27 Apr 2018
Author
csmunson
Title

Need to understand Cpn test results and find a Dr. in Florida (or Georgia, SC, Alabama)

Body

Just got my Quest Lab results for Cpn: IGG 1:512, IGA 1:256 and IGM 1:20.  In the scheme of things I have no idea if these scores are mild, moderate or off the charts.  Can someone help me understand these test scores better. Also, I feel I need to find a Dr. who is knowledgeable with the Stratton protocol.  My Dr. (a CFIDS/FM dr.

Comments

csmunson

Welcome here...I was never tested, but have done five years and will be "done" soon.   I am up walking around breathing every day.

The only comment I have about abx (antibiotics) is say"thank you" and "I accept".  Then hoard them and when everything is right - you have read here, learned what you should know, have acquired the supplements and are taking them (do this now) - you will have your ammunition.   Maybe by then you will have a doctor who will help you do this.  Every single one of those doctors is a hero.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

The values you listed for IgG and IgA look somewhat abnormal.  The IgM value does not seem right, are you sure that is what it lists?  Look at the Quest Lab test result and there should be an index that goes with those values as to when they are out of range or abnormal.  There are other tests that may help along with the Cpn antibody test.  It is good you have a doctor trying to help you, remember this is all new and doctors cannot know everything and it seems you are getting close.  There was no answer ten years ago.

What are your symptoms, how long? 

History of infections?

Have you tried the NAC test? 

Cpn, Mycoplasma, Chronic EBV, M.S.(MRI, Spinal Tap-greater than 5 oligoclonal bands and VEP), PANDAS(OCD). Wheldon CAP (started 12/08), Azithromycin/Clarithromycin(12/09), Lithium, Lamictal, NAC(2.4g/day), D3(15,000IU/day)

Just started taking NAC today.  My doctor never mentioned it but when I read about it here I ran out and bought a bottle.  I'm already taking many of the supplements on the protocol list. 

My infections are EBV, HHV-6 and Cpn.  Was tested positive for Lymes Disease 2 yrs ago ( but those tests are pretty inaccurate) and spent  4 weeks in a hospital in Mexico in Feb this year being treated for that (another disease most dr's know nothing about) but not sure that was the real problem or if I was cured.  The latest dx is CFIDS/Fibromyalgia.  It's been one big merry-go-round for over 2 yrs.  

My biggest issue has been total body pain to the point I was walking with a cane, couldn't even dress myself, slept in a chair sitting up for 1-1/2 yrs and would have ended up in a wheelchair if I hadn't turned the corner.  The muscles in my back were so contracted that I ended up with a crooked spine and pelvic bone.  I am now going to a wonderful chiropractor who has helped me immensely.

 

csmunson, I am sure you are on the right path with all the information available here. Your start on the NAC was a good start. Make sure you read more about cpn and how to kill the diffrent life cycles.

 We are here to help you any way we can.  Some are pain free and living normal lives once again.

 Hope is a good thing. 

started Wheldon cap 4/21/08 for Cpn, CMV, EBV, CFS. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplements,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 

Abnormal antibodies for HHV-6 and EBV do not necessarily mean an active infection, what tests did you have for them?  HHV-6, EBV and Cpn abnormals also hint at M.S.. 

Do you have any body movement issues and / or mental problems.  Ever have an MRI or spinal tap? 

How long have you had the symptoms?

As mentioned above any history of infections?

Effects from taking antibiotics? 

Cpn, Mycoplasma, Chronic EBV, M.S.(MRI, Spinal Tap-greater than 5 oligoclonal bands and VEP), PANDAS(OCD). Wheldon CAP (started 12/08), Azithromycin/Clarithromycin(12/09), Lithium, Lamictal, NAC(2.4g/day), D3(15,000IU/day)

Symptoms began 7/01/07- Started with pain in my neck.  Shortly after, the pain was across my upper back, then proceeded down my back, then into my hips, then the knees, then down the legs to feet and ankles, then down my arms.  The progression was rather fast.  My knees got huge and could hardly bend them.  The pain seemed to be in muscles, tendons and joints.  The Dr. tested me for EBV and the score came back off the charts (this particular test 190 was normal and my score was 3,987).  Dr. said if I took amino acid peptide injections from England it would clear up.  Each shot was $300 with no relief.  Then in 9/07 tested positive for Lymes at Central Florida Research.  Continued to go downhill at breakneck speed.  My muscles were wasting away and I was in so much pain I couldn't move an inch without moaning or yelling.  Spent months trying to find a dr. who knew anything about Lymes.  What a nightmare.  My husband was on the phone all day calling all over the U.S. and on the internet until all hours of the morning.  Went to a dr. in Oregon and stayed 3 months, getting IV's 6 days a week.  Slight improvement and I mean slight.  Left there and went to a LLMD in new Mexico. Did his $5100/week protocol- again nothing.  Then talked to a Dr. in California  who was another Lyme specialist but had to go across the border for tx.  Was on IV's, had blood transfusions because I was sooo anemic and had live cell implants from New Zeland.  Whew!!  Still had pain when i left 4 weeks later.  Continued to search trying to figure what was wrong with me.  Went to a Chronic Fatigue/Fibro Center and that's where I just had these infection tests done thru Quest Lab.  Of all the tests I've previously had done and all came back negative, no one ever tested me for Cpn, HHV-6, etc.  While I was in GA being treated at the Fibro Center, I had a subarachnoid hemmorhage in my brain and ended up in ICU for 3 days.

I don't know what you mean about abnormal antibodies for these tests but not necessarily mean active infection.  I thought if it shows up on the test, that means it's  still in your body.  The other tests on the same infection panel showed antibodies but said negative.  These didn't.

 As for history of infections,  don't know of any until 7/07 for EBV.  (that's all they tested)

As for current symptoms, I have very mild brain fog (but that could be because of age, ha!ha!) and constant pain in my neck and back which improves every week since going to a chiropractor.

Last answer, I've never taken antibiotics.  Was only going to take them since my Dr. said I needed them for Cpn.  I've never been one to take Rx drugs of any kind.  However, I figured if I had this stealth bacteria I was going to do whatever it takes.

Sorry this is so long.

Welcome. Good thing you found this site. Just a note to let you know Lauricidin is something you can take for viruses. It is monolaurin--a type of fat that interferes with viral replication. I just recently tried it and had some symptoms of die off--so it was affecting something.

here's the link:

http://www.lauricidin.com/

Good luck with everything.

Raven

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath

Very good description.  The immune system is very complex and new things are popping up every day.  Antibodies mean different things with different bugs.  I have antibodies that are off the charts but had the bug 45 years ago and it is positively not active now.  Showing the antibodies you list for Cpn it is very likely you have it and positive that you have had it.  Tie this with a reaction to NAC and even more likely.  IgM's for Cpn only come out at the initial infection and go away after a few months never to return.  High IgG's and IgA's are a strong indicator it is active up to at least several months ago.  After the infection is gone the IgA's take a few months to calm down and the IgG's over a year. 

 You might have very high IgG's to EBV and it does not mean you have the infection just exposed to it at one time as almost everybody has.  High IgM's hint more that it is active now.  HHV-6 is the same.

 If you can take a vitamin D-3 blood level test as well as a Tetanus Antitoxoid test, both are very common.  If the money is there add a Natural Killer Cell % test as well.

Cpn, Mycoplasma, Chronic EBV, M.S.(MRI, Spinal Tap-greater than 5 oligoclonal bands and VEP), PANDAS(OCD). Wheldon CAP (started 12/08), Azithromycin/Clarithromycin(12/09), Lithium, Lamictal, NAC(2.4g/day), D3(15,000IU/day)

Hi CSMunson~   I have similar antibody titers to yours for Cpn (except my IgM is negative).   I am being treated for Cpn, and also for various viruses.  Very high antibody titers to viruses may indicate active, chronic infection, so it is important to check into those too. 

I have made significant improvements in my health by treating HHV-6, EBV, HSV1, VZV and enterovirus.  We've managed to beat back the HHV-6, EBV and VZV.  We are working on HSV1, enterovirus and Cpn.

Best, Timaca

on valtrex 500 mg tidhttp://whispersfromthefather.me/   

 Hi CSMunson, Wow,thats quite a story. I have FMS/CFS also, and it has been awful. Do whatever it takes to get your life back, and don't wait another day,good luck on your road to recovery. Best,Patti

FMS,CFS, 15 years,CPn antibodies,mycoplasm pn.,leison on posterior pituitary. Started CAP end of Dec. 08 mino.100 daily, azith. 250 MWF all supplements,compounded T3 therapy.