MediTest
Submitted by Sarah on Fri, 2008-04-11 08:30
 
Yesterday I found this link, a blog written by a retired child psychiatrist in an English hospital who writes as Am Ang Zhang, born in Shanghai in 1947. 
   
He has written a book called "The Cockroach Catcher" about a fictional doctor's reflections as a child psychiatrist.  The page of his blog is about something many of you will have read before:   
“Ignoring the Evidence: Diagnosis of his wife’s progressive multiple sclerosis would not have taken so long had doctors taken a proper history, says Dr David Wheldon.” 
  
There are many more links in the piece, about Vanderbilt, the links of CPn to other diseases and also green iguanas and I am posting this to show that the word is slowly getting out, even if the photograph of Ram Sriram was taken in 1999.............Sarah

An Itinerary in Light and Shadow by a real "Painter of Light"...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.

Koalas get a look in as well!.....Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks Sarah,

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Sarah, this looks so interesting - I have put it in my "thing" on the right so I can examine it when there is time. Thanks

 

Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 50 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Sarah,  Thanks for this post.  It was a surprise to learn that iguanas are carriers of Cpn.  (<Sounds like another good reason why people should not keep them as pets.  And then I thought "Does that mean I (and everyone else on this site) are not worthy of companionship, marriage, or to rub elbows with the rest of society because we are carriers?  Am I a Typhoid Mary?  Isn't this ubiquitous in our population?  Now I'm guilty of discrimination against iguanas and displaced self-loathing for no good reason.

If I ever have an iguana, it will be named Ubiquitus...sounds very Spartan, doesn't it?  Greek and stony.>)

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Now then, I have just added a comment to Dr Zhang's blog which you can see by clicking on the above link.  In it I mention cpnhelp so it adds one more link to this site.     I found the blog by looking up "David Wheldon" on Google.  It can also be found by looking up "David Wheldon" with "chlamydia pneumoniae" and by looking up me, so very soon t will be found by using "chlamydia pneumoniae" by itself.   Good hour's work?  It beats having slanging matches with Inter-Galactic Super Moderators, anyhow.   Joyce, I don't know about the iguanas, but I'm sure they are happier in their own habitat.  They don't really make cuddly pets in any case!  Forget about the displaced self-loathing, though: you haven't been infectious since you stopped coughing and sneezing the acute infection over people, probably many years ago.............Sarah

An Itinerary in Light and Shadow by a real "Painter of Light"...........

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah, I did find this site last June by searching Chlamydia Pneumoniae alone after recieving that diagnosis at a Fibro and Fatigue Center. The on Pneumoniae is very important.  Now if we could get the site to come up without the e that would be very helpful.

Louise

CFS/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxy, Roxi, TiniPulse#4 Ended2/3/08. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Anyone else going to join in?.............SarahImage removed.
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

For anyone who might have missed my tongue-in-cheek punctuation, i.e., (<  >),  Most of my comment was meant to be tongue-in-cheek.  While I did feel guilty for the many years of spluttering Cpn upon the world, and especially for dispensing it to Steve, I soon realized that, if it hadn't been me, it would have been someone else infecting him and others.  Anyway, who knew?!  I don't loathe myself, and anyone who feels guilty about having spread Cpn only deserves to feel guilty if they don't do the protocol. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Sorry Joyce, mea culpa:yes I did miss the tongue in cheek punctuation.  I was thinking too much about how you used to think, as you say here yourself!         Also I have had several earfuls of peoples' guilt complexes lately.............SarahImage removed.
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah, no problem, but you've given me an idea about a guilt thread.  It won't happen today, though.  The sun is shining, the temperature outside is perfect, Spring won't wait, so I'm going outside to grub in the dirt, hopefully to some constructive effect.  So, I invite anyone else who feels inclined to start a guilt thread to go for it.  I'd just as soon be a commenter as I would an original poster.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

I have been on Hols and just discovered a flurry of activities on my blog (The Cockroach Catcher Blog (and I am new to this) There are all sorts of Cockroaches since my Med. Student days and I am interested in all bugs big and small: some are disguised heavily. Medicine nees to make progress and it cannot do with all the state controls that are imposed. We need original thinkers as well. Look what happened to Jenner and small pox and more recently Helicobacter pylori.

I have been on Hols and just discovered a flurry of activities on my blog (The Cockroach Catcher Blog; and I am new to this) There are all sorts of Cockroaches since my Med. Student days and I am interested in all bugs big and small: some are disguised heavily. Medicine nees to make progress and it cannot do with all the state controls that are imposed. We need original thinkers as well. Look what happened to Jenner and small pox and more recently Helicobacter pylori.

I have been on Hols and just discovered a flurry of activities on my blog (The Cockroach Catcher Blog; and I am new to this) There are all sorts of Cockroaches since my Med. Student days and I am interested in all bugs big and small: some are disguised heavily. Medicine nees to make progress and it cannot do with all the state controls that are imposed. We need original thinkers as well. Look what happened to Jenner and small pox and more recently Helicobacter pylori.

 

Hello again Dr Zhang!  I hope you enjoyed your hols, but it was only a tiny flurry really, like the small snowfall we had the other Sunday morning which was gone before most people knew it had been there.

I totally agree with you about the state controls, first set in place in our country when the fat man in hush puppies was health minister, I had only recently both got my MA and acquired MS and chlamydia pneumoniae was not even realised to be a serious pathogen.  I'm glad we have original thinkers over at Vanderbilt and I am so glad I am married to one here, who discovered what they were doing and thought that it was better to get on with treating me rather than waiting for endless double blind trials that would never happen, antibiotics not being profitable things.......Sarah

An Itinerary in Light and Shadow by a real "Painter of Light"...........Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I do check out follow up comments. I have friends who were amazed by your story. Unfortunately the media is now populated by people with little training in Science or Medicine and they tried to make comments on both subjects. The blog is our way of ensuring a fair sharing of Scientific and Medical knowledge. But we are or I am not shy of my views on the Arts either. Long live the THIRD CULTURE.

I am very thankful for our out of the box thinkers!

We are on the right track here!

The media is generally only interested in selling their story.  Unfortunately, as a society we are groomed to only buy the gritty stuff!  Medicine....under the radar, IMHO of course

Image removed.

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Just off to scour the house for recalcitrant Iguanas hiding in dark corners. I always knew there was some reason for me catching MS. Image removed.

Berkshire, UK. Diagnosed MS Feb 4th 2008. NAC first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th. Starting on Doxy, imminent.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

 

We've got crested newts in our pond: Roger, the next door cat is entranced by them............Sarah

An Itinerary in Light and Shadow by a real "Painter of Light"...........Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Image removed. I think you need to have a quiet word with Roger and tell him they're a protected species, so paws OFF.

 

Berkshire, UK. Diagnosed MS Feb 4th 2008.

NAC first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.

No GP/Neuro support. Self medicating with assistance from D W

Starting Doxy April 2008

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

Oops!
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Oh, I have: he knows I am a good shot with a catapault.........SarahImage removed.
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Okay, another pond-ism? Is a catapult (no pun intended, I'm sure) the same as an American slingshot?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Pretty much. Tends to be a Y shaped frame with some elastic attatched to the top of the Y prongs and a small pouch of some sort central to the elastic. 

 

Berkshire, UK. Diagnosed MS Feb 4th 2008.

NAC first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.

No GP/Neuro support. Self medicating with assistance from D W

Starting Doxy April 2008

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

Ah, another one to add to lift and loo. Thanks, Andesine!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

 'very few medical Students or even Doctors have heard of it' ..............

ah,  but you should know that here on cpnhelp we're ahead of the game...

http://www.cpnhelp.org/quorum_sensing

Elinor ..... from England  on CAP, doxy/roxi/tini  for ME/CFS/lyme borreliosis, positive Cpn and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

Elinor ..... from England  on CAP, doxy/roxi/tini  for ME/CFS/lyme borreliosis, positive Cpn and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

Absolutely. That darn Iguana tripped me up going down the stairs this morning. Image removed.

Berkshire, UK. Diagnosed MS Feb 4th 2008.

NAC first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.

No GP/Neuro support. Self medicating with assistance from D W

Starting Doxy April 2008

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.

NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.
No GP/Neuro support. Self medicating with help from David Wheldon.
Started CAP 20th April

I think we have discussed quorum sensing before on this site. Cpn must have some control over its growth as after all it does not want to kill the host too soon.  

I also seem to recall that quorum sensing operates on a wider scale too.  During my teacher studies we read about the ability of blue tits piercing the foil tops of milk bottles delivered by the milkman to the doorstep of most British homes.   This skills started in one small part of the country and within a couple of years had become universal...   How it happened was never explained. 

Most of us realise that the more we learn the more we realised how little we know.   It would be great if more doctors understood this.  

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

 

Help!! I didn't mean to start up an iguana chase, a crested newt chase or even a bug chase.  I don't know how we got our newts: they just arrived and Roger the cat only got too entranced once and went off with a wet face, pond weed over one ear and tail between his legs.

Bonnie Bassler should win the Nobel Prize one year because she certainly looks as though she enjoys what she does..............Sarah

An Itinerary in Light and Shadow by a real "Painter of Light"...........Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah,

lol on the visual of poor Rodger the Cat!

Most Cats don't like to swim!

Newts can grow new arms.

CFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

 

Update on the great iguana chase, wherein it looks as though the iguana catches my ex-neuro and gobbles him up:

http://www.cpnhelp.org/multiple_sclerosis_iguana

Update for Ruth on Roger the next door cat: he gave his mistress a live toad, carefully carried in his mouth from either our garden or the school behind.  The toad just shook his head and walked away, but I don't think the neuro will!............Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.