need advice please

Hi all

I am writing again in the hopes of some advice as i didnt receive much of a response.

Summary:

51 yr old australian woman, with chronically remitting, unexplained symptoms ie joint pain, headaches, utis, nausea etc

I re developed severe thoracic joint pain with headaches late April 17

Stem cells ( had a bad cold) in may. Mild asthmai like symptoms phx childhood asthma

2 days later, 1st episode rapid af

2 days after this, respiratory symptoms. Initially thought to be asthma exac by a respiratory infection. Didnt respond to medication

Symptoms are..low grade fever, cough, shortness of breath especially on exertion, chest tightness and a feeling of suffocation.

Fever responded to keflex.

Tests;

Lung function normal

Cxr and high resolution chest ct normal

No pulmonary embolus

Holter monitoring atrial ectopics

No further bouts of raf

Stress echo normal

Sputum m/c/s normal

Bronchoscopy normal. Lavage cytology and micro normal

Cpni ( clia , australian biologics) 

Iggi neg

Igm neg

Myco igg equivocal, igm neg

Fever has settled since ive been using hourly fortified ceftazidime eye drops for a contact keratitis.

Ive tried the NACi and i didnt really notice the nac flu that ive read about with cpn infectionsi.

Should i try to be retested using another method before considering treatment ? My hesitance is due to my fear of worsening my tinnitus">i with ototoxic drugs. Which test is known to be the most reliable?

I am unable to work ( no income), have limited tolerance for any exertion inspite of normal tests, normal sounding chest, normal 02 saturations etc.

Any advice, support, help would be appreciated at this point.

R

Thankyou

Deb

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Comments

I'm even less qualified

Hi Deb!


I am even less qualified than Janet. For what it's worth, I'll give you my two penneth.


I have been doing this drug regime for a fair while. I have no lab test results and no tangible proof that CPni is the cause of what ails me (MSi). I decided to do this treatment because there is nothing else on offer. The prognosis was only bad and worse. I am certain that doing this drug regime has not made me Ill. If you know of a better alternative, then do try that first. Wishful thinking is not a reliable alternative.


Good luck with whatever you do.


Kindest regards,


G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

Tinnitus etc.

Hi Millyisfluffy,

i have no medical knowledge, at all! What I do know is I have had problems with a vibrating ear drum, MS can cause problems in unexpected ways,  among the other MS issues, but, although it may come back, the vibration stopped, at some point. if you have belief in this protocol, I strongly advise you to take it. Don't expect overnight miracles and DO expect to feel dreadful, for a while, but stick with it and pay close attention to the small improvements, they'll keep you on track and mark the end of despondency. Good luck. Also, don't expect tests to always be correct! Experience tells me they're often wrong!

Jane

MSi symptoms from 2001, DXi RRMSi in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro