Monday 9 July 2007One year on CAPIt's been a year since I started the CAP, beginning with NAC at the start of July 2006. I just read over my 'baseline' entry and some of the early parts of my blog and overall I think I am exactly the same as I was when I started with regard to the ms symptoms. I had been getting a little disillusioned about this over the past week, but yesterday I was thinking that I should be grateful I am exactly the same as a year ago. If conventional wisdom is right and the ms is now progressive for me, then no obvious progession in disability over a year has to be a good thing and the antibiotics may be responsible for that.Despite my initial assertions that I was only hopeful the CAP would help, I have been disappointed that I haven't had any miraculous results. Human nature I suppose. I am certainly not in a position to give away any of my mobility aids as others have been able to do; I guess that was some sort of magical goal I had floating around in the back of my mind. For now, I will try to enjoy the fact that I seem quite stable.Going forward, I am considering reducing the antibiotics to an intermittent schedule for a while just to see what happens. I also may have to stop them altogether if the Tysabri becomes available and I decide to try that. I don't need to make a decision right now, so will defer that for the moment.Sunday 22 July 2007Flagyl pulse 11 completeFinished pulse 11 on Friday. Fairly uneventful two weeks since my last entry. Annie and Vic were here for the second week of the school holidays which really helped, then Kai went back to preschool this week. I've been quite tired with a lot of stiffness in my body, though at my massage on Friday Advaita said my muscles didn't feel too bad. I still feel as though I am slower getting around but I know it's hard to be objective about that. I think I'm looking forward to warmer weather (crazy for a pwms!) but I feel I'll be more motivated to do yoga and get in the spa.Tuesday 31 July 2007So much for being exactly the same as a year ago! My left leg (the 'good' one) is deteriorating rapidly. It now feels the same as the right one and is getting heavier by the day. I am having much more trouble walking and even standing still without losing my balance is an effort. It is now dangerous for me to try to walk even short distances with only the stick; I nearly fell over while picking Kai up at preschool last week. I now feel that I must have constant support on both sides while walking (i.e. the wheelie walker).I spoke to my neurologist today to ask about another course of prednisone but he said I should wait until September. The application for Tysabri will go back to the Pharmaceutical Advisory Board (PABC) very soon. I have written a letter that I will give to my local MP when she visits our community this Friday. In the letter I ask her to do what she can to get Tysabri included on the PBS. At this stage, I am getting desperate and feel it is my last option before the final descent into a chair.Tuesday 14 August 2007Flagyl Pulse 12Started Flagyl pulse 12 yesterday, which will be my last one. I am going to use up the antibiotics I have left but I won't be continuing after that. My left leg is now worse than my right and I am dragging my body around the place leaning very heavily on with the wheelie walker. I've been in contact with the MS Society who are putting me in contact with a local OT and physiotherapist to get advice on a wheelchair.I guess as I won't be on the antibiotics anymore I won't be adding to this blog so I will say thank you to everyone here for their knowledge and support while I've been here.Best wishes and good health to all.