Nerve Pain

Heloo I am new here,

. Been having terrible nerve pain and tremors for over a year . MRI and scans show no neurological damage or signs of MSi. CPNi IGgi 2.41. Dr. started me on NACi ,nerve pain got worse,plus sore throat and fatigue. Start doxyi next week. Just needed some feedback or advice here. Just like most here pain is unbearable at times. Stinging like pain all over. No neuropathy detected at Vanderbilt. Every test they have to offer came up neg. But my Dr. tested for CPN and this was my result. Any advice would be welcomed.

 

Thank you,

 

JD

Hi JD, welcome.

Cpni can cause nerve pain. If you are getting a reaction form NACi, you probably are killing Cpn elementarty bodies.

I would also look into Lyme and the co infectionsi that can accompany it. Igenex has the best tests.

That being said, be sure to take lots of B12 to help your nerves regenerate. Be sure to check that you are taking adequate calcium and magnesium.

I have been treating for Cpn and Mycoplasma Pneumoniae for 5 years. I have rid myself of most of these infections but found out late last year I am also dealing with chronic Lyme, bartonella and babesia. I went off the antibioticsi last month and I'm working with a naturopath to boost my immunei system (this seems to be working so far) with:

 

Transfer Facter Multi Immune by Researched Nutritionals

Immunoplus by Total Health Enhancements

Epicor

For the bugs, I am taking Byron White Formulas A-BART (for Bartonella)

I have also found Lauricidin (monolaurin) to be very strong for viruses and bacteria. I highly recommend it.

For nerve regrowth, I have read that Niacinamide in high doses is very good to protect nerves.

I didn't see your test results posted here, BTW.

Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Hi JD~   I also have burning, sparking, crawling, zinging nerves all over my body (including in my eyes).  No neurologist knew why.   I have chronic viral infectionsi and a chronic Cpni infection (indicated by very high antibody titers to various pathogens).   I have treated these pathogens and have felt better health wise (but not totally well), and better nerve wise. 

This website might help you identify other pathogens that may also be playing a role in your nerve pain.  http://chronicfatigue.stanford.edu/

Good luck.  I hope you get some relief.  I totally understand your pain.

Best, Timaca

on valtrex 500 mg tid

http://whispersfromthefather.me/

 

 

 

 Thank you so muh for your response. My chlamydia antibodies were 2.41 with positve being greater than 1.09 . I was negative for lyme and Bartonella. The labs were tested by labcorp, Birmingham, Al. I will still check into the site you suggested. Thank you so much.

 

JD

  Timaca,

  Thank you so much for your reply. It soothes my soul a little to hear someone say that the nerve pain has gotten better. I did test neg twice for lyme . But again it seems my Chlmydia antibodies were through thr roof. Thank you so much for responding. You and Raven both. That really means a lot. I go back to my Naturopathic Dr. tmorrow. Ever since starting the NACi it has been wrse , but I guess that is a good thing.

 

God Bless,

 

JD

JD, you are lucky to be working with a naturopath! I forgot to add that Epson salt baths can help over stimulated nerves. Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

JD,  your Cpni antibodies are not really high.  I have antibodies in the 5-7 range for other pathogens (Parvo B19, CMV for example), and my doctors see that as past infection.  Both of my ID doctors would not be concerned at all with a Cpn result of 2.41.  However, since you have a reaction to NACi, perhaps there is something going on.   Or perhaps you caught a cold at the same time you started NAC.

Virsues can also cause nerve pain and neurological problems.  So, get checked out for viruses using the labs suggested on that website.  You could also consider getting retested for Cpn at Focus as suggested on the Stanford website.  http://chronicfatigue.stanford.edu/infections/chlamydia-tests.html

My approach is to first rule out the obvious problems.  See:  http://chronicfatigue.stanford.edu/overview/diagnosis.html     Then, if those come back normal, test for as many of the infectious pathogens that you can and treat what looks most obviously wrong based on antibody titers.

Good luck.  Keep us posted.   I truly hope your nerve pain improves.  I know it can be excruciating.

Best, Timaca

on valtrex 500 mg tid

http://whispersfromthefather.me/

 

 

 

Hi JD

I also have to deal with very severe case of nerve pain all oer my body... I noticed that the pain gets worse if I cheat on my strict diet meaning gluten free, sugar free... I tested positive for lyme  through igenex though... 

However the abxi do not seem to help this damn nerve pain... 

Diagnosed with MSi on March 2009, started CAPi on Jan 2010. Doxyi 200mg- Roxyi 300mg- NACi and all major supplementsi.

JD, I am interested in the mode of expression of your lab results?  It would appear that you are in the usa and I have had several antibody titers drawn for CPni and the expression is like this.

My Chlamydia pneumoniae Differentiation Antibody Panel (IgGii. IgM, IgA)

Reference Range:

IgM < 1:16 Antibody not detected

IgG < 1:32 Antibody not detected

IgA < 1:16 antibody not detected

 

IgM titers of 1:16 or greater are indicative of recent infectionsii.  However, anyt-chlamydial IgM is very corss-reactive  and may demonstrate titer to more than one species.

