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MRI results positive and consistent with treatmentSubmitted by Karl on Wed, 2007-05-30 10:06. MRI taken May 1st 2007, 3 hours on my back, results May 10, 2007, with Neuroi are 1 year later since MSi diagnosis. Results are consistent with past 3 MRI's since starting the CAPi treatment. All lesions stopped in tracks, still, meaning no new lesions or enhancements and the neck lesion on spinal cord is smaller and on the mend. The numbness left to just my hands is only a light fuzziness and is slowly abating as caused by the neck lesion. There are times of the day when I feel no numbness and the duration is increasing.
Still no classification of MS by Neuro but in our judgement, I was Secondary Progressive MS when this hit me April 2006. What would he call it now? May never know but he is very interested in my results and the ABC News Primetime special we were interviewed for - air date yet unknown. Waiting to hear from executive producer. All the neuros at the clinic are "very interested." Also know that many docs at University of Chicago Hospital are very interested in the results and the special.
MRI results show certain validation that the CAP treatment is right on the mark and has brought me back to normal living. I'm still herxing regularly but not intense like before and rest when I need to but back to painting our house, playing with our daughter, working on my '59 MGA, cooking, helping where I can, mowing the lawn, etc.. Mentally and physically I am graced with normalcy of life. My new GP called me the Phoenix risen from the ashes......I certainly concur.
I wish everyone the best and keep pushing through this! Best Regards, Karl and Alyson
___________________________________________________________ Uncommon inner strength must defy gravity...hanging on here....You all have the ability to do it!Diagnosed MSi 5/4/06. CPNii past and new chronic infectionsii. Lyme suspicious titers and Babesiosis found. Started CAPi 6/1/06. »
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Karl, my Goodness you've
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On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithromy
I just about had three in
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Karl, This is great news!
Karl, This is great news! Continued great luck...
BTW, I'm more than a little jealous of your '59 MGA. They are beautiful autos...
On Combined Antibiotic Protocol for Cpni in Rosaceai since 01/06
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Treatment for Rosaceai
Excellent news, Karl, and I
Excellent news, Karl, and I am so pleased that the medics are interested. I had a long discussion with an influential microbiologist last week, and carefully went through the evidence of a connection between not only MSi but atherosclerosis and C. pneumoniae (many of the biochemical disturbances are similar.) He literally had an 'A-HA' moment - as I did myself on reading Dr Stratton and Dr Mitchell's patent in 2003.
D W - [Myalgia and hypertensioni (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazolei. Now on intermittent treatment. BP yesterday (29th May 2007) 115/80.]
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D W - [Myalgia and hypertensioni (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazolei. No medication now; just supplementsi and IR sauna. Morning BP typically 105/75]
Hey, that's awesome. Sounds
Karl,That's great news!
Karl,
That's great news! Hope you have continued health improvements and draw more attention to this from the medical community. Also anxiously awaiting the TV special.
Goodwife
Hubby dx scleroderma Aug '06; Minoi 200mg/day Nov '06; Cpni/Mpn Jan '06; NACi Feb '06; Azith Feb 14, '06
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Hubby dx scleroderma Aug '06; Minoi 200mg/day Nov '06; Cpni/Mpn Jan '06; NACi Feb '06; Azith Feb 14, '06
Excellent news Karl, I hope
Excellent news Karl, I hope you become a cause celebre in Chicago Uni and that your interview does cause people to take more notice.
Michele (UK) GFAi: Wheldon CAP1st May 2006 . 26th March 2007 continuous Flagyli at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella, RRMSi Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Hello everyone,I am new to
Hello everyone,
I am new to this forum but very old to the symptoms of this insidious disorder. I have had major problems now for eleven years and minor symptoms since 1985. I see various protocolsi for cpni. What is the latest recommended group of meds? I will have to do this on my own. Numerous doctors have humiliated me , thus, I am going independent in order to save me and my family. I have a lot to share about the white spot theory.
Welcome, cure4all,From your
Welcome, cure4all,
From your post, it appears you have the most important combination of attributes that it takes to do this. My hope for all of us is that the way will be made a little easier by the brave physician (I have one of those) who sees the good that we are doing for ourselves, and against the tide. We are the ones who are doing the voluntary suffering required for this with so many symptoms untreated for so long. We are gaining. You will, too.
<> Sorry, Karl
<>I have a terrible habit of usurping a thread in my haste to welcome a new member! Your results are wonderful; I believe we will have to form the "Better MRI" club!
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 42 pulses NC USA
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA
Thanks for responding,
Thanks for responding, Katman. I do need encouragement as I have been drifting at sea solo for a while now with major interuptions to my life. I have no real regrets b/c I am still here and feel on the beginning of great new breakthroughs in the human health system. I do believe that mainstream doctors will be forced to acknowledge and treat this malady in the very near future or law suits could result. The Hypocratic oath requires that treatment be administered rather than ignored or dismissed. That said, I am looking forward to corresponding with others who are on this journey of iscovery and healing with me! Cheers!
Wow, That's great news! 'A
Wow,
That's great news! 'A phoneix from the ashes.' I love that.
I sure hope they don't start labelling you as a 'spontaneuos remission'. You have worked so hard for every gain you have made.
Onwards and upwards.
Began CAPi Oct.06 for SPMSi. Currently on Doxy/Roxy. No pulses as yet.
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Began CAPi Oct.06 for SPMSi. Currently on Doxyi/Roxyi. No pulses as yet.
Annette, someone will: its
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Spontaneous
Uncommon inner strength must defy gravity...hanging on here....You all have the ability to do it!Diagnosed MSi 5/4/06. CPNi past and new chronic infectionsi. Lyme suspicious titers and Babesiosis found. Started CAPi 6/1/06.
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Uncommon inner strength must defy gravity...hanging on here....You all have the ability to do it!Diagnosed MSi 5/4/06. CPNi past and new chronic infectionsi. Lyme suspicious titers and Babesiosis found. Started CAPi 6/1/06.