Cpnhelp.org

Yes Amoxicillini is safe to stop. If you want a substitute which will kill the EB'si but without causing gut problems then give NACi a try. That's what most people here use.

With Cpni, generally the sicker you are the more dietary restrictions you may need to make. Some people can get away with eating anything. But speaking for myself personally these are the foods that Cpn loves (I know this because I get an almost immediate inflammatory reaction in my left throat area):

Sugar, caffeine, aspartame (in liquid form), Cheese (probably because of the tryptophan), Butter (a bit is fine, but not too much).

Cholesteroli is a double edged sword for me. Yes keeping it low will lead to cpn die-off (e.g. I believe cholestyramine produces die-off this way). But on the other hand your body needs cholesterol to produce hormones, and so those of us who are e.g. hypoadrenal need to not let cholesterol drop too low.

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Hunter: Don't think - experiment

You don't say anything about what her reactions to the CAPi have been, which would help in trying to make some educated guesses for you. If you can get NACi in China she should try that and see what reactions she gets. The white coating on the tongue could be from yeast since Amoxicillan kills so many different bowel (and mouth) flora and can upset the balance for yeasts and such. The rash on the hands could be allergy, yeast/fungus, or could be EB'si in the skin dying. If she gets the same rash with NAC then you know it's more likely to be EB's, since NAC has no effect on yeasts or other bacteria as far as we know.

Of the food issues, Cpni thrives mostly in iron-rich and tryptophan rich environments in the lab dish. But iron is necessary if levels are low, so it's not to be entirely avoided.

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Thank you very much Garcia and Jim. That is very useful information.

She did have strong reactions to the CAPi ( fever, chills, headaches, night sweats, extreme fatigue) but no skin rash and white coating on the tongue, only when she started taking Amoxicillini.

I will advice her to take NACi instead of Amoxicillin

Thanks again.

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Gino, China. Cpn and Mycoplasma pneumonia. Joint/muscle pain  CAPi 7/28/07 - march 2008. Supplementsi: NACi, lyprinol, selenium, sodium ascorbate, chelated boron, calcium/magnesium citrate, apple cider vinegar, vit d3. Asymptomatic since june 2008

My view is the skin rash is normal (many of us went through a variation of it in early treatment) and taking a daily probiotic is a must, to combat fuzzy-tongue.

Still in China?! How are YOU feeling?

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi MacKintosh!

I am feeling great. Thank you for asking and thank you for the advice. Hope you feel great too.

Mack, i am Chinese, so yes, i am still in China, LOL.

Wish you all the best. Take care

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Gino, China. Cpn and Mycoplasma pneumonia. Joint/muscle pain  CAPi 7/28/07 - march 2008. Supplementsi: NACi, lyprinol, selenium, sodium ascorbate, chelated boron, calcium/magnesium citrate, apple cider vinegar, vit d3. Asymptomatic since june 2008

Well, yeah, I knew that, but when you said you were on the road at one point, I assumed it meant from here (U.S.). Never assume...    We really are an international bunch, aren't we?!?

So glad you're still doing well.  Now you can put your energy into helping out that friend of yours!

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Jim, about NACi: i assume that NAC is important in the treatment of Cpni because it raises glutathione levels. I have read that glutathione is the most powerful intracellulari antioxidanti. It detoxifies, reduces oxidative stress and blocks viral production. Wouldn´t intravenous glutathione be more effective than NAC in the treatment of Cpn ( and other intracellular infectionsi)?

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Gino, China. Cpn and Mycoplasma pneumonia. Joint/muscle pain  CAPi 7/28/07 - march 2008. Supplementsi: NACi, lyprinol, selenium, sodium ascorbate, chelated boron, calcium/magnesium citrate, apple cider vinegar, vit d3. Asymptomatic since june 2008

NACi is important directly because it reduces the cysteine bonds that make up the cell wall of EB'si, exposing them to the immunei system so they can be killed. This is the main use in the CAPi. Amoxicillan does the same thing to EB's.

NAC will also help increase glutathione, but that's a secondary effect as far as the CAP is concerned. Glutathione supplementation can be helpful for a variety of reasons, but doesn't kill EB's.

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

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Gino, China. Cpn and Mycoplasma pneumonia. Joint/muscle pain  CAPi 7/28/07 - march 2008. Supplementsi: NACi, lyprinol, selenium, sodium ascorbate, chelated boron, calcium/magnesium citrate, apple cider vinegar, vit d3. Asymptomatic since june 2008

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

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Gino, China. Cpn and Mycoplasma pneumonia. Joint/muscle pain  CAPi 7/28/07 - march 2008. Supplementsi: NACi, lyprinol, selenium, sodium ascorbate, chelated boron, calcium/magnesium citrate, apple cider vinegar, vit d3. Asymptomatic since june 2008

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Hi,

I don't see a mention of the NACi for your friend, it is a very good liver support.  Personally, I take every supplement on the list except Evening Primrose.

I don't know why Amox is added when friend already takes the Doxyi, Azith & pulsing flagyli, which is the recommended Wheldon protocol?

You don't mention if friend is routinely taking the toxin removers.  Friend will need to get these increased to where sxi of die off are handled by the body better.

The rash is a reaction I have experienced to 80% of my body with heat.  My face puffed up & so I iced it, took epsom baths & applied lots of Calamine.  It subsided.

Blessings for both your journeys to wellness.

peace

r

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 days

Hi Ruthless1!

Yes, i have recommended my friend to take NACi and she has already ordered it from the internet.

Amoxicillini was added to kill the EB´s. Here in China Amoxicillin is very cheap and OTC, so it´s easier to get than NAC, which has to be ordered from the internet (more expensive), and it´s my understanding that it´s ok to use Amoxicillin instead of NAC ( and it probably kills more EB´s than NAC).

About the toxin removers: my friend takes mega doses of vit C + lots of garlic and cilantro (which removes heavy metals and toxins). Shouldn´t that be enough?

Thanks for sharing your experience

Take care and blessings to you too

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Gino, China. Cpn and Mycoplasma pneumonia. Joint/muscle pain  CAPi 7/28/07 - march 2008. Supplementsi: NACi, lyprinol, selenium, sodium ascorbate, chelated boron, calcium/magnesium citrate, apple cider vinegar, vit d3. Asymptomatic since june 2008

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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Gino, China. Cpn and Mycoplasma pneumonia. Joint/muscle pain  CAPi 7/28/07 - march 2008. Supplementsi: NACi, lyprinol, selenium, sodium ascorbate, chelated boron, calcium/magnesium citrate, apple cider vinegar, vit d3. Asymptomatic since june 2008