27 Apr 2018

New to CPN - Lab Test Results


Hello Everybody,I am very new to CPN.  Just learned about it last week after a visit my my infectious disease doc.  Honestly, I have never heard of it before and didn't know it existed.I have been suffering with chronic symptoms for the past couple of years.  Ongoing achiness in the rib cage area, unexplained fevers, fatigue has become the norm for me.  Then, in October I suffered a heart attack due to a 100% blockage.  I am 43 years old and had no risk factors - cholesterol was low, never smoked, little family history, good phyiscal shape and low body weight.  Meeting with my doc last week


It sounds like you have a good doctor, and I'm glad for that. I hoped you recovered from the heart attack without cardiac muscle damage. Cpn infection is difficult to diagnose from blood tests.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Thanks everybody.  I am waiting to hear from my doc on the lab results.  Of course I received the lab results on Friday just before the weekend and have not heard from the doc yet.  I am anxious to hear his thoughts.  My follow up isn't for another four weeks so I am hopeful to get some word from him sooner than that.

sdmac99,  A few thoughts.  IgM's usually only elevate with the initial infection and then after a couple of months return to normal never to return again, even with reinfection.  Both IgG's and IGA's elevated are a strong marker for a chronic infection but elevated IgG's can be as well.  The antibody test for Cpn is touchy, false readings from cross reactions, so another one several months later is wise.  The antibody test is just suggestive not absolute.A test with the reaction from NACi is most likely one of the best tests for Cpn - NAC flu, have you tried that?A vitamin Di test is very important and a result that is low may be suggestive of a immune system problem.Care with antibiotics if a heart issue is possible, although rare it does exist.  Read about "Long QT Syndrome" for one example. If you want to fish a little more test for:EBVHHV-6Tetanus Antitoxoid Levels (overall immune system test used often to see a Th2 response) 

Cpn, Mycoplasma, Chronic EBV, M.S.(MRI, Spinal Tap-greater than 5 oligoclonal bands and VEP), PANDAS(OCD). Wheldon CAP (started 12/08), Azithromycin/Clarithromycin(12/09), Lithium, Lamictal, NAC(2.4g/day), D3(15,000IU/day)