IgG titers of 1:32 or greater may indicate past exposure to a particular species.  Titers of 1:128 or less may be due to cross-reactive antibody or a non-specific stimulation of chlamydial antibody Infectiown with a particular species usually yields antibodies of a higher titer than with non-infecting species.  IgG titers in recently infected individuals are usually greater than or equal to 1:512.

IgA titers may be elevated in recurrent or chronic infections and may be helpful in identifying the infection species of Chlamydia when cross-reactive IgG is present.

My results were IgM - <1:16  This is within In Range Reference range Antibody not detected

                            IgG - 1:512High This is out of reference range which is <1:32

                            IgA - 1:512Hhigh  This is out of reference range which is <1:16

 My dxii is CFSii and I had a high bacterial loadii although the IgM shows not indicative of recent infection.   My IgG and IgA indicated CHRONIC infection as I see it.   CPni antibody results as such indicate t problematic for a persistent chronic intracellularii infection. 

Depending on the target sites of CPn in your body these results could all come out negative and it could still be a symptom producing problem for a person. 

This is the point here in not relying on lab data to dx as negative for CPn, and the point of emperical treatment.  My result is somewhat unusual because I recall several episodes of a respiratory infection that in retrospect could have classified for the Dx "walking" pneumoniae for which I did not seek antibiotic therapy ( in those days I was pretty anti-antibiotic, thinking that the body would triumph over what ever, I was sick but able to function.  I hear folks like this coughing for extended periods of time and now think CPn.)

However, many of us here using and improving on CAPii have been ill with CPn and or other persistent chronic intracellur illnesses for many years.   Some of us 20 - 30 years, or a lifetime.

May you heal well.  However once there is chronicity with intracellulari bacterial infections, quick fixes are the rare exception (we would all like it that way but) and EXTREMELY unlikely. 

Would you be willing to start a blogspace and tell a bit about your journey in to disfunction and fatigue as well as your trip through the current medical system and what has been ruled out.

I disagree that your results for CPn are necessarily insignificant as Timaca implys.   Of course she and I are at odds around several topics on this website just for the record.   

I have been helped dramatically by CAP and she has not done CAP in the past three years Timaca has done only monotherapy for CPn per her reports on her blog over time.

So if you share your story in a blog and also copy into your blog the report rusults in total that you have (if you do not have the report it is your legal right to request it and to be given it for your own personal medical record, this may not be easy to get and to do it in writing and certified letter is always more official lest you spend months dickering around on the phone and getting no where, you may be helping yourself and others to a variety of perspectives to consider.

Certainly you may have co-infections may here do.    I find Timaca's pronouncing you not affected by CPn in any significant degrees, a comment that needs an opposing perspective, just for the record and your consideration.

Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

I have to agree with Louise on your test results.  Mine were not highly positive initially either.  But they went up after I was retested two months in the CAPi.  The doctor said that is not uncommon as the immunei system begins to respond.  I have seen unmistakeable progress while on the treatement.

And Timaca's suggestion to be tested for other common co-infection viruses is a good one.

Started CAPi for Cpni on 11/14/10 - Per my doctor, paused Abxi 5/18/13 - NACi, T3, St Johns Wort, B-complex, B12, Folic Acidi, Vit C, Vit D3 (8,000/day), Vit E, Astragalus, Chlorella, Lauricidin, Chelation pulses with Alpha Lipoic Acidi and DMSA

Hi, JD. I had shingles a few years ago, and took Valtrex for several months and started Lyrica for that and for fibromyalgiai (pain all over.) Before I started CAPi, my hands had a tremor. You have my deepest sympathy and empathy.

 Is your doctor that diagnosed you with Cpni familiar with the Combined Antibiotic Protocol? Since he knows about NACi, I have hopes that he does.

 Cpn can shift itself into different forms, and that is why a combination of antibioticsi are taken at the same time. Taking only one antibiotic at a time, such as one of the tetracyclines (doxyi, mono), allows the population of Cpn in us to become mostly drug resistant. That is why we take monocycline plus azithromycin at the same time. Plus the Cpn converts itself into the cryptic formi those medicines won't affect. To kill the cryptic form we have to take metronidazolei or tinidazole. To kill Cpn we have to take a combination of antibiotics kill all its life phases so nothing is left behind to re-infect us and we don't get drug resistance.

I now take Lauricidin that kills Cpn and retroviruses and whatever else is lurking around inside me.

I got better after three years on CAP, and I hope you do, too.  We will be here for you. At the top of this page you can find Getting Started, the Handbook, and more to read and read.  If you decide to treat your Cpn infection with the Combined Antibiotic Protocol you can post how you are doing. Most people have to start real slow, like it sounds like your doctor has you doing.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

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