Hello everyone-I'm so glad to find this site and others who understand what I'm going through! I have suffered for at least 17 years with various illnesses that I now see may all be related to CPn. My most recent addition to the plethora of illnesses I've experienced is severe tinnitus with 5-10% hearing loss. I recently had to purchase hearing devices, $3000 worth to drown out the ringing noise as it was driving me insane, literally! Finding out about CPn has made me feel like I have found a gold mine, thanks to my doc, (MD and toxicologist) that knows how to think outside the box. Sure has given me renewed hope. I actually found out I had it after my friend was diagnosed with it. I had referred him to my doc as he had been experiencing CFS and ADD symptoms.
I was referred to this Doc as a last resort, January 2006, just before going to Mayo Clinic, and was sent to him for FMS. He diagnosed my IBD within 10 minutes after my seeing at least 28 specialists (over the course of just a few years) and started me on the special carbohydrate diet which began my actual healing process. September 2006 I found out I had EBV (titers really high) and was put on leave of absence from work and bed rest for 3 1/2 months. Forced my way back to work at the end of January 2007 just to survive financially.
Anyway, I went with my friend as a support to see my Doc. After discussing my friend's diagnoses of CPn and Mycoplasma Pneu, I mentioned I was having another bout with CFS. As an afterthought I asked doc did he think I should get tested for CPn too? He said I should, and low and behold I have it much worse than my friend! and he has a bad case of it himself. Doc said I was probably the second highest levels of all his patients ever. By the way, is anyone having relationship issues due to the symptoms of CPn?
I started NAC 2 weeks ago and was suppposed to have already moved from 1 to 2 a day, but it's extremely hard on my body causing me to feel like I have the flu. I'm having to take pain medicine just to deal with all the toxins floating around in my system right now, as well as extreme headaches. I work full time, am the sole provider in my home and have felt seriuosly challenged with every day life and just praying I make it through each day.
My difficulty with memory loss, lack of concentration, extreme fatigue, depression, anxiety and sleep issues have really challenged my performace on the job, which is something I've never had to deal with. I've always done well regardless of the type of job I have had. I am a psychologist and due to my illness, I had to close my private practice and stop traveling the U.S. conducting workshops over 2 years ago, and also take a much less stressful job just to survive.
Luckily, my parents have been a great support emotionally and financially, helping me to make ends meet. I worked a second job for the past 9 weeks, 2 nights a week, just for the additional money and it about killed me! My saving grace was that I REALLY like teaching college students or i don't think i could have pulled it off. Will not be teaching after hours now again until maybe January.
In the last 2 1/2 years, in the midst of my debilitating illnesses, I have also gone through a divorce, had to file bankruptcy (I had impeccable credit), lost my car and other possesions, and lost my best friend amidst other major life crises and changes. There were times up to the last 2 months or so that I truly believed not to live would be better than what I was going through. I feel comfortable saying all this because i know there is bound to be others of you who share a similar story.
Doc says I may not be able to increase NAC to twice a day, so I will probably be adding the doxycyline pretty soon. He told me not to start it until i have taken the NAC for a full week without it making me feel bad. Not there yet, but can see a little improvment.
How long has it taken some of you to fully rid your system of the CPn and Mycoplasma Pneu and feel well? Is there really hope that I might actually feel "well" or "normal" in the future? Clearly i think i haven't felt that way in at least 12 years.
Thanks for listening. I look forward to hearing back from some of you.