MS survey help
Jim and I have batted the idea of beefing up the survey questions to make it possible to evaluate MSi symptoms/imrovements a little more precisely. The ldner.org site did surveys of people using the ldn and had people self do edss scores. The nice thing about that is it is familiar.
Or we could create our own vehicle for evaluating MS symptoms. We had a thread a year or so ago on this but Jim asked me to gather the information now for a revised survey and I'd like to tap the collective wisdom here after so many of us are a year or more into it and see what we can come up with at his point with this experience.
Here's the ones we had before. I imagine these as having a scale of ability something like the NARCOMS uses such as
Button a shirt 0 no problem 0some difficulty 0very difficult 0can't
The person would "toggle" the right one.
These are the questions we have so far as good candidates
I can slide my heel from my left leg down the right leg from knee to ankle (without using hand to pick leg up) note this is a standard neuro test
ditto other leg
I can hop on my right foot
hop on left
stand for 5-10 seconds on right leg
stand for 5-10 on left
I can walk on my heels
I can walk on my toes
an ambulation scale of some kind suggestions for a very measurable one? I think linking EDSSi and self scoring would be good here personally
write for how long before rest is needed
pick up a penny
Ok what else should we have in our survey specific to MS evaluation? we want measurable ways to evaluate our changes in function