My story of cpn (???)

Ok. To cut the long story short. 

For 2 years I have been dealing with prostatitis, urethritis and reactive arthritis after an intercourse. I have also problems with fast heart rate and body tempature which  I am always very sensitive to cold.

I had symptom free time for almost 4 months. Then the thing came back again. Countless semen culture, urine culture ,some specific tests for chlamydia trachomatis pcri , mycoplasma pcr were negative. However last week a cpni test IgGi came positive. Test value was 48 which was over the normal test value 22.

I live in Turkey. I must say doctors are not helping me much because they are imcompetent even in the research universities. 

I have got still mild knee pain but my dominant problems are the urinary problems of testicle pain, frequent urination and  burning during it. 

As I said before, my access to abxi is somewhat limited or none because I could not get a prescription. Even if I have an access I have some kind of allergic reactions or bad herxes. 

So I need suggestions of herbals and supplementsi to manage the prostatitis and urethritis caused by cpn. May be there are some people like me in the forum. I especially need their advices. I know it is hard to cure or treat this ilnesses without abxi but I choose this way for the aforementioned reasons. 

I am already taking krill oil, 600 mg naci, nsaidsi (Aspirin) , pollen and vit C and hydroxzine for sleep . But these are not helping much. 

Thanks and sorry for my English.

Comments

You can also look

You can also look into stephen buhner and his herbal protocol. The problem I found is that some of his herbs are hard to get in my country and in others, but it is certainly something you should look into also!

regards

D

The Greatest Risk of all is Not taking the Risk...

Darren I will certainly look

Darren I will certainly look into buhner s protocol. 

Be sure I will study my lesson. However there are some difficulties even I can not find some of the supplementsi in good quality here. Also some herbs could not be found here. 

I do not want to take too many stuff at once.do not want to mix everything.only a few herbals and supplementsi I plan to use together.

I am trying to be careful.

Thanks again for all the help and suggestions.

I have no experience with

I have no experience with Buhner and I find some of his herbs suspicious. Why use some chinese mushrooms and not local herbs? How did he come to his protocol? Why is it so expensive? And why does the man look like a clown?

I prefer experimenting myself. By trial and error I discovered many things that seem to kill chlamydia, ie cause a herx reaction identical to that caused by antibioticsi<

1) supplementing vitaminsi and minerals, especially the D, A, E, K2, B12 vitamins + magnesium, selenium, zinc. I prefer getting the vitamins and minerals from natural sources such as nuts (wallnuts, brazil nuts, madacamia nuts, peanuts, hazel nuts, pumpkin seeds). For example brazil nuts are the worlds no 1 food containing selenium. 1 brazil nut has 50 ug of selenium. 6 brazil nuts cause a herx with me. Selenium is part of important selenoproteins.

2) NACi is of course important

3) herbs that I found usefel are GSE (grapefruit seed extract), cannabis oil, neem, pumpkin seeds, nasturtium. I recently discovered a tea that was sold here locally (Czech Republic) that is made of 5 different herbs and that causes solid herxes - it contains ginger, thyme, mallow, fennel, lime tree, elder

PS: compared to other people on this site, I am relatively healthy. I have no progressive MS. I have only chronic sinusitis, laryngitis, pharyngitis + brain fog, so I can experiment. If I were more severely ill, I would go more aggressively against the chlamydie, but I cannot because I have to function at my job.

I haven't got any experience

I haven't got any experience too. Some friends here suggested the protocol and some followed it with modifications !!!  I am also trying to find  what is good for me by trial and error like you. 

Strange I found hydroxizine is helping me allot for my ic and prostatitis symptoms. Even it promotes sleep. I take quarter of a pill before sleeping everyday. People are unique and their reactions to herbs and pills are different. 

I was trying to mention these  problems  here in my blog too. I am not a supporter  of ap treatment and adjuncts  nor for the herbal treatments. I am just a fellow patient here. Also, I am not sure about having cpni 100 %. All I know I have got prostatis, ic symptoms and mild arthritis conditions. However the sitiuation make me choose a way. I havent got access for long term abxi ( no doc approve this here) and without a doctor consulting me and prescribing abxi for me I will not  choose that way. Most here have docs consulting them.

Either I have no access to some herbs ( Buhner herbs I can only find Licorice and chinese mushrooms :) )  and even some supplementsi (Can not order any product from amazon , they are just supplementsi). His look is none of my business. Do not judge people by their looks. But his protocol may be I will research it deeply. If you say supplements are expensive here it  is more expensive here bacause of the currency. 

So friend I have to find a way a mixture of things to feel better, to be better.  Have to find things useful for me like hydroxizine.

