Melbourne Treating Doctor for CPn
Hi All,
I am new to this forum and possibly have CP. I have MSi and wanting to be tested for CP. I also have a friend with Myalgic Encephalomyelitisi (ME) who may have it too.
We'd love some help, is there any treating doctor in Melbourne ???
Thanks in advance
Myra
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Welcome, Myra
Bring a friend to the party, by all means! You might well think about beginning the supplementsi, including NACi and Vit D3. Most of us are deficient in Vit D, and the NAC not only kills C.Pn., but is very good for your liver. All of them are good for us. Also. many of us, including me, did not do any testing at all, but simply treated emperically.
Rica
3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan In for the duration.
Thanks for your prompt response.
I have been treating my MSi using a gluten, dairy, corn free diet + supplementsi. I have never heard of NACi - but I will start that asap. Also, my vitD at diagnosis was 28 - thanks to all of that studying at uni, it dropped to dangerous MS level. I take Bioceuticals D3 drops in vanilla and my relapses have ceased. I am on the high level now.. about 158.
I've had a balloon angioplasty for MS (dubbed CCSVI) which has ameliorated all of my symptoms, including the chronic fatigue, however, I have a feeling I've been attacked by CPni.
I know there's a doctor interstate in Australia (NSW) but I am tired of travelling for treatments. Just needing a Victoria/Melbourne doctor.
Thanks in advance.
..SYMPTOM FREE 06/2012.. RRMSi diagnosed - 01/2010 CAPi commenced 18/11/2011 *Doxycycline 200mg *Roxythromycin 300mg *Flagyli 1200mg 3 days/month
Hello Myra,
The situation in Australia is dire, to say the least. There are a couple of doctors in Sydney. I have heard of a doctor in Melbourne and have sent you a private message with his details.
I have recently been in contact with the Trish Multiple Sclerosis Foundation and have provided them with information and links to this site.
I have also emailed Professor Graeme Stewart, who was interviewed by Margaret Throsby at the beginning of this week regarding the work of the International Multiple Sclerosis Geneticsi Consortium. Their recent study showed that the reason some people get MS and others don't is largely due to subtle, inherited differences in immunei function. Professor Stewart is the leader of the Australian and New Zealand contribution to this study. The study concludes that MS is an immunologic disease with an environmental trigger. Professor Stewart believes that this trigger is a lack of sunlight. He said on the interview "Yes, it is sunlight. The world can act as if it is sunlight."
I sent him a copy of the the research paper Epidemiologic Evidence for Multiple Sclerosis as an Infection by John F Kurtzke.
I presented him with other evidence pointing to the involvement of winter respiratory infection in multiple sclerosis, in particular, infection by Chlamydophila pneumoniae, along with co-infection by Epstein-Barr virus.
Multiple sclerosis was unheard of in the Faroe Islands until British troops were stationed there in World War 2. Then there was an outbreak of multiple sclerosis amongst the Faroese. You don't get outbreaks of subtle, inherited differences in immune function. You get outbreaks of infection. The Kurtzke paper looks at this in some detail.
I don't think that human troop movements cause alteration to weather patterns. But I could be wrong. I'll let you know if I get a reply from Professor Stewart.
Ladybug
FM & chronic myofascial pain 2000; Cpni; EBVi; lead poisoning; CAPi since Jan 2009; Flagyli pulses & Azi M/W/F from Mar 2009; now also Cymbalta; Rivotril; Low Dose Naltrexone; Doxyi. Pain-free and heading upwards again.
Well done you! I think that we all would be interested if/when Prof Stewart replies.
"You don't get outbreaks of subtle, inherited differences in immunei function. You get outbreaks of infection."
Nearly spilled my coffee there...Carol
Progressive MSi dx2006. LDNi & CAPi: Wheldon version. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.Water kefir. Pulses- a lot!...I can because I think I can.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Wow interesting development and research. I can't for the response.
..SYMPTOM FREE 06/2012.. RRMSi diagnosed - 01/2010 CAPi commenced 18/11/2011 *Doxycycline 200mg *Roxythromycin 300mg *Flagyli 1200mg 3 days/month
Myra,
Check out my post International genetic research into MSi susceptibility for further developments. I continued this as a new topic there so it wouldn't get lost.
I may be a little ladybug, but I think I have got a touch of rottweiler in me.
Ladybug
FM & chronic myofascial pain 2000; Cpni; EBVi; lead poisoning; CAPi since Jan 2009; Flagyli pulses & Azi M/W/F from Mar 2009; now also Cymbalta; Rivotril; Low Dose Naltrexone; Doxyi. Pain-free and heading upwards again.
apart from a cfsi specialist in melbourne - who was the other treating dr using capi??
..SYMPTOM FREE 06/2012.. RRMSi diagnosed - 01/2010 CAPi commenced 18/11/2011 *Doxycycline 200mg *Roxythromycin 300mg *Flagyli 1200mg 3 days/month