So Raven, I get from what you write here that the effect of the nitro that is useful is the vasodilitation to allow areas of the body where restrictions may exist to experence more blood flow and in the case of the tendonitis, which is an area of reduced blood flow, this could be beneficial for healing.  Also allow abxⁱ to get to areas that are hard to reach due to the anatomical restraints.  

I guess those who have a tendency to headaches might be suseptible to that effect to a greater extent.  

Thanks for sharing your experience, I will watch for your update on this one.

Qcam, you have some good responses here.  Did you get any advice from your provider for a mild pain reliever and which one is suggested by him?

I find this topic of great interest Qcam, thanks for asking these questions.

Louise

I thought I would mention that while I did not take the pill or do the patch, I did try a NO product 2 years ago when I was still going to the gym.  In my case, I used it for about 4 months and then stopped using it.

What I used was a product called "NO-Xplode".  It's a NitricOxide product with creatine for use in increasing energy during weight training.  It works.  However, it made me dizzy when I used it, made it difficult to focus my eye sight, so I stopped using it.  But, it does increase energy and someone with chronic fatigue might find it useful.  Its something you can try without a prescription.

I have been seeing Dr P and getting nitro pills and yet to start the patch. I don't even notice the headaches after a few minutes. The headache remind me of the headaches I had when quitting coffee a couple years back. Kind of die-off symptoms from quitting caffine.

Dr P is  the forth Dr I have seen for CFSⁱ and seems to be the first guy to really help me at all. I would keep working with him and stick to his proticol or at least discuss. He has many tricks and things to try to offset your concerns and symptoms.

Raven,

Thanks to this site I found a great doctor and feel I am on the path to improvement! Always a pleasure reading your positive posts to boot raven! I'm a big fan of yours ;O)

 Cam, I did have an upset stomach from anti-biotics and maybe uridisol. But that seems to have subsided. Did I mention I also have CRS (can't remember S@#T?)

 Mark

Jodie, I also go to Dr. Powell and think he is outstanding. Having said that, I get no help from the nitro and cannot tolerate even a small piece of the patch. I just have a constant 24/7 headache on top of the headache I have now had for 3 years.

How was your head pressure diagnosed? I developed something 3 years ago that seemed like menningitis and vestibular nerve damage. I have never recovered and now have constant headache for 3 years. I have never had headaches prior to this in my entire life. MRI and lumbar puncture and eye exams have failed to uncover any cause.

 Also, how were you treated for babesia and do you know if you have cleared that?

I have relapsed with babesia after treatment in 2003. I now wonder if this is the cause of the ongoing headache. I also have night sweats. These have stopped since I started low dose naltrexone about 2 months ago.

Paula

I have seen Dr. Powell and was given a batch of supplementsⁱ along with the nitro patch.  I prefer to add one med/supplement at a time to see how my body reacts.  It does well with morning-only B-vits, I cannot sleep with injections.  Ioderal makes me manic as does the Nitro (no headaches, i just couldn't sleep); this is not helpful given my ME!  The glutathione cream also created too high of an energy buzz. My body seems fine with the other supps.  I am increasing Vit D by only 2K units per 3 months with a blood test before increasing the dose; another physician does not want me over bld serum of 100. 

Dr. P has his own theories, but i wish he could have explained chelation and methylation protocolsⁱ.  Dr. Bell is also a big proponent of NO.

Good luck with the protocol. 

VF