I had Some very Good news today.
As I failed to respond well to other treatments for my uSpA, I just spoke with my US Doctor and he is willing to support me on ABxi. Yeaa !! I am so excited 
However his experience with ABx was obtained doing a study under Dr JD Carter at USF with a very simple protocol of doxycycline 100 mg twice daily and rifampin 600 mg daily for 9 months.
Great for a for a short study but as a long term treatment protocol I'm not so sure??
My first question would be: is this a bad thing ?? Should I try and persuade him to try another protocol or just go with the flow. Could it affect my treatment adversly in the long run ??I have a small window of opportunity to influence him as my Doc is going to a conference next Wednesday with Dr Carter & I asked if I Fax him some questions about treatment protocolsi on Monday whether he could raise them with Dr Carter & he said sure.
So I have the weekend to come up with some simple yet pursuasive arguements to convince an Eminent research MD. to swap his protocol for anothers !!!
Yes I know goood luck with that !!
Any suggestions ???
For those unfamilar with Dr Carter search for Carter here & there are posting about his earlier work. Not sure if I am allowed to post external links but here is link that explains his most recent findings quite well:
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Diagnosed with uSpA (Inflammationii of Sacrum, connective tissue joints, tendons, eyes + CF major brain fog). Had joint tendon inflammation for 30 Years. Continuous flair now for 2 years+ NACi 2400mg + recommended supplementsii since Nov 09. Doxyi 100mg BIDii Ri
Simon, you need to explain
Simon, you need to explain what uSpa is, as I explained in my message not very many people here are familiar with this syndrome.
Yes you are allowed to post external links so long as they are relevant to the site and its members and is not pushing their products...
Here we do not put an end point to treatment as so much depends on the individual and how long they have been ill.
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.
hmmmm, my understanding is
hmmmm, my understanding is that it takes 3 types of abxi to effectively kill the bacteria which has 3 diffierent life phases. Has Dr. C visited the well documented science for this site? (btw, unless this has changed recently, we don't normally print out the docs name unless we have permission to do so from that doc)
at the very least I suppose, you have a start.
peace
r
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CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<
SimonIt is my thought that
Simon
It is my thought that you should get started with what this physician is willing to prescribe. That way you will at least get started on antibioticsi. You can then supply your physician with lots of information on the protocol from this site. You can give him information from the physician's pages, anectodal evidence and all other pertinent information. But you will at least have begun. Before I started on the CAPi I was prescribed only minocycline. That is what actually convinced me to pursue the entire protocol. So I think you should get started with what this physician is willing to prescribe and then work to add the other antibiotics.
Lori
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