Hi, I have a low porphobilinogen test after the Zhang protocol and Wahls diet to treat CPN(Chronic Fatigue Syndrome)) for 2 months. Awful symptoms led me to have this test done. Is this porphyria?
Porphobilinogen concentration was below sensitivity of the assay, 0.5 mg/L. Therefore the result was <1.1 mg/g creatinine. This result was calculated by dividing 0.5 mg/L by the creatinine concentration in g/L
Interpretation: Porphobilinogen (PBG was below the normal range). The clinical significance of decreased PBG is uncertain. However, it has been found in a few cases of aminolevulinic acid dehydratase deficiency porphyria (ADP)
These results have been flagged as falling outside of reference interval, which are not mentioned in the interpretation.
TomF - 50 yrs old, diagnosed CFS Jan.2000, CPN IGA 1:32 IGG 1:128 feb 2017