MRI further success in consistency of treatment

Prior MRI 5/1/07. Last MRI 10/10/07. I like to push...Always with GAD for Brain, Cervical, Thoracic to show consistency. CERVICAL: MR evaluation of cervical spine is performed with sagittal and axial T1 and T2 weighted scans as well as post contrast sagittal and axial scans and a medic axial sequence. Comparison is made to study from 5/1/2007. The vertebral bodies are normal in signal, height and alignment. The spinal canal is widely patent. There is subtle increased signal within the medullar and extension inferiorly into the cord to about the inferior aspect of the C2 level. This is the best seen on the axial medic sequence. There is no appreciable change. There is no associated enhancement. Sagittal images suggest mild disc bulging at C5-6. IMPRESSION: Very subtle signal abnormality present within the medulla and extending into the upper cervical cord. There is no change from the prior study. THORACIC: MR evaluation of the thoracic spine was performed with sagittal and axial T1 and T2 weighted scans. Comparison is made to study from 5/1/2007. The patient did receive contrast for the brain MRI and a post contrast sagittal scan is obtained. The vertebral bodies are normal in height, alignment and signal. The spinal canal is widely patent. The thoracic cord is normal in appearance. Previous examination suggests some ill-defined signal abnormality of the distal cord. On the current examination this is not clearly evident. There is no abnormal enhancement. No disc herniation is evident. IMPRESSION: Normal thoracic cord. BRAIN: MR evaluation of the brain is performed with the MSi protocol. The examination includes axial and sagittal FLAIR sequences as well as pre and post contrast images. The patient received 15 cc's intravenous Gadolinium. Comparison is made to study from 5/1/2007. The ventricular system is normal in size and position. Several foci of abnormal white matter signal are evident. No new lesions are noted. On the prior study a focus of increased signal is present at the floor of the fourth ventricle. This is currently identified although it is somewhat less intense. There are bilateral lesions in the corona radiata. Larger lesions are present on the right near the posterior aspect of the lateral ventricle. These lesions demonstrate diminished T1 signal. The larger lesion measures just over 10 millimeters and appears to be slightly more intense than it did on the previous study. Punctate lesions are present bilaterally in the subcortical white matter near the vertex. No significant enhancement is identified. There is no diffusion weighted abnormality. IMPRESSION: Bilateral plaques again are evident. A lesion near the posterior aspect of the right lateral ventricle appears slightly more intense. A plaque near the base of the fourth ventricle appears slightly less intense. There is no other change. Ultimately, no new lesions and there is no growth or true enhancement. (only....one slight more intense) Prior to the MRI and still, I have been herxing regularly and heavily. To me the slight intense part is due to herxheimer reaction. Overall, I'm so much better that I can say the lesion aspect doesn't truely correlate direct with symptoms. I am very functional. I actually have just dug mulch garden beds around our 2300 sq foot home, etc., and have mostly resupplied the gardens and poor lawn with 23 cubic yards of soil all by hand. This is proof to myself and good physical therapy. Going from bed ridden to decorative garden production in 1.5 years of treatment keeps me in a stage of wonder and internal power mentally which pushes me more to see the treatment through to the end. Physically, I've been able to take it without soreness and really only dealing with fatigue as anyone would doing that type of work. I rest when needed and otherwise keep going. My last hurdles of MS are the remaining light fuzzy numbness in my hands ( really pretty much gone at times), and my vision imbalance which I have been able to note -it is better with slow healing. Last would be the healing of lesions which I expect over a much longer duration, of course. The MRI's in my viewpoint will show mostly consistency with the treatment. It may not always show betterment each time yet you have to go with how you really are feeling and functionality too. I wish everyone the best and putting up a good fight is within grasp for returning to life as it should be lived. Everyone here has....as I put it....UNCOMMON INNER STRENGTH! AND THE ABILITY TO DEFY "GRAVITY". Always know you really have it deep down to pull you through. Simply being on this site shows you have stepped outside the box in order to better yourself. Best regards, Karl and Alyson

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Uncommon inner strength must defy gravity...hanging on here....You all have the ability to do it!Diagnosed MSi 5/4/06.  CPNii past and new chronic infectionsii.  Lyme suspicious titers and Babesiosis found.  Started CAPii 6/1/06.

Well, Karl, I had expected

Well, Karl, I had expected possible bad news, from the way you couched your words on the other post today. This is just great! (I, too, measure my improvement by my energy and ability levels. I'll have an MRI next year, but don't much care what it shows anymore.) So, are you two doing a lot of celebrating? You should; you have a lot TO celebrate! (I have some landscaping issues. Want to come by and help out?) ;-)

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Karl, this is excellent! 

Karl, this is excellent!  If you saw my scans you certainly would not think that the lesion load correlated to the symptoms.  Many of us will always show lesions, but does that mean we still have active MS?  I don't think soSmileCool.............Sarah
An Itinerary in Light and Shadow  
Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

So happy for you Karl! 


So happy for you Karl!  Another encouraging reason for this therapy!  Thanks for posting this.

Lori









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Started Vanderbilt protocoli 1/9/08  Rifampin twice a day, azithromycin MWF, Tindamax for 7 days out of a month at 250 mg three times a day,  b12 injection monthly NACi daily, DHA, calcium pyruvate, prilosec, low dose naltrexone 4.5 mg

Great news Karl, Thanks for

Great news Karl, Thanks for posting your results! On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

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On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

Well, that has to be great

Well, that has to be great news.

Even better is the fact that you are living alot more of life compared to what you could be living.

The protocol works, no boubts adout it....the journey length & intensity determined by how long & what stages the Cpni has been allowed to get to in our bodies.

We can do it, just do it (Nike)

On ward & upward peeps

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpn, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 9-30-07 2nd pulse 1 X 250 mg Metroi

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

Karl - Your report is

Karl - Your report is especially valuable to me as the severity and suddeness of your illness most resembles my husbands. 

 If one can do it - others can follow!

Daisy-Caregiver- Balo's Concentric Sclerosis. Began CAPi 5/10/07. Doxyi 200 mg, Minoi 100 BID 9-1, AZI 250 QD 9-10, AZI 375 QD 10-22, Rifampin 300mg QD 10-15, NACi 2400 mg, HD Flagyli Pulses, Novantrone, Prednisone

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Daisy - Husband on CAPi 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

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