For a couple of weeks, I've been trying to pay increasing attention to myself and how I'm responding to the Wheldon protocol. I've been trying to identify concrete ways that I have improved and am improving. The conclusion I've come to is that I am improving. I come to this conclusion timidly because I don't want to delude myself or mislead others.
So how have I been improving? Well for the most part, I've been experiencing gradual improvements. These gradual improvements accumulate over time, which is interesting and very much the opposite affect of the onset of my condition (RRMS) which also was gradual, though much more obvious. This gradual improvement has been described by others here but there is a difference between reading it and experiencing it. I think gradual for one person means something somewhat different for the next. To continue...
The areas of improvement are physical, of course, and were difficult to conclude as improvement but I believe that is indeed what's happening. I've been going to a gym for several years following very much the same sorts of routines over time. Until the last six months, I seemed to be stuck at the same point of non-progression and even declining slowly in some ways in terms of my performance. However, I've started very clearly progressing in having more strength and energy. This has also shown in somewhat better balance and endurance (the ability to stand for longer periods without difficulty). I've even been able to sustain longer periods of bladder control than I have in years (3 or 4 hours one time that I recall), though generally seated.
I've been sleeping better, though that started fairly early, maybe 2 months into the CAP. I recently started dreaming again, perhaps in February. It was after I began taking L-Carnitine, which I hadn't been taking beforehand.
My sense of touch is beginning to be more sensitive. My fingertips were tingling, though painfully, the other day, which is similar to something that happened early on 7 years ago with the onset of my condition. That hasn't happened again, though I would welcome it, even though it was painful. Most of the time, I still feel like I'm wearing gloves over my hands, but there are times when it is starting to feel less like that. I can feel the temperature of the skin on my hands just by closing them.
Tripping and falling has been happening much less often. I attribute this not only to an improvement due to CAP but indirectly so as an improvement to muscle development in my legs which wasn't happening before. My calves are like big rocks. I still trip, but I don't stumble and fall, I easily recover. I'm mentally ready to fall and it's almost a surprise that I don't, I've fallen so many many times.
The other day, I almost ran up some stairs, which I haven't done in eons. I also almost skipped down some stairs, though just a couple of steps. I'm still very apprehensive about going down stairs quickly, so it's much more likely I'll run up them before I go down them quickly. But in both cases, it's almost. I'm not going to do it unless I empirically know I can.
Ok, sitting here, I just tried one of those close your eyes, extend you arms, then one at at time touch your index finger to the tip of your nose. I did both perfectly without hesitation or delay. Very cool. I don't know if that means something, but it made me smile, lol! I don't think I could do that when I last saw a neurologist a year ago.
So, to conclude, the improvements are there. I'm hanging tight, hoping there is a lot more coming.
On another note, I mentioned recently that I was having difficulty with getting in to see my doctor again for a six month follow up visit. It should have been in June but have been repeatedly pushed back. Last I checked was that the earliest possible I might be worked in would be September, but even that is now likely pushed back.
Well, I finally emailed my doctor and to my surprised he responded the next day. I asked him about the difficulty getting in and he acknowledged that it is difficult and that he would try to get me in, though the question of when is still unanswered.
I mentioned to him that it would be sensible to check the status of my liver. He has agreed and has ordered the tests be done. I need to call his lab nurse and set up a time to go have blood drawn. I'll call the nurse on Friday.
Next, I've discontinued a couple of the supplements I've been taking. I've stopped taking Quercetin for now. I'v also stopped taking a couple of antioxidants that I've been on prior to the CAP - grape seed extract and bilberry extract. I decided that taking those along with ALA, vitamin E, etc., are probably working against the effectiveness of the CAP. This may in fact be why I've noticed more over the last six months or so because that's the time frame that I discontinued the grape seed extract, which is the more potent of the two extract antioxidants I've been using.
I've been reading more on this site about the use of aspirin against Cpn and have thought of trying it. The information I've seen isn't clear to me as to the usefullness of it, so while I'm thinking about it, I haven't yet started using it.
I probably need to start using vitamin K again. I've been bruising a lot at the gym. My legs look like a topicgraphic map, lol, with various shades of purple continents and islands strewn about.
I've mentioned elsewhere that I've achieved 2400 mg of NAC daily. I year ago I couldn't do 600 mg daily and had a major reaction when I did 1200 mg three days in a row. Massive die off reaction but the levels are now much less apparently, which is a good thing. Progress is good!
Let me see, what else can I share in this blog entry? Nothing else comes to mind so that's it for now.