Newbie

Submitted by claudia on Mon, 2008-03-10 09:02
Hi, my name is Claudia and I was diagnosed with RA several years ago.  After doing some research and finding out about the connection between certain autoimune diseases and  bacterial infections , I decided to get tested for Cpn-which tested positive.  I am a little scared about taking so many antibiotics, but I guess if this treatment works, then it's worth it!  I would like to know if you guys have a list of doctors who provide this treatment around the Miami, FL area.  Any help would be appreciated.

I'll send you some names in a Private Message but to be truthfull there are not many doctors known to prescribe.   Most patients either go to consult a few or manage to get their doctors to talk to Vanderbilt.   The doctors on the list that I have may, I repeat may be able to help, but they may need to be educated.

You need to be confident yourself that this is what you want.   If you are frightened about taking antibiotics it is going to be difficult to convince a doctor to give you the prescription.

You may need to read a bit more about the rationale and the discussions that have  taken place here so that you feel more comfortable with the protocol.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Claudia, Have you seen any discussion of this on Road Back? One of my friends with RA, who has done this protocol, told me there's a lot of info on doctors and treatment there, as antibiotics are more 'mainstream' for RA, believe it or not!!! (If you don't know what I'm talking about, I can ask her for specifics at work later this week. She's touring China right now.) My friend says she now has 'no numbers', when her RA test numbers were quite high before. (I don't know how that's done, so you probably know more than I do on that subject). She's also stopped taking her prescription RA anti-inflammatory drug. She was so excited about this, as she was ready to leave her job, on disability, and now doesn't need to. Welcome!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Welcome Claudia..

There is alot of information here to familiarize yourself with.  Taking the abx that we do here is the only way we know of right now to eradicate the CPn.

Hopefully, you will be able to put the science together from here your doc will want to see to prescribe for you.  What doctor wouldn't want their patient to have a chance at wellness?

Best wishes for your journey, keep us posted.

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 2-6-08 7th pulse 2 X 375 mg 2day+

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Hi, I know this is a bit scary and Doctors will think twice or more about prescribing. I've just posted on my blog about my GP jumping through hoops trying to decide which way he's going to go with it.

Thing is, there are lots of medical conditions that do have high doses of long term antibiotics prescribed. My brother-in-law has something, name escapes me at the moment, but it makes his legs swell up to gigantic proportions due to fluid. He's permanently on abx so it's not unknown, and last I looked he hadn't turned into a bug eyed monster, in fact he's doing really well.

The reason Docs get worried as this is not a widely known protocol and they don't want to get their backsides sued. In the UK, and I suspect in the US as well, there are lists of approved treatments and this isn't one of them. Until it is, we'll have trouble getting medical backing.

There is loads of support on here. If you have questions or concerns, don't be afraid to ask, you'll get sensible answers from people who are walking the walk.

 

Berkshire, UK. Diagnosed MS Feb 4th 2008. NAC first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April