I found this website while searching for some detractors of the Marshall protocol. That is not to say that this site is one, just that I found a thread discussing the pros and cons of the MP. This leads me to post a few questions here for purposes of comprison, if you will kindly indulge me.
I was diagnosed with sarcoidosis in December 2007, comfirmed via biopsy of the mediasteinal lymph nodes. The disease first presented in October 2007 when the vision in my right was damaged by an occuled blood vessel. Subsequent inflammatory indications were found and then the disganoses, including swollen hilar lymph nodes. There was no indication of pulmonary or cardiac involvement. I learned of the Marhsall Protocol that winter and found a prescribing doctor in the spring. I officially began the MP in June 2008. I began 120mg daily benicar on 06/06/08. I have progressed nicely, increasing my antibiotics as instructed and experiencing the herxes just as they had said I would. I reached the 100mg minocycline q48hrs about a month ago and bagen to ready for phase two where and additional antibiotic is added.
My symptoms had improved, my fatigue had faded and the eye inflammation was gone. I thought I was on the right track and looking forward phase II. Then things went wrong, as far as I can tell.
The inflammation returned in my right eye, where my ophthamalogist found swollen veins and a cotton wool spot. I can make out a new spot in my vision just at the lower left of the field (6 to 8 o'clock). My ophthamal put me right back on the prednisone, 60mg daily, which is against MP guidelines. Nevertheless, I decided to add the prednisone to the benicar and mino that I am already taking fearing that if I did not, more unrepairable damage will occur to my eye.
Since adding the prednisone, I feel like hell, worse than I have ever felt since or before my diagnosis. I have had increase cheast pain, two panic attacks in one week (the first took me to the ER, where they found nothing wrong "except" an elevated heart rate). Most of the pain is center sub-sternal and then radiates upward behind the sternum. I occainsionally feel a sharp jab in these same loactaions, usually after eating, but once on an empty stomach. Overall I feel far more anxious and under the weather, so to speak. My assumption is that the prednisone is irritating my stomach badly. But I will be talking to my docs tomorrow.
All of this said, does anyone here have any comments regarding the MP? Have you heard of many successes? What would criticisms be? (I am well aware that the MP board is very dogmatic) My recent set back has caused something of a crisis in confidence with the MP.
Regarding my recent symptoms, could the sudden introduction of high-dose prednisone when taking pulsed antibiotics cause a surge in herxing?