I have been researching and researching....omg. It seems to never end!
As I have mentioned I have had a pretty difficult time with porphyria--what a nightmare. I have made the decision
to regroup and evaluate everything before I progress to another level. Due to porphyria I discontinued taking iron tablets--I now realize
that I am seriously anemic. That explains my current massive fatigue--I have been here before. ,
Recently I discovered Dr. Terry Wahl and her impressive improvements with MS. She is practicing many food
principles that I used in the past (MS-Direct diet) and I was much healthier at the time.
I am now consuming an incredible volume of vegetables, gluten and dairy free and on and on. It's quite an adjustment and I had a pretty good diet before.
I am also now the proud owner of a blender so pricey it will have to be willed to one of our kids. (Vitamix)
The porphyria hugely improved after I began her protocol.
Now, am reading about EB's etc.. I have ordered NAC and will start this weekend.
I need some help and hoping that someone has the answer--links are appreciated if that is easier.
My understanding is: EB's can be killed by NAC. EB's are the babies--we want to kill them to stop the disease from spreading. In one article it was suggested to continue high doses of NAC to prevent being reinfected--I like that idea. NAC is such a power nutrient that I see no downside with it--aside from the adjustment die off period.
So--if NAC esentially stops the replication of the baby bacteria--what is the lifespan of the other bacteria?
Does their lifespan match mine?
My nagging question. lol