I am writing again in the hopes of some advice as i didnt receive much of a response.
51 yr old australian woman, with chronically remitting, unexplained symptoms ie joint pain, headaches, utis, nausea etc
I re developed severe thoracic joint pain with headaches late April 17
Stem cells ( had a bad cold) in may. Mild asthma like symptoms phx childhood asthma
2 days later, 1st episode rapid af
2 days after this, respiratory symptoms. Initially thought to be asthma exac by a respiratory infection. Didnt respond to medication
Symptoms are..low grade fever, cough, shortness of breath especially on exertion, chest tightness and a feeling of suffocation.
Fever responded to keflex.
Lung function normal
Cxr and high resolution chest ct normal
No pulmonary embolus
Holter monitoring atrial ectopics
No further bouts of raf
Stress echo normal
Sputum m/c/s normal
Bronchoscopy normal. Lavage cytology and micro normal
Cpn ( clia , australian biologics)
Myco igg equivocal, igm neg
Fever has settled since ive been using hourly fortified ceftazidime eye drops for a contact keratitis.
Ive tried the NAC and i didnt really notice the nac flu that ive read about with cpn infections.
Should i try to be retested using another method before considering treatment ? My hesitance is due to my fear of worsening my tinnitus with ototoxic drugs. Which test is known to be the most reliable?
I am unable to work ( no income), have limited tolerance for any exertion inspite of normal tests, normal sounding chest, normal 02 saturations etc.
Any advice, support, help would be appreciated at this point.