I am working also in a tough job that I must function both physically and mostly mentally. 

Hope people here accept the situation and show empathy towards me. 

Ps: I am sick of doctors 

hydroxyzine is an

hydroxyzine is an antihistamine drug. It can be used to treat allergy, or anxiety. It is sedating, hypnotic. But it does not kill chlamydia. You probably feel better because of the sedating/calming effect. It looks like you might have a chlamydia, probably trachomatis, possibly Reiter syndrom.

You yourself must decide what treatment you want to follow. Either get the antibioticsi, or try alternative/herbal routes. Maybe I was too harsh on Buehner, but he really looks like a gypsy - the funny hat and some crazy color combinations of his extravagant cloths :-) And his medicines seem a little too exotic - mushrooms from the Himalayas, cats claw from Peruan jungles, Andrographis from Sri Lanka etc. But I do not want to judge the protocol because I have no personal experience. It might work. Other protocolsi might work too. It is a very tough infection. I guess people who do not need to go to a job have an easier time because they can go more agressively against it. If you need to go to work, you have to take it slowly, otherwise you would not be able to function at all.

Jacck -I'm not sure where you

Jacck -

I'm not sure where you get the idea no one can go to work or function well while on the antibiotic protocol.  I had a very demanding job, both physically and mentally, but I did not miss one day of work due to the protocol, over the several years I took abxi.  

It sometimes debilitates people (and we're not really sure why), but to say one can't do the full protocol and do their job or function in their lives is a total fallacy which is counterproductive to promote here.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

It's not an idea, it's a fact

It's not an idea, it's a fact for me. Each one of us has a different ilness, different manifestations. Each one of us reacts differently to the treatment. Each one of us has a different job with different requirements. For example I sometimes need to teach, ie have a 1.5 hour lecture. It is impossible to do this on a herx when I am feeling seriously dizzy and have a feeling that I am going to faint. Brain fog, dizziness, feelings of going to faint etc are seriously debilitating in jobs, where you need to stand or interact with people. It might be doable if you have a job where you sit in an office behind and desk.

At the beginning I had serious trouble tolerating even 300mg of NACi, and I am herxing a lot from many different things. I guess it is because the chlamydia infected my brain. Either that or the inflammatory cytokinesi effect the brain hard.

Please don't make blanket

Please don't make all-encompassing blanket statements, Jacck.  My job was ridiculously more demanding than what you describe and I functioned very well throughout treatment.  Feel free to describe your own singular experience, but don't say no one can do this treatment and perform at their job/school/life.  It's simply not true.  If YOU can't do it, say YOU can't, but don't say no one can.  Your experience is one experience, but it's not what everyone experiences.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I am not aware that I used

I am not aware that I used such strong statements as you claim I did (words like "no one can do" are your own invention). I described my own experience and cautioned against herxes which might be very unpleasant and debilitating.

From your post   "It is a

From your post   "It is a very tough infection. I guess people who do not need to go to a job have an easier time because they can go more agressively against it. If you need to go to work, you have to take it slowly, otherwise you would not be able to function at all."

Otherwise you would not be able to function at all?  

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

There is no need to argue

There is no need to argue friends. To me , Abxi is not for everyone. Each of us are different. Some people are very sensitive like I that could not control herxes.

I also used abxi in the onset of the disease. I also see some benefit too. However after time I could not tolerate them even small doses. Cipro was totally poisoned me I am sure . There are lots of info about cipro poisoning in the internet. They suggested sulfasalazin to me  but after one dose my throat swell. It was an allergy. So not all of us get along well with abx like Mac and other :) .

still I am not  fully closed to abx treatment with the protocol or with modifications. 

May be I need more time to adapt to abx than other people. I agree Jack both working and this protocol may be a bit tough especially at the beginning. May be one can adapt it easier while not working. Still it seems manageable. There are many people I guess managed here and feel better.

My question to you guys I saw a thread and the topic is cpni is not  a sexual diseae. This guy seems strange. I mean there are docs and many sufferers here but he acts like he knows the best.

So, by any chance Do I have cpn now? Even after a blowjob??? seems logic to me either?  I know Trachomatis is the sexual one. But it never came positive for me in any test even with pcri

Reiter's were one of the

Reiter's were one of the diagnosis I got. They give nsaidsi and sent me away.

Well I learned later on ic people use hydroxyzine too later on. At that time I was only using it for sleep.

Even after pcri test ct never found after also countless seMen and urine tests. Only positive came with a blood test for cpni. Still I might have both. It is hard to cope with but the fight has just started. I already choose my way. However I am not closed to abxi treatment at all. 

