction. I have been able to ramp up very quickly into the CAP but there are antibiotics that hit you stronger so you need to have a flexible plan/advice on how to handle this. Also you need to take some kind of NSAID for pain and swelling caused when your cells die along the Cpn. Also, you need to take supplements. Folate and B vitamins are very important as well as something to fight diarrhea. You can find details about supplements in other pages of this site.

PV, I REALLY understand what you are going through. My arthritis is totally and completely gone. I am now 78 years old and can move better than for 15 years, when most of my complaints began. We still have our dairy goats (as a matter of fact, we are now a "historic herd"). Last week I said that I have only a small limp, but that was a day when I was feeling fabulous - in reality, my limp is medium - whatever that is. There were times I thought this was killing me and I felt really horrible and hurt terribly. THAT is all gone. You will get through this. Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

My wife took 3rd antibiotic on 20 oct after she had some relief from all her other symptoms. She started with a very low dose of 250mg tinidazole twice a day for just 2 days. She had severe headache the whole week and pain in the left eye. We reduced the dosage of roxithromycin and doxy antibiotics to once a day and continued with the other supplements. Kept tini on hold currently and today she had blurred vision in the left eye by evening and eye pain and headache continued.

Is this a relapse or could it be related to neuro toxin and should she take Prednisolone.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Difficult to say, but because of when it started, it might well be a good sign, but two days is more than enough for a first pulse.  Your wife is starting to pulse much earlier than many people as well.  So no more for now and do consider a short dose of prednisolone: many people do at this stage.
 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.