NAC flu symtoms?

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Syndicate

Submitted by Arttile on Sat, 2009-06-06 13:26.

A friend of mine has had msⁱ for about 20 years and is on disability. She cannot afford internet service right now or much else (like a doctor outside of Medicaid). I gave her my NACⁱ to see what her reaction would be. She took one pill and felt terrible pressure on the top of her head. Is this NAC flu?

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PPMSⁱⁱ-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPⁱⁱ 3/2/07 - Now (1/10) doing 100 doxyⁱⁱ; 125

As I read from Dr. Wheldon

Submitted by moxy1234 on Sat, 2009-06-06 18:54.

As I read from Dr. Wheldon the only known flu like reaction to NACⁱ is Cpnⁱ. To eliminate coincidence then try it several times, days or weeks apart, and see if there is a reaction each time it is tried and it clears when stopped. This would seem to me to make the test more accurate, more verified by repeatability, but this is just my opinion. Maybe lowering the dosage to lessen the headache. Hope this helps. Maybe friends of hers can help her with the Quest Cpn antibody test cost, it is not too much.

http://www.davidwheldon.co.uk/NAC.html

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Cpnⁱ, Mycoplasma, Chronic Epstein-Barr, M.S. diagnosed by MRI, Lumbar puncture (greater than 5 oligoclonal bands) and VEP. Wheldon CAPⁱ (started 12/08); Azithromycin to Clarithromycin (12/09), Lithium, Lamictal, NAC, Vitamin D3 (10,000IU/day)

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Thanks Moxy. I'm trying to

Submitted by Arttile on Sat, 2009-06-06 22:20.

Thanks Moxy. I'm trying to remember if there are sinuses on top of the head.
I don't trust Quest for Lyme and cpnⁱ is certainly harder to find. They found it in me but that's because my body apparently reacted to the die-off of cpn (due to minocyclin), little remnants in the bloodstream, by blessing me with a raging case of acute bronchitis. When it's intracellularⁱ it's almost impossible to detect.
But your suggestion to try it several times sounds sensible.
See pm.

___________________________________________________________
PPMSⁱ-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPⁱ 3/2/07 - Now (1/10) doing 100 doxyⁱ; 125

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Remember the test for Cpni

Submitted by moxy1234 on Sat, 2009-06-06 22:42.

Remember the test for Cpnⁱ antibodies and Cpn are not the same. I have had several antibody tests done by Quest and they seemed fine as I also found mentioned on this site by others. Quest does have a PCRⁱ test by nasal culture and I took that as well but it came back negative. For what it is worth the Quest Cpn antibody test showed a higher titer after I started NACⁱ and antibioticsⁱ then before I started them.

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Cpnⁱ, Mycoplasma, Chronic Epstein-Barr, M.S. diagnosed by MRI, Lumbar puncture (greater than 5 oligoclonal bands) and VEP. Wheldon CAPⁱ (started 12/08); Azithromycin to Clarithromycin (12/09), Lithium, Lamictal, NAC, Vitamin D3 (10,000IU/day)

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Especially if money is an

Submitted by Sarah on Sun, 2009-06-07 13:43.

Especially if money is an issue, the NACⁱ test would seem preferable. Also if she has had MSⁱ for such a long time, the Cpnⁱ might be in hiding, as mine seemed to be. I only had a test result of 1:64 yet the treatment started working within hours. If I had to rely upon my GP to get treated, I wouldn't have been.
Moxy's idea of doing the test over a few weeks or days seems a good one, but days rather than weeks, I would have thought...............Sarah
An Itinerary in Light and Shadow

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSⁱ in June 2007, after nearly four years, three of which intermittent.   Still improving and no relapses since starting. EDSSⁱ was 7, but most days I could pass for as good as new.

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Arttile

Submitted by farandwide on Sun, 2009-06-07 13:56.

Arttile
I had a much more dramatic response to NACⁱ then most people have reported here so her reaction isn't too unusual. What I think it's saying is yes, there was definitely something there and given the likelihood that Cpnⁱ is present based on her diagnosis with MSⁱ, it probably is.
When I did the initial NAC trial for CPn, I had no reaction on day one. I felt a little strange on day two. On day 3, I couldn't walk unaided. So the test hit me like a ton of bricks. She needs to go slowly, as others here have suggested. I would say, maybe 1 dose every other day. Each additional dose should yield a more mild reaction over time but may be tough at first.

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best, John
RRMSⁱ/EDSSⁱ was 4.5, 5, 6, 6.5, 6.9999 on Wheldon Protocol (nacⁱ, doxycycline, azithromycin, metronidazoleⁱ) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. ~~Added INHⁱ 300mg/daily 03/17/2008~~ stopped 05/08. Added

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