Site Issues

1.  When I look for 'recent posts', I am not looking for the beginning of that thread, which may have been posted (originally) many years ago.  I am looking for the most recent posts at the top of a list and the rest of the 'recent' posts listed in order of most recent at the top, second most recent below that, etc.  We're accustomed to seeing the newest posts first .

2.  Original posts, such as the one I am now initiating, should clearly show on the original post, WHO authored them. It's confusing when you can't identify the author of a post unless you leave the post and go look at a 'recent posts' list.  (I am MacKintosh, by the way, everyone.)

3,  Kent, if you look at my post announcing the site upgrades were about to be made, you will see (at the present time) three pages of posts attached to the announcement.  Many of the responses don't make any sense, including a couple of your own, because the 'organizational tree' of those responses isn't logical.  RESPONSES to a specific comment should appear below that comment, not in a running list of all comments.  "I fixed that" is one of your comments, yet it isn't clear what you fixed, or who you're answering.  -- I might say "I hate that" in response to someone, but it will appear later, under an unrelated comment and it won't make sense or it will appear I hate someone's Aunt Matilda, because she was referenced in a comment in the queue somewhere else.

4.  Can't the Conversation label simply say Private Messaging or Member Messaging?  We aren't accustomed to 'Conversation' and if the label can be changed, it should be changed, so longtime members don't have to learn new tricks.

5. 'Improved' is far better than 'new and improved'.  People who use this site come here addle-brained, hampered by cognitive issues, often panic-stricken and in time-sensitive situations with doctors and medications.  They need the simplest, most straightforward, visually clear site that can be created.

Pages cluttered with more information, more columns, more typefaces, more of anything and everything, is NOT desirable.  Keeping the site similar to the old one and familiar for visually or cognitively impaired people IS desirable. Blocking fictitious members is desirable, changing the organization and presentation of the recent posts list is not desirable.  (I am no longer brain-fogged but I am certainly finding navigation of the site confusing and unrewarding.

6.  Can you please publish a brand new post, outlining what has been done thus far and what you still anticipate providing to us?  Members of the site will likely be more patient if they are told what's going on.  We have a number of members who are web designers.  They might be able to offer constructive advice if they were told where we are in this process.

 

This is all getting silly ! Bo, I agree; I started a conversation with Tuftyone, he replied but the next thing I knew, he was asking me if I had seen his answer.  I hadn't because all the messaging had vanished.  We  are now using Facebook, which is not ideal.  Jim is (still?) on holiday and Kent seems to have vanished. What to do?

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

It's not a question of optimism, it is an issue of realism. Realistically, things are not going to come right. Antibiotics will not do it; you will need an altogether different class if drugs to believe otherwise.

 

Start again from somewhere else. It will be a great pity to lose this tremendous archive of of knowledge though.

 

G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Sarah, can you describe what you mean by 'vanished'.  When I go to My Account and click on messages, I still see all the conversations that I have been involved in.  When I click on a conversation I see all the messages.  Are you sure you are going to the right place?

Kent, when I go to my account, there is no conversation to click on!  There was last week, but it suddenly vanished and as far as I am aware, everybody is finding the same thing.

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Same here. No trace at all of any conversations when I go to My Account. There was before, but there isn't now.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)

Phew, I'm glad it isn't just me!!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Well, I hope Kent gets it sorted out double quick.  I have suggested something to Jim!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Well at least I can paste something into the header (that's been the case for a long while). I typed a whole length of text earlier and lost it because I can't paste from notepad. 

I know that you want to believe. I know that others want believe too. I know that you will wish and you hope. To carry on believing, you will indeed need that "Altogether different class of drugs". For those preferring a more natural remedy, perhaps mushrooms will do the the trick.

🍄

I am still hoping to win a multi multi EuroMillions rollover.

🤔

G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Nothing yet, I see............

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Kent, the general opinion on the new site appears to be favourable apart from one very major point: the complete lack of private messaging.  It was there last week and I was using it, but halfway through a conversation with a new member, it vanished.  This is important: there are sick people here, who don't want to have to post their private lives in public for all to see.  Tomorrow is Friday: another week!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hey ...

😲

I honestly don't see how you can say that, Sarah. Although I am only one person, I certainly cannot endorse any positive thoughts after this length of time. I certainly don't think that the current reincarnation can be viewed as positive. It is a mess. I don't believe that anybody new coming here would actually find their way through this lot.

 

The previous format showing the most recently added or updated comment was plain easy-to-follow.

 

I had held out hope that somebody would see the disaster for what it is and start again. My comment about eating magic mushrooms was facetious and not meant to be acted upon.

🍄🍄🍄🍄🍄🍄🍄🍄🍄🍄🍄🍄

And no, I still can't paste here on this page.

G.

 

“Don't believe everything you read on the internet.”

―    Abraham Lincoln

Glenn, The most important things are that I want the private messages to work and for people to be able to easily join the site with a secure spam filter.  Someone wrote to me just yesterday who was desperate to join the site for his mother: I seemed to be one of the most active people and he found my address on my website.

Being an optimist I had hoped that messaging would be back in place by this morning, but I was wrong.  Leave it until Monday before I get really annoyed.  Jim can only just be back from his holidays and Kent, right now, must be tucked up in his bed.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Kent, Where does one go if one wants to join the site?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Yes, Kent, I have two people lined up!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks Kent!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Go to the home page (while logged out) and click on create new account in the login block on the left, or go straight to http://cpnhelp.org/cpnhelp/signup .  Do we need to make it clearer?

The site is still being bombarded by spam bots who are attempting to register.  This hasn't abated since the upgrade unfortunately but altering the registration url has reduced success rate down to about one a day.

I was hopeful there, for one moment, that I might be able to send a message. Yes, the tab is now there. I get the option to start a new conversation. But, hard as I've tried, there was no option anywhere to actually write anything. Sarah - I started a conversation with you - you might get a completely blank message or you might get nothing at all. I've given it my best effort, but it's beyond me, I'm afraid.

And dare I ask about our old messages? Have they all been lost?

Also, why has the member list been lost? I gained great strength from reading blogs written by those who had travelled this journey before me. The way into those blogs was by looking at the member list, reading their short biography, then looking up their blog. I kept my blog up to date in the hope that it might help someone else in the future. But blogs are useless now, as no one is going to be able to find them unless they already know they are there. So many previous resources, built up over so many years, appear to have been lost.

Kent - I'm sorry to hear our website is difficult to manage. We're not trying to be awkward for the sake of it. Our website has been precious to us. It's been a lifeline to me for the past seven years and has saved my life. This is serious stuff. We feel as though a precious friend has been taken from us and, so far, it feels as though we are trying to pick up the pieces and move forward with our hands tied behind our back.

I think optimism does tend to naturally be an attribute of those on this site - that's what keeps us taking abx for many years. I've tried to stick around here in the hope we can restore a functioning site - but I think I'm starting to lose hope now.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)

Update - I think I've sent a message. The trick seems to be that you have to name your conversation before you can select it to write anything. Sorry, but too complicated by far, if we have any hope of ill and brain-fogged people being able to contact us for help.

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)

Yes, the messaging is now working again but there seems to be no way of knowing when somebody has written to you.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Good, but this evening Ithere was no window in which to write a message, if you want to start a new one.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Also, people need to be able to e to join the site.  If they can't easily, they seem to write to me ...........

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Now that I've sent a message, the word 'messages' has appeared underneath the menu bar. I thought this might be a quicker way to get to messages, instead of needing to go to my Account, especially as there seems to be no other way to know whether you have received a message than going there and looking.  Unfortunately, clicking on the 'messages' word, results in a message saying 'Access denied. You are not authorised to access this page'.  Oh well...

Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11)

Kent, I logged out and the same page came up as when I made a second account about a year or so ago.  I have a few spare email addresses go I might go so I could try it again, but I don't want to cause Mac any trouble, so I'll just pass the message on.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

One thing though: do you not think that maybe a slightly more difficult captcha should be used?  There must be a few spambots just programmed to trawl the web and tick all the little windows that tell them to.  I would have thought! 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Kent, one of  my friends tried to join for the second time, but was denied because he was using a different name but the same email.  Now the place at the top on the left has vanished again!

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

An email address can only be used once for an account on the site.  The same for a user name.  If the friend is already registered on the site with their email address then they should go to the reset password page: http://cpnhelp.org/user/password .  The link to this is available from the login block on the front page, which is only visible when logged out.

Mac joined him yesterday and he posted this morning, so no worries.

 

 

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.