I'm lost folks. I live in Maine and it impossible to find any doctor who is even slightly open to chronic/persistent CPN infection. Even the doctor who uncovered my CPN infection in 2008 (Lahey Clinic in MA) said it can't be the problem, since I took the usual short course of antibiotics. I'll go anywhere and do anything to find medical assistance. I did the full protocol years ago and got much better. Recently it started all over again, with respiratory symptoms that won't go away feeling sick all over, brain fog. My primary care doc wants to treat this like allergies or asthma. I know the difference between having allergies and having something infectious. Last time around I went from specialist to specialist and nobody had even heard of CPN being anything other than a minor, short-term illness. Self-treatment is a very scary, difficult, expensive process. I just don't feel like I have any choice. I have tried educating doctors with materials from this site. Everyone is afraid to get in trouble for prescribing even one long-term antibiotic, much less 3 or 4. I know that site is generally a positive place. Sorry to not be positive about my situation.

Needadoc, one idea is that you might like to contact Charles Stratton at Vanderbilt, because he might well be willing to work with your local doctor. Here is a link which will let you know how to contact him:

It is amazing how many doctors, even those dealing with infectious diseases still think that a C pn infection can be cleared in just a few days, not realising that if the disease has become chronic, it is going to take so much longer.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Needadoc, If you search Darren's posts, you can find a rather detailed recommendation for (non-pharmaceutical) natural, herbal remedies to attack this disease. Once we rebuild the site (it's happening now, thanks to Sarah), we'll install more comprehensive coverage of this option.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi