MS and Japan
I have lived in Japan for two years now - my plans for coming were set before my diagnosis. I began Rebif while in America, but it proved to be an expensive monthly hassle to get across the ocean and through customs. I soon switched to the BBD Diet, but after a major relapse about six months ago I began looking for something else.
After my big relapse I began looking for a neurologist who would be willing to help me begin the Wheldon protocol. Reading of the many roadblocks set before those with the disease in MS-prevalent countries, my hopes of finding an open-minded doctor in Japan were slim at best.
But wouldn't you know it; finally got dealt a lucky hand - the first neuro I saw was completely willing to give something a little experimental a day in court. I brought him three convincing (I hoped) pieces, including the Wheldon protocol, to my second appointment, and by the third he agreed to work with me. He wanted me to wait to have an MRI taken, to establish a baseline, since he had no experience with this treatent (had never even heard of anything like it) and the same day I got my first script for antibiotics.
Anyway, to the point . . .
If there is anyone else in Japan looking for a willing doctor, please message me and I will do my best to help out.
I thought of sending a message to Dr. Wheldon, in case he or someone he knows keeps a database of CAP-willing doctors, but it seemed a bit presumptuos. Thoughts?
Further notes on MS in Japan:
- Anecdotally, it seems a bit more common to me in Japan than I assumed it would be - my neurologist said he is currently treating 20-odd patients in this admittedly backwater prefecture of Japan.
- The Japanese government currently has a plan for those in the national health care system with MS. Since most of the doctors in the country have little experience with MS, the government is willing to make a trade: you allow them to follow your disease course through your doctor and they will basically pick up the tab. The maximum amount I would have to pay per month is about $50. Two days ago an MRI and my first month of ABX cost me $50. I should know more about this plan, but I can't read Japanese.
- The basic antibiotics called for the the Wheldon protocol are available in Japan, but there is a bit of an issue with Azithromycin. I'll be on Doxycycline, Roxithromycin and Metrodinazol.
- Supplements are expensive in Japan, I brought as close to a years' worth as I could from the States and I'll have to get more shipped in.
- I'd love to smoke some weed to see if it had any effect on my MS (ah, the nostalgia wouldn't hurt either), but it is uber-criminal in Japan. 30 days in the clink for a speck.
Hope someone who could put some of this information to good use will find it someday.