Well I do not like stereotypes but these people all over the world are          generally eccentric. Herbs he use are the  exotic ones.though I do not expect potatoes to kill chlamydia :)

Reiter's were one of the

(Duplicate post edited out - MacKintosh)

Hi there,here is a list of

Hi there,

here is a list of what might help

it isn’t a full list of everything I took but I fine tuned it down to this

i done other stuff on top of this but I think this is plenty to get started on 

below is a list of what I took

list of herbs are as follows

Avena fe
Scutellaria baiac
Leonurus
Asclepias 
Inula
Vaccinium
Licorice
also I make apple cider vinegar- beetroot drink and vegetable drinks. I grow most stuff and make them myself from scratch 

List of supplementsi<i<<i<< as follows

olive leaf extract (seagate brand) 2 tabs 3 times daily

Mitoq

acetyl l carnitine with R-Alpga Lipoic acid

vitamin c

vitamin e

vitamin d3

lithium orotate

turmeric (source naturals brand)

b complex

milk thistle

naci<<<

grape seed extract

allimed liquid Allicin (very good)

These supplementsi are taken at different times of the day. You don’t take certain supplements at night and you take certain supplements bef breakfast!

when I am taking herbs I do not take supplementsi<<... As it would be too much for the organs and that goes for when taking supplements I don't take herbs.

i use essential oils also, in burners, in baths and massaging with carrier oil... Red thyme - oregano - German Camoline - tea tree - lavender 

i find these great! I also have detox baths 

exercise as hard as it is sometimes is very beneficial 

hope that helps 

D

The Greatest Risk of all is Not taking the Risk...

symptoms

darren what symptoms do you have"?

good list of supplementsi. I

good list of supplementsi. I guess everyone finds his own favorite supplementsi in the end.

In addition to your list, I would consider supplementing some important minerals

selenium - best source are brazil nuts, important for thyroid and brain, antioxidant">i<

iodine - important for thyroid, immunity and brain

magnesium - important cofactor of vitamin Di<

zinc - immunity

+ manganese, boron, iron ....

Thanks for that ... I

Thanks for that ... I incorporate those minerals in the form of my diet.

iodine I take a small amount every week and the Brazil nuts I do eat also... all other stuff listed by you and even more I would always try find naturally before using supplementsi...

as I would have wrote in posts in the past i work and study alongside a great herbalist which helped me greatly 

regards

d

The Greatest Risk of all is Not taking the Risk...

Thanks Darren.Which ones you

Thanks Darren.

Which ones you take as a must? Do you do cycles of herbals and supplementsi? Like two months herbals only  after that two months supplementsi only?

What are they good for? 

Can I send you private message? I have got lots of things to ask if you don't mind.

you can send me a private

you can send me a private message.

regards

D

The Greatest Risk of all is Not taking the Risk...

You're lucky to have a

You're lucky to have a positive test result, because so many people search for years for an answer!

We have a few people here who are very knowledgable about herbal treatment. I'm sure someone will be along soon to guide you.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thank you MacKintosh.I do not

Thank you MacKintosh.

I do not know what to do to feel happy or sad after the result. 

Are there any other tests? I do not know if  this result is conclusive or not.

I know this is a forum adopting abxi treatment and it's use. So, thank you all

for your understanding.

I pray to Allah for all people  with  health problems. You do not know until it happens to you.  After that I understand the importance of life than before.

Before that I was reading reactive arthritis literature both in Turkish and English. There are papers including long term abxi use.    I will read cpni related search afterwards.  Thanks again to all friends.

Hi Wolves26,Should you be

Hi Wolves26,

Should you be happy or not?  That depends on your approach, but I do know getting a positive (MSi) result, was a happy day for me because it meant that I wasn't imagining my symptoms and, although there are no mainstream cures, I should be treated sympathetically and symptomatically. Please tale the supplementsi advised and ask yourself if you are allergic to herxor if the herx is simply the pathogen floating around your body, on its way to death, a necessary evil, a sign that health will come, although it hurts, temporarily.

Jane

MSi symptoms from 2001, DXi RRMSi in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Jane I was sure there is

Jane I was sure there is something going wrong. However, I did not know if there is a bug or it is immunei response only. I did have a symptom free time.  It makes me confused too.

I am happy too for finding out the bug that makes me miserable. I am sad that I do not know how to treat it. I ve just find out it is hard to treat or cure and may be it progress into other diseasesi.

Some people are lucky. We are not competing in the same league. Our medical system sucks. I can not even order supplementsi from amazon. 

Just supplementsi think of it of course it is same for medication. I can not get abxi without prescription. It is hard to find a doctor that adopts these treatment here. They only give me 6 weeks of prophylaxis. 

Also I ve never forget the things when I used cipro. I was certainly poisoned.