minocyclin

My general practitioner started me on minocyclin.

But I do not tolerate it or I think the porphyria kicks in after day four and I need to stop the minicyclin.

He wanted me to be on 200 mg mino for 3 months.

Does anyone have the same problem?

 

 

I used to think I was allergic to erythromycin, in the family of azithromycin. Turns out (I was tested in the allergist's office) I'm not. It was just the cpn infection causing the bad reactions.

Maybe you can ramp up a bit slower, starting with 100mg of minocycline?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thanks for your reply.

My doctor wanted me to take 200 mg a day but I took only 1/4 of one tablet = 25 mg a day.

On the first day I got pain in all my bones ( never had any pain before). Then throbbing in the legs and lymph nodes. I

think this was all very good signs and getting less.

Then on day 5 I took 50 mg and all the throbbing, tingling, pain whatever was  in my body stopped totally.

 But I also crashed and have not recovered after 10 days.

Are you taking binders like charcoal with the antibiotics?

I have porphyria and think my methylation pathway may be blocked.

Thanks for your reply.

My doctor wanted me to take 200 mg a day but I took only 1/4 of one tablet = 25 mg a day.

On the first day I got pain in all my bones ( never had any pain before). Then throbbing in the legs and lymph nodes. I

think this was all very good signs and getting less.

Then on day 5 I took 50 mg and all the throbbing, tingling, pain whatever was  in my body stopped totally.

 But I also crashed and have not recovered after 10 days.

Are you taking binders like charcoal with the antibiotics?

I have porphyria and think my methylation pathway may be blocked.

K23la, you may wish to review the link below comparing the protocols used for CPN.  I know there are some here who use mino as a substitue for Doxy.  Have you been on ABX before, perhapts titrating up (start with 50 mg BID) would help?   

As MackIntosh states, sometimes when we think we can't "tolerate" an antibiotic it's really the effect of it killing a pathogen in our body...

http://cpnhelp.org/summary_chart_of_differen

 

JeanneRoz

JeanneRoz ~ DX'd w/ CPN 4/2007; 6/07 -"officially" dx'd w/CFIDS/FM; also: HHV6, EBV, IBS-C, 100 Doxy:BID; 500 mg Biaxin BID; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

K23la, You may also want to read this blog post from Miyeng Ming re her experience on starting Mino..... fwiw..

Also, I am not sure but 25 mg of Mino may be a subclinical dosage and you don't want to risk taking too low a dose causing resistence problems.

Again, please read the "Getting Started" information ... vitamins, supp's and moppers (charcoal, chorella, or whatever works for you personally) ... VERY important part of getting through this.

JeanneRoz

 

JeanneRoz ~ DX'd w/ CPN 4/2007; 6/07 -"officially" dx'd w/CFIDS/FM; also: HHV6, EBV, IBS-C, 100 Doxy:BID; 500 mg Biaxin BID